‘Feelings, and feelings, and feelings. Let me try thinking instead’: Screening for distress and referral to psychosocial care for men with prostate cancer

Dunn, Jeff; Chambers, Suzanne K.

doi:10.1111/ecc.13163

Cited by 6 publications

(3 citation statements)

References 26 publications

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“…Whilst the American Prostate Cancer Survivorship Guidelines 33 detail areas of focus for PC survivors, to our knowledge, no specific guidelines or national survivorship care plans exist for PC survivors in Australia 34 . Despite the paucity of national coordinated effort to address these challenges, the introduction of a psychosocial care monograph in 2019 recommends routine distress screenings and referral to evidence‐based psychosocial care for PC survivors 35,36 . Nationally coordinated interventions and efforts to improve experiences with PC survivorship represent a critical area for future research 32,37 .…”

Section: Discussionmentioning

confidence: 99%

Avoiding the ‘survivorship abyss’: Qualitative insights from 15‐year prostate cancer survivors

et al. 2021

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Objective: As many men diagnosed with prostate cancer (PC) are now living well beyond diagnosis and treatment, these survival gains necessitate improved understanding of long-term survivorship experiences. This is the first qualitative study that aimed to provide insights into PC survivors' adjustment to diagnosis and any persisting or emerging cancer/treatment-related issues over 15+ years.Methods: Semi-structured interviews were conducted with 37 men purposively sampled from the 15-year follow-up phase of a population-wide cohort study, the New South Wales Prostate Cancer Care and Outcomes Study (PCOS). Interview data were transcribed and thematically analysed applying a framework methodology. Results:The majority of participating men (88.6%) had been diagnosed with localised disease and were treated with radical prostatectomy as primary treatment (54.1%). Four main interconnecting themes relating to men's long-term survivorship experience with PC were identified: (1) Survivorship reflections, (2) interactions with the healthcare system, (3) personal and social relationships and (4) dominant coping strategies. Many men reported gaps along the continuum of care and a feeling of abandonment across their long-term survivorship, encompassed by a perceived lack of psychosocial and informational support for persisting treatment side-effects, especially sexual dysfunction. Receiving adequate survivorship care and trusting patient-clinician relationships appeared to be associated with greater resilience and positivity in the men's acceptance of cancer-related long-term challenges and personal limitations.Conclusions: Long-term PC survivors continue to experience lasting treatment impacts, with many men reporting unmet needs and a lack of continuity of multidisciplinary care. Implementation of coordinated and tailored survivorship care and shared care pathways with multidisciplinary practitioners will facilitate men's improved engagement and timely access to supportive care interventions, helping to avoid the 'survivorship abyss'.

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Section: Discussionmentioning

confidence: 99%

Avoiding the ‘survivorship abyss’: Qualitative insights from 15‐year prostate cancer survivors

et al. 2021

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“…Cancer survivors, including those who may be categorized as "overdiagnosed," often face a range of long-term adverse physical, psychosocial, and financial effects due to their disease including anxiety and depression (25), secondary primary cancers (3,26), and loss of life expectancy (27), which also impacts family members and caregivers. The unique and often complex lifelong needs of this population are highlighted in the best practice guidelines for survivorship (28) and psychosocial care (29). Key elements of high-quality survivorship care include prevention of recurrence, second primaries and treatment-related effects; surveillance, coordinated follow-up and supportive care involving all required health care providers and management of the consequences of cancer and its treatments.…”

Section: Discussionmentioning

confidence: 99%

Quantifying the Number of Cancer Deaths Avoided Due to Improvements in Cancer Survival since the 1980s in the Australian Population, 1985–2014

Dasgupta

Cramb

Kou

et al. 2020

Cancer Epidemiology, Biomarkers &Amp; Prevention

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Background: This study quantifies the number of potentially "avoided"cancer deaths due to differences in 10-year relative survival between three time periods, reflecting temporal improvements in cancer diagnostic and/or treatment practices in Australia.Methods: National population-based cohort of 2,307,565 Australians ages 15 to 89 years, diagnosed with a primary invasive cancer from 1985 to 2014 with mortality follow-up to December 31, 2015. Excess mortality rates and crude probabilities of cancer deaths were estimated using flexible parametric relative survival models. Crude probabilities were then used to calculate "avoided cancer deaths" (reduced number of cancer deaths within 10 years of diagnosis due to survival changes since 1985-1994) for all cancers and 13 leading cancer types.Results: For each cancer type, excess mortality (in the cancer cohort vs. the expected population mortality) was significantly lower for more recently diagnosed persons. For all cancers combined, the number of "avoided cancer deaths" (vs. 1985-1994) was 4,877 (1995-2004) and 11,385 (2005-2014) among males. Prostate (1995Prostate ( -2004 2005-2014) and female breast cancer (1,127 and 2,048) had the highest number of such deaths, whereas <400 were avoided for pancreatic or lung cancers across each period.Conclusions: Screening and early detection likely contributed to the high number of "avoided cancer deaths" for prostate and female breast cancer, whereas early detection remains difficult for lung and pancreatic cancers, highlighting the need for improved preventive and screening measures.Impact: Absolute measures such as "avoided cancer deaths" can provide a more tangible estimate of the improvements in cancer survival than standard net survival measures.

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“…In the decades of research and encounters with cancer survivors, strong feelings regarding cancer such as uncomfortable and a distressing subject are common, exerting the pressure to gradually break the silence around cancer [11]. Although Facebook /website media and advocacy groups exist to support the cancer agenda and fight cancer stigma, the mainstream media like national newspaper should play very important role since they are uniquely positioned to widely disseminate positive stories and viewpoints of people coming forth for early screening and detection.…”

Section: More Sociological-based Community Work Needed-to Break the Silence Around Cancermentioning

confidence: 99%

Reducing Stigma of Cancer in Asia–An Important Strategy for Cancer Control

Loh¹

2020

J Oncol Res Rev Rep

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Half the global burden of cancer is in Asia, where 60 percent of the world population live. Ageing society, growing populations, lifestyle and socioeconomic changes have contributed to a steep rise in cancer incidences. The emerging cancer burden across Asia call for balanced investments in public and professional awareness and political recognition of cancer as a public health problem. Early detection and cancer prevention leads to both better health outcomes and better cost-savings of treatment costs. Although evolving cancer health services need to be stepped up to strengthen cancer healthcare infrastructure to improve equitable access to services, more work must be conducted in the community to address the entrenched stigma of cancer and caused a shift towards a more positive perception to help address cancer in Asia.

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‘Feelings, and feelings, and feelings. Let me try thinking instead’: Screening for distress and referral to psychosocial care for men with prostate cancer

Cited by 6 publications

References 26 publications

Avoiding the ‘survivorship abyss’: Qualitative insights from 15‐year prostate cancer survivors

Avoiding the ‘survivorship abyss’: Qualitative insights from 15‐year prostate cancer survivors

Quantifying the Number of Cancer Deaths Avoided Due to Improvements in Cancer Survival since the 1980s in the Australian Population, 1985–2014

Reducing Stigma of Cancer in Asia–An Important Strategy for Cancer Control

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