Feeling lonely in an unfamiliar place: older people<i>’</i>s experiences of life close to death in a nursing home

Österlind, Jane; Ternestedt, Britt‐Marie; Hansebo, Görel; Hellström, Ingrid

doi:10.1111/opn.12129

Cited by 52 publications

(79 citation statements)

References 30 publications

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“…Recently, advances are made in implementing interventions targeting autonomy and emotional well‐being among frail older people in NHs, such as interventions based on peer support, active ageing and person‐centred care .…”

Section: Discussionmentioning

confidence: 99%

Living in a nursing home: a phenomenological study exploring residents’ loneliness and other feelings

Paque

Bastiaens

Bogaert

et al. 2018

Scandinavian Caring Sciences

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Section: Discussionmentioning

confidence: 99%

Living in a nursing home: a phenomenological study exploring residents’ loneliness and other feelings

Paque

Bastiaens

Bogaert

et al. 2018

Scandinavian Caring Sciences

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“…Although the experience of existential loneliness can vary between individuals, it may be important for providers working in palliative care settings to understand that loneliness is a distressing symptom in need of addressing, and that it may be a distinct experience that can impact the health and well‐being of the individual and, at times, the caregiver . Similarly, for people residing in a nursing home at the end of life, an increased awareness of the prevalence and effects of loneliness may help staff to better support patients at the end of life . The data on loneliness on nursing homes placement risk are mixed, but some studies do suggest that loneliness may be a modifiable risk factor that can be used to reduce nursing home admission …”

Section: Epidemiologymentioning

confidence: 99%

“…42,43 Similarly, for people residing in a nursing home at the end of life, an increased awareness of the prevalence and effects of loneliness may help staff to better support patients at the end of life. 44 The data on loneliness on nursing homes placement risk are mixed, but some studies do suggest that loneliness may be a modifiable risk factor that can be used to reduce nursing home admission. 45 Healthcare systems focusing entirely on traditional risk factors, such as hyperlipidemia and hypertension, may miss opportunities to impact factors that have as great an impact on health.…”

Section: Health Effects Of Loneliness and Social Isolationmentioning

confidence: 99%

A Practical Approach to Assessing and Mitigating Loneliness and Isolation in Older Adults

Perissinotto

Holt‐Lunstad

Periyakoil

et al. 2019

J American Geriatrics Society

136

144

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Loneliness and social isolation are strongly associated with several adverse health outcomes in older persons including death and functional impairments. The strength of these associations has been compared with smoking. Accordingly, loneliness and isolation have significant public health implications. Despite the adverse impacts of loneliness and social isolation on quality of life, and their strong association with health outcomes, the evaluation of loneliness and isolation have not been integrated into medical care. The risks for loneliness may be of particular concern to persons with serious illness as patients and caregivers cope with the experience of loss, loss of independence, and increasing care needs. To date, there has been no uniform way of evaluating and documenting loneliness and social isolation as a part of a review of a patient's social determinants of health. This article provides a framework for healthcare systems, providers, and community members working with older adults to (1) understand loneliness, isolation, and its counterpart social connection; (2) describe the different ways loneliness affects health; and (3) create a framework for asking about and documenting these experiences. Finally, because the lack of studies assessing whether targeting loneliness can improve health outcomes is a major gap, we provide guidance on the future of interventions. J Am Geriatr Soc 67:657–662, 2019.

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“…In today's society, independence is emphasized, thus dependency could be perceived as something negative, but could, on the other hand, help to find peace in dependence at the end of life (Eriksson & Andershed, 2008). Patients have been found to miss their earlier independence and everyday life is characterized by waiting (Osterlind, Ternestedt, Hansebo, & Hellstrom, 2017), which could be regarded as the existential loneliness that people sometimes experience when confronted with their own death (Sand & Strang, 2006;Yalom, 1980). The questions about social relations are congruent with the intent of social relationships in that there is both longing for confirmation and a wish to choose one's company.…”

Section: A Desired Fellowshipmentioning

confidence: 99%

Development of the 6S Dialogue Tool to facilitate person‐centred palliative care

Henoch

Österlind

2019

Journal of Advanced Nursing

Self Cite

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Aims To develop and psychometrically test the 6S Dialogue Tool. Background The 6S Dialogue Tool was elaborated to provide knowledge to nurses about patients’ preferences in congruence with the 6S person‐centred palliative care model, which includes the S‐concepts of self‐image, symptom relief, self‐determination, social relationships, synthesis and strategies. The tool needs to be scrutinized for appropriateness. Design A qualitative study investigating construct validity of the 6S Dialogue Tool. Methods Forty‐six patients in palliative care services in Sweden responded to 15 questions from May 2015 ‐ August 2016. Responses were analysed with qualitative content analysis. Results Six categories, capturing the meaning of the 6S‐concepts, were formulated: Maintaining everyday life; Challenges in everyday life; Maintaining control; Maintaining selected relationships; Appraisal of life; and Appraisal of the future. Conclusion The responses to the 6S Dialogue Tool questions reflect the intent of the 6S‐concepts. Nurses should integrate the 6S‐concepts and the questions in their approach to facilitate to co‐create meaningful palliative care in dialogue with the patient. Impact Patients’ preferences must be explored to co‐create palliative care in accordance with their own needs and beliefs. The 6S Dialogue Tool questions are suitable for obtaining patients’ preferences and could be used as an approach in palliative care. Patients, families and nurses will have the potential to co‐create palliative care and to improve possibilities for patients to have an appropriate death.

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Feeling lonely in an unfamiliar place: older people’s experiences of life close to death in a nursing home

Abstract: It is of importance for professionals to be able to meet older people as they are and respect them as human beings in their transitions, before, during and after the move to a nursing home. It is important to find ways to support older people's wellbeing and identity near death.

Cited by 52 publications

References 30 publications

Living in a nursing home: a phenomenological study exploring residents’ loneliness and other feelings

Living in a nursing home: a phenomenological study exploring residents’ loneliness and other feelings

A Practical Approach to Assessing and Mitigating Loneliness and Isolation in Older Adults

Development of the 6S Dialogue Tool to facilitate person‐centred palliative care

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