Fear and Coping in Children 5–9 years old Treated for Acute Lymphoblastic Leukemia - A Longitudinal Interview Study

Leibring, Ingela; Anderzén‐Carlsson, Agneta

doi:10.1016/j.pedn.2019.02.007

Cited by 10 publications

(22 citation statements)

References 22 publications

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“…However, this study shows that children can turn away from the safety of parents when the parents constitute an obstacle and seek other forms of comfort. To have a cuddly toy to hold and get comfort from is in line with previous research (32). Seventy years ago, the paediatrician and psychoanalyst Donald Winnicott (33) described that children have a natural need to use cuddly toys, blankets and bits of cloth.…”

Section: Discussionsupporting

confidence: 88%

“…The Psychologist John Bowlby believed that the child seeks the protection and comfort of their parents, in unsafe and stressful occasions (31). Parents are seen as those who know their child best (22,31) and have the child's needs and best interests in focus (32). However, this study shows that children can turn away from the safety of parents when the parents constitute an obstacle and seek other forms of comfort.…”

Section: Discussionmentioning

confidence: 99%

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Children’s individual voices are required for adequate management of fear and pain during hospital care and treatment

Kleye

Hedén

Karlsson

et al. 2020

Scandinavian Caring Sciences

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Background Children often report both fear and pain in conjunction with clinical care and treatment. Interventions developed in the field have still not been sufficient to prevent and relieve children's fear and pain. More knowledge, from children’s own perspectives, is needed about how they deal with their experiences. Aim To explore child‐identified strategies that children use to manage fear and pain during needle‐related medical procedures in hospital. Methods Interviews with children, age 4–12 years, with experience of hospital care were analysed qualitatively using content analysis. Results Children have self‐identified strategies for dealing with fear and pain during hospital care and treatment. The strategies vary depending on examination or treatment and on how the child felt at that particular day. Children describe what they can do themselves, how adults can empower them and support from surroundings as strategies that give them a choice and a voice. Children wished to have influence, decide when and how information should be given, scream out loud or squeeze something hard, to deal with fear and pain. The results also show that children tried to be brave, gain control and think positively. Something nice to look at and opportunities to play with others also contributed. Conclusions Strategies vary between children and are used differently on different occasions. Healthcare professionals pose a threat to the child's needs and ability to use their strategies due to lack of knowledge of the child’s chosen strategies.

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Section: Discussionsupporting

confidence: 88%

Section: Discussionmentioning

confidence: 99%

Children’s individual voices are required for adequate management of fear and pain during hospital care and treatment

Kleye

Hedén

Karlsson

et al. 2020

Scandinavian Caring Sciences

View full text Add to dashboard Cite

show abstract

“…If the child cannot control fear during medical procedures and panic occurs, the child is likely to be exposed to restraint and risk of experience passivity. This is in line with the results of Leibring and Anderzén-Carlsson (2019). This shows how important it is to help children manage their fear of needle procedures in order for Agency to appear, or as Hedén et al (2016) highlight an extended focus on fear-reducing intervention is required.…”

Section: Discussionsupporting

confidence: 79%

Medical procedures in children using a conceptual framework that keeps a focus on human dimensions of care – a discussion paper

Karlsson

Galvin

Darcy

2019

International Journal of Qualitative Studies on Health and Well

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Purpose: Children’s perspectives in the context of health service delivery have historically been seen as unimportant. They have been viewed as unintelligent, unable to effectively share or tell of their experiences or fully participate in their care, potentially resulting in a sense of dehumanisation.Method: The present paper illustrates children’s experiences when undergoing medical procedures, using application of the eight dimensions of humanised care theoretical framework.Results: Findings from six published papers were reflectively interrogated to identify implicit findings related to the dimensions of humanised care. These implicit findings show ways of caring for childrenwhichcan lead to enhanced human sensitivity in care or conversely where the dimensions of being human are obscured to greater or lesser degrees and can result in forms of dehumanisation.Conclusions: Inadvertent dehumanising features of practice can be mediated by encouraging the inclusion of children’s own lifeworld perspective and make room for their voices in both care and research. In this way the present well documented power imbalance could be addressed. Adding the value of the theoretical framework highlights areas of need for young children to be cared for as human beings.

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“…If the children were sad, the pets could help them feel happy again. The importance of a pet has also been confirmed in previous research [ 37 , 38 ] and stresses the therapeutic effects of having animals in care situations [ 39 ].…”

Section: Discussionmentioning

confidence: 59%

The Childhood Cancer Centre Is Coming Home: Experiences of Hospital-Based Home Care

Flon

Glaffey

Jarl

et al. 2021

IJERPH

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Today, there is a shift towards care being given closer to the patient, with more children receiving care in their homes. Care at home has proven to be a viable alternative to hospital care, as shown by a project for hospital-based home care conducted in West Sweden. The aim of this study was to describe how children with cancer and parents experienced receiving care at home. After purposive sampling, six children with cancer aged 6–16 and eight parents participated. Semistructured interviews were performed, and the data were analysed using qualitative content analysis. Four main categories emerged: save time and energy in the family; maintain everyday life; feel trust in the healthcare professionals; mixed feelings about getting treatment at home. This hospital-based home care project created good conditions for both children with cancer and their parents to feel secure. In addition, home care can be very child-centric, whereby the caregivers involve the children by taking their thoughts and utterances into account.

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Fear and Coping in Children 5–9 years old Treated for Acute Lymphoblastic Leukemia - A Longitudinal Interview Study

Cited by 10 publications

References 22 publications

Children’s individual voices are required for adequate management of fear and pain during hospital care and treatment

Children’s individual voices are required for adequate management of fear and pain during hospital care and treatment

Medical procedures in children using a conceptual framework that keeps a focus on human dimensions of care – a discussion paper

The Childhood Cancer Centre Is Coming Home: Experiences of Hospital-Based Home Care

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Fear and Coping in Children 5–9 years old Treated for Acute Lymphoblastic Leukemia - A Longitudinal Interview Study

Cited by 10 publications

References 22 publications

Children’s individual voices are required for adequate management of fear and pain during hospital care and treatment

Children’s individual voices are required for adequate management of fear and pain during hospital care and treatment

Medical procedures in children using a conceptual framework that keeps a focus on human dimensions of care – a discussion paper

The Childhood Cancer Centre Is Coming Home: Experiences of Hospital-Based Home Care

Contact Info

Product

Resources

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Fear and Coping in Children 5–9 years old Treated for Acute Lymphoblastic Leukemia - A Longitudinal Interview Study