Family theories and siblings of people with intellectual and developmental disabilities

Hayden, Nikita; Hastings, Richard P.

doi:10.1016/bs.irrdd.2022.09.001

Cited by 7 publications

(5 citation statements)

References 81 publications

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“…One reason may be that sibling intellectual or developmental disability researchers have assumed a negative, one‐sided and non‐reciprocal narrative about siblings of children with intellectual or developmental disability. Reciprocity is the essential premise of social learning theory, whereas for family systems perspectives, it is one component of an overall concept (Hayden and Hastings, 2022 ). Future research should seek to ensure that family systems perspectives are not used simply to justify a focus on siblings' outcomes but, rather, are engaged meaningfully to inform research design, analyses and interpretations of findings.…”

Section: Discussionmentioning

confidence: 99%

“…The current research is informed by family systems perspectives. Family systems perspectives explore the way in which family members may influence and relate to one another (Cox and Paley 1997 ; White and Klein 2002 ; Hayden and Hastings 2022 ). The intellectual and developmental disability family research field tends to assume that it is the disabled child who will have a ‘negative’ effect on the rest of the family (Hastings 2016 ).…”

Section: Introductionmentioning

confidence: 99%

“…However, such research focused on individual family members does not fully reflect systems thinking (Rosenblatt 1994 ), and a more complete understanding is needed through the exploration of relationship outcomes, such as by exploring the sibling dyad. Systems thinking encourages us to conceptualise the sibling–dyad level relationship as reciprocal and interconnected in nature (Cox and Paley 1997 ; Cox 2010 ; Hayden and Hastings 2022 ) and to move beyond focusing entirely on the effect of the disabled child on their siblings.…”

Section: Introductionmentioning

confidence: 99%

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Behavioural adjustment of children with intellectual disability and their sibling is associated with their sibling relationship quality

Hayden

Hastings

Bailey

2023

J intellect Disabil Res

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Background Understanding sibling relationship quality is important, as it is associated with mental health outcomes in both childhood and adulthood. Arguably, these relationships are even more important for individuals with intellectual disability, as siblings can be important sources of care, support, advocacy and friendship for one another. The intellectual disability field, however, has a tendency to assume that the relationship lacks reciprocity, and that it is the sibling with intellectual disability who affects the sibling, and that this effect is somehow ‘negative’. Methods We examined whether the behaviour problems and prosocial behaviour of 500 child sibling pairs, where one child has an intellectual disability, were associated with their sibling relationship quality. Measures included the Strengths and Difficulties Questionnaires and the Sibling Relationship Questionnaire. Family poverty, the gender of both children, birth order and whether the child with intellectual disability had autism or Down syndrome were also included in the analyses. Results Confirmatory factor analysis indicated an adequate model fit for the latent variables measuring sibling relationships. The final structural model found that the prosocial behaviour and internalising problems of the children with intellectual disability, their typically developing siblings' prosocial behaviours and sibling birth order were associated with intimacy–companionship in the sibling relationship. The internalising, externalising and prosocial behaviours of the children with intellectual disability, their siblings' externalising behaviours and sibling birth order were associated with antagonism–quarrelling in the sibling relationship. Conclusions We found that the behaviours of both the child with intellectual disability and their sibling were associated with both ‘positive’ and ‘negative’ dimensions of their sibling relationship. This indicates a bidirectional and reciprocal effect.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Behavioural adjustment of children with intellectual disability and their sibling is associated with their sibling relationship quality

Hayden

Hastings

Bailey

2023

J intellect Disabil Res

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“…As young children spend much of their time with their sibling, the sibling relationship is an important aspect of the microsystem to explore. This is especially relevant for sibling pairs where one has intellectual or developmental disabilities, as siblings can provide support, advocacy, and companionship in a disablist society (Hayden & Hastings, 2022).…”

Section: Introductionmentioning

confidence: 99%

Sibling Relationship and Behavioral Adjustment in Families of Disabled Children: Cross-Lagged Associations

Williams,

Thompson,

Hayden

et al. 2023

American Journal on Intellectual and Developmental Disabilities

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Cross-lagged panel designs were used to examine longitudinal and potential (bi)directional relationships between primary caregiver reported sibling relationship quality and the behaviors of children with intellectual disability (n = 297) and their closest in age siblings. The behavioral and emotional problems of the child with intellectual disability positively predicted sibling conflict over time. When accounting for control variables, this relationship was no longer present. Sibling warmth positively predicted the prosocial behaviors of the child with intellectual disability over time. When accounting for control variables, both sibling warmth and sibling conflict positively predicted the prosocial behaviors of the child with intellectual disability over time. Future research directions and clinical implications are discussed.

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“…However, these interventions are generally individually focused and may neglect the importance of the broader family context for adequately understanding the difficulties families of people with a developmental disability are experiencing and providing appropriate support. As with all families, families of a person with a developmental disability are interconnected systems in which family members’ well-being and behavior influence one another’s (Cox & Paley, 1997; Cridland et al, 2014; Hayden & Hastings, 2022). There is, therefore, a need for support focused on the needs of the family and informed by a systemic approach.…”

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confidence: 99%

Positive family connections for families of children with a developmental disability: Cluster randomized controlled trial.

Sutherland,

Griffin,

Flynn

et al. 2024

Journal of Family Psychology

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Positive Family Connections is a coproduced, positively oriented, family-systems program for families of children with a developmental disability aged 8-13 years. The study was a feasibility cluster randomizedcontrolled trial which was registered prospectively (International Standard Randomised Controlled Trial Number 14809884). Families (clusters) were randomized 1:1 to take part in Positive Family Connections immediately or to a waitlist condition and were followed up 4 months and 9 months after randomization. Feasibility outcomes included participant and facilitator recruitment rates, retention, intervention adherence, and fidelity. The proposed primary outcome measure was the family APGAR, a measure of family functioning. Quantitative data were analyzed using multilevel modeling. Sixty families (60 primary parental carers and 13 second carers) were randomized. 73.33% of primary parental carers and 71.43% of second carers in the intervention group attended ≥4 intervention sessions, and fidelity of delivery was high (M = 94.02% intervention components delivered). Retention for the proposed primary outcome was 97.26% at 4-month follow-up and 98.63% at 9-month follow-up. Intervention condition was not associated with family APGAR scores at 9-month follow-up (estimate = 0.06, 95% CI [−0.49, 0.61], p = .86, Hedges' g = 0.03, 95% CI [−0.43, 0.49]). However, meaningful improvements were observed for other secondary outcomes related to parental well-being and family relationships. A definitive randomized-controlled trial of Positive Family Connections is feasible. Preliminary evaluation of outcomes shows that Positive Family Connections may be beneficial for parental psychological well-being and family relationships.

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Family theories and siblings of people with intellectual and developmental disabilities

Cited by 7 publications

References 81 publications

Behavioural adjustment of children with intellectual disability and their sibling is associated with their sibling relationship quality

Behavioural adjustment of children with intellectual disability and their sibling is associated with their sibling relationship quality

Sibling Relationship and Behavioral Adjustment in Families of Disabled Children: Cross-Lagged Associations

Positive family connections for families of children with a developmental disability: Cluster randomized controlled trial.

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