Feelings and expectations of permanent colostomy patients

Abstract

Objective: Original article, based on field research that sought to describe the challenges that persons face when adapting to a permanent colostomy. Design: Data were collected through a semi-structuralized interview and analyzed using the technique of Content Analysis proposed by Bardin. Subjects and Setting: five participants in the Ostomy Program of the City Health Department of Capão do Leão, Brasil.Methods: Qualitative descriptive study, conducted from July to September of 2005, in the city of Capão do Leão, State of Rio Grande does Sul/Brazil. Results:The categorization of the data led to identification of three thematic units. The first we described as "Experiencing the consequences of illness as a disorder". The second was "Restoring a sense of order to life", and the third was "Living with the new condition". Reflections illuminated by the complex thought were pointed out as possibilities of a care for the human being, capable of making choices and of actively participating of its process of health and illness. Conclusion:We concluded that a having permanent ostomy was difficult for the subjects and restoring the sense of an orderly life was complex.

Living With an Intestinal Stoma: A Qualitative Systematic Review

“…Some of the participants commented, “Getting angry only makes it worse. But it’s something to which we have to adapt; it’s the only way out” (Backes, Backes, & Erdmann, 2012). In the study of Bulkley et al (2013), another participant stated that “I feel like I had a second chance to live when I needed a colostomy surgery .…”

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“…The Wound, Ostomy and Continence Nurse (WOCN) plays a crucial role in the physiological and psychosocial adaptation of patients by educating them on how to manage and cope with an intestinal ostomy. But, not all patients have access to a WOCN, which led to suboptimal care and an increased risk for hardness in adjusting to life after surgery [10].…”

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“…Essas pessoas geralmente não estão preparadas para enfrentar essa nova condição em suas vidas. No entanto, apesar de não estarem preparadas inicialmente, após seu processo de adaptação como pessoas com estoma, elas começam a conceber a vida de outra maneira, especialmente quando a doença de base é o câncer 11 .…”