Fibromyalgia, Chronic Fatigue Syndrome, and Multiple Chemical Sensitivity: Illness Experiences

Alameda-Cuesta, Almudena; Garciandía, Alvaro Pazos; Quintana, Cristina Oter; Iglesias, Marta Elena Losa

doi:10.1177/1054773819838679

Cited by 13 publications

(11 citation statements)

References 56 publications

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“…From this perspective, including relatives in the programme could promote healthier family relationships based on comprehension and destigmatization. Alameda Cuesta et al ( 2021 ) explain that the ultimate aim of healthcare for FMS patients should be to decrease vulnerability and exclusion. A family approach would also allow implementing a gender perspective working on gender roles in the family group.…”

Section: Discussionmentioning

confidence: 99%

Patients’ appraisals about a multicomponent intervention for fibromyalgia syndrome in primary care: a focus group study

Arfuch

Gonçalves

Angelats

et al. 2021

International Journal of Qualitative Studies on Health and Well

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Purpose To assess fibromyalgia patients’ experiences and appraisals about a multidisciplinary intervention programme, in Catalonia’s primary care, regarding its format and contents, benefits, and health impact in the short and long term. Method Qualitative interpretative research design through hermeneutic phenomenology perspective. Two focus groups discussions were conducted in February and July 2020. The purposive heterogeneous sample included 19 fibromyalgia patients who attended a multicomponent programme. In addition, thematic analysis on the verbatims was performed. Results Findings were organized into five main domains with an explanatory theme each. Overall, the informants valued the programme as a positive experience due to its holistic approach, health benefits, suffering relief, group effect, and fibromyalgia legitimacy promotion. Detected improvable aspects focused on extending the timeframe, including family members as beneficiaries, deepening the thematic contents, and getting regular access to this healthcare service. Furthermore, the intervention was considered feasible to be incorporated into usual clinical care. Conclusion the programme fulfilled users’ expectations about results and procedure and showed promise as a treatment strategy to reinforce the usual practice. Our findings suggest a broad perspective on fibromyalgia patients’ suffering, which urges us to adjust the intervention programme to their real health needs.

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Section: Discussionmentioning

confidence: 99%

Patients’ appraisals about a multicomponent intervention for fibromyalgia syndrome in primary care: a focus group study

Arfuch

Gonçalves

Angelats

et al. 2021

International Journal of Qualitative Studies on Health and Well

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“…somatischen Belastungsstörungen und chronischen Schmerzen, Dissoziation/Depersonalisation/Derealisation sowie Störungen von Körperschema, -integrität und -identität – eigenen Krankheitswert erlangen. Das subjektive Körpererleben dieser Patienten wird allerdings oft als fehlerhaft oder illegitim bewertet, sogar von den Patienten selbst 8 31 . Indem man genau zuhört, nachfragt und sich vielleicht auch einmal zeigen lässt, kann man den verschiedenen Dimensionen des Körper-Erlebens (als wesentlichem Teil des individuellen „phenomenal fields“) eine Bühne geben(„phenomenolocial unfolding“) 13 17 18 30 (▶ Box 1): Bitte beschreiben Sie mir – wie ist das für Sie?…”

Section: Körper-erlebenunclassified

Körpererfahrung und Körperinteraktion in der psychotherapeutischen Anamnese- und Befunderhebung

Hausteiner-Wiehle

Henningsen

2021

Psychother Psychosom Med Psychol

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ZusammenfassungSchwierigkeiten mit Körpererfahrung und Körperinteraktion kennzeichnen viele psychische und psychosomatische Erkrankungen und sind sowohl für das Störungsverständnis als auch für die Therapie eines konkreten Patienten relevant. Für ihre Diagnostik gibt es eine Reihe von körperbezogenen Konstrukten, standardisierten Messinstrumenten und Experimenten, die sich auf Einzelaspekte konzentrieren bzw. einer kategorisierenden Auswertungslogik folgen. In der alltäglichen psychotherapeutischen Diagnostik fehlt es aber an Begriffen und Methoden, um Körpererfahrung und Körperinteraktion individuell und situativ zu verstehen und zu nutzen. Dieses Diskussionspapier beschreibt auf der Grundlage klinischer Erfahrungen und einer breiten, themengeleiteten Literaturrecherche ihre wichtigsten Dimensionen – subjektives Körpererleben, dargebotene Körpersprache, gezeigte und verborgene körperliche Befunde, körperbezogene Narrative und Handlungen, körperliche Resonanz – und wie sie in der klinischen Interaktion durch Beobachtung, Mentalisierung und Bezogenheit erfasst werden können.

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“…Apart from physical complaints, individuals with MCS are commonly burdened by their psychosocial situation, and their quality of life is significantly impaired. Patients frequently feel stigmatized and not taken seriously . In addition, many of those affected by MCS are no longer able to work or participate in public life due to their condition .…”

Section: Psychosocial Situation Of Affected Individualsmentioning

confidence: 99%

Multiple chemical sensitivity (MCS) – a guide for dermatologists on how to manage affected individuals

Harter¹,

Hammel²,

Fleming

et al. 2020

J Deutsche Derma Gesell

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Summary Multiple chemical sensitivity (MCS) is a condition characterized by a subjectively perceived increase in sensitivity to environmental chemicals. Individuals affected report a wide variety of nonspecific complaints, and frequently attribute cutaneous and mucosal symptoms to chemical exposures. Dermatologists should therefore be familiar with this condition. MCS is a diagnosis of exclusion. Other causes for the patients’ symptoms should be ruled out by routine laboratory tests, allergy tests and, if indicated, monitoring for toxic (environmental) substances. The primary job of dermatologists is to rule out skin diseases or hypersensitivities as possible causes of the complaints. Interdisciplinary patient management is essential, especially in severe cases in which those affected have problems coping with everyday life. Relevant specialties in this context include environmental medicine, psychosomatic medicine as well as occupational and social medicine. Cutaneous symptoms are usually addressed with symptomatic treatment using basic skin care products. There are currently no evidence‐based treatment recommendations for MCS. It is crucial that MCS patients be protected from unnecessary treatments and thus from mental, social and financial strain. In addition to medical skills, managing MCS patients requires communicative and psychosocial competence in particular. Physicians involved in the treatment will benefit from training in psychotherapy. Irrespective of the mechanisms that lead to MCS, diagnosis and treatment of this condition require an actively supportive attitude towards these patients, a good doctor‐patient relationship and interdisciplinary cooperation.

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Fibromyalgia, Chronic Fatigue Syndrome, and Multiple Chemical Sensitivity: Illness Experiences

Cited by 13 publications

References 56 publications

Patients’ appraisals about a multicomponent intervention for fibromyalgia syndrome in primary care: a focus group study

Patients’ appraisals about a multicomponent intervention for fibromyalgia syndrome in primary care: a focus group study

Körpererfahrung und Körperinteraktion in der psychotherapeutischen Anamnese- und Befunderhebung

Multiple chemical sensitivity (MCS) – a guide for dermatologists on how to manage affected individuals

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