Family Triad Perceptions of Mild Cognitive Impairment

Abstract

Pursuing family-level data on responses to MCI uncovered more nuanced reactions, often differing across triad members, than individual-based research has found. Family perceptions about changes in elders' memory have important implications for within-family interactions and support that can help families cope successfully with MCI.

Psychosocial Factors That Shape Patient and Carer Experiences of Dementia Diagnosis and Treatment: A Systematic Review of Qualitative Studies

“…For example, families that included a member with professional experience of dementia or who had a relative with dementia were more likely to completely acknowledge a diagnosis than those who had had no previous exposure to dementia [84]. Adjusting to a diagnosis is a complex process, and a number of ambiguities and polarised findings emerged from our analysis (see Box 2).…”

A pilot randomized trial of two cognitive rehabilitation interventions for mild cognitive impairment: caregiver outcomes

“…Some MCI partners may experience depression and anxiety associated with caregiver burden (Garand et al , ). Memory problems, as well as mild changes in functioning, may interfere with relational abilities and cause relationship strain (Roberto et al , ). In addition, the partner may experience decreased participation in their own activities and interests (Werner, ).…”

A typology of care-giving across neurodegenerative diseases presenting with dementia

“…Married partners may experience uncertainty as a result of cognitive deterioration, which, according to qualitative interviews, can lead to communication problems and conflicts (Roberto et al 2011). Cognitive alterations can also create deficits in language in early disease stages that progress with cognitive decline (Egan et al 2010; Gómez-Gallego, Gómez-Amor and Gómez-García 2012).…”

“…Physical functional decline in the care-recipient leads to ADL dependence and continuous care needs, resulting in physical activity restriction and social isolation for care-givers, as reported in quantitative surveys (Mausbach et al 2008; Stella et al 2009). In addition to physical declines, changes in cognition and behaviour impact the care-recipient's ability to socialise, and increased care responsibilities may exacerbate care-giver life space constraints, according to qualitative interviews (Blieszner and Roberto 2010; Dean and Wilcock 2012; Roberto et al 2011; Savla et al 2011), quantitative analysis (Bruce et al 2008; Ryan et al 2010) and literature reviews of cross-sectional quantitative data (Seeher et al 2013). These symptoms increase feelings of inadequacy and isolation as a care-giver, making it more difficult to seek social support (Adams 2006).…”