Field Research with Underserved Minorities: The Ideal and the Real

Stiffman, Arlene Rubin; Freedenthal, Stacey; Brown, Eddie F.; Ostmann, Emily; Hibbeler, Patricia

doi:10.1093/jurban/jti064

Cited by 13 publications

(13 citation statements)

References 19 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Some researchers have therefore redesigned their projects to enable participants to gain immediately from receiving health information or access to services (see Case Studies 31 and 32). Contrary to some researchers' concerns, this has not had a harmful effect on the robustness of the research (Stiffman et al 2005).…”

Section: Keeping Projects Grounded and Focused On Benefits For Communcontrasting

confidence: 62%

“…• making sure the right language is used (Lammers & Happell 2004), so that the wording is appropriate and accessible (Faulkner 2006;Smith et al 2008) • improving the way questions are phrased Wright et al 2006) and ensuring they are asked in ways acceptable to the local community (Rowe 2006;Smith et al 2008) • providing ideas on how to obtain information from participants in a less structured, more informal way • ensuring the questions are sensitive to community concerns and issues (Burrus et al 1998;Smith et al 2008) as well as being culturally relevant (Krieger et al 2002;Stiffman et al 2005;Viswanathan et al 2004) • weeding out questions that would not work and replacing them with ones that would (Butcher 2005) • bringing in subject areas for questioning and exploring nuances that would have otherwise been overlooked (Broad & Saunders 1998;Wyatt et al 2008) • ensuring the length of a questionnaire is appropriate (Krieger et al 2002).…”

Section: Impact On Research Toolsmentioning

confidence: 99%

“…Case Study 32: Involving American Indians in research into the health needs of American Indian adolescents (Stiffman et al 2005) This project was designed to research the service needs and service use of young people in American Indian communities. The researchers set up a Research Implementation Team (RIT) to help develop the research proposal.…”

Section: Case Study 31mentioning

confidence: 99%

See 2 more Smart Citations

Evolving Patient-Researcher Collaboration: An Illustrative Case Study of a Patient-Led Knowledge Translation Event

Leese

Kerr²,

McKinnon³

et al. 2017

J Participat Med

View full text Add to dashboard Cite

Introduction 11 2. Methods 15 3. Context to the findings 21 4. Findings from the literature review 25 4.1 Impact on the research agenda 26 4.2 Impact on research design and delivery 30 4.3 Impact on research ethics 50 4.4 Impact on the public involved 53 4.5 Impact on researchers 64 4.6 Impact on research participants 69 4.7 Impact on the wider community 72 4.8 Impact on community organisations 78 4.9 Impact on implementation/change 79 4.10 Factors that influence the impact of involvement 84 4.11 Reflections from the literature on assessing the impact of public involvement 87 5. Discussion 91 Jargon buster 97 Appendices 102 References 106

show abstract

Section: Keeping Projects Grounded and Focused On Benefits For Communcontrasting

confidence: 62%

Section: Impact On Research Toolsmentioning

confidence: 99%

Section: Case Study 31mentioning

confidence: 99%

See 1 more Smart Citation

Evolving Patient-Researcher Collaboration: An Illustrative Case Study of a Patient-Led Knowledge Translation Event

Leese

Kerr²,

McKinnon³

et al. 2017

J Participat Med

View full text Add to dashboard Cite

show abstract

“…Also, the principles and components of cultural sensitivity in minority behavioral health research have not been extensively described or empirically examined in studies related to nutrition and exercise (Betancourt, Green, Carrillo, & Ananeh-Firempong, 2003; Castro, Barrera, & Martinez, 2004; Stiffman, Freedenthal, Brown, Ostmann, & Hibbeler, 2005). Examining nutrition and exercise behaviors among Hispanics is of great importance.…”

mentioning

confidence: 99%

Anatomy of Culturally Sensitive Interventions Promoting Nutrition and Exercise in Hispanics: A Critical Examination of Existing Literature

Mier

Ory

Medina

2009

Health Promotion Practice

109

View full text Add to dashboard Cite

Compared with non-Hispanic Whites, Hispanics experience a disproportionate burden of chronic diseases. Understanding the factors influencing the success of health programs in Hispanics requires a clearer examination of the principles and components of tailored interventions. This research comprises a comprehensive literature review of randomized controlled trials testing nutrition and exercise interventions tailored for Hispanics and an examination of how these interventions were constructed. The review of 18 interventions meeting study criteria suggests that most tailored programs promoting nutrition and exercise in Hispanics are theory driven and are informed by formative research. Also, the findings indicate that salient culturally sensitive intervention components are (a) bilingual and bicultural facilitators and materials, (b) family-based activities, (c) literacy-appropriate materials, and (d) social support. A clear understanding of Hispanic cultural values is also required. Further empirical examination is warranted to determine the factors mediating or predicting the efficacy of culturally sensitive health programs for Hispanics.

show abstract

“…Such efforts were not able to inform our project. Studies with American Indian youth that have included active parent consent tended to provide little information on sample frame or response rate at either parent or child levels or used the consented population as the denominator to determine response rate for subsequent data collection waves (similar to clinical trials; Caballero et al 2003; Stiffman et al 2005). Further, although prior community input suggested a high level of acceptability of COL for youth, we had no information about parent/guardian consent rate for child participation in this sensitive study.…”

Section: Methodsmentioning

confidence: 99%

Circle of Life: Rationale, Design, and Baseline Results of an HIV Prevention Intervention Among Young American Indian Adolescents of the Northern Plains

et al. 2009

View full text Add to dashboard Cite

In spite of significant disparities in sexual health outcomes for American Indian youth, no studies exist examining the effectiveness of HIV-prevention interventions. Circle of Life is an HIV-prevention intervention specifically developed for American Indian middle-school youth. We describe the rationale, methodology, and baseline results of a longitudinal randomized trial of Circle of Life conducted among American Indian youth aged 11–15 in a reservation community. The innovative design includes two pre-intervention waves to determine patterns of behavior prior to the intervention that might be associated with a differential impact of the intervention on sexual risk. We used one-way analysis of variance and chi-square tests to test for significant differences between randomized group assignment at each baseline wave and generalized estimating equations (GEE) to test significant differences in the rate of change in outcomes by group longitudinally. We present the collaborative and adaptive strategies for consenting, assenting, and data collection methodology in this community. Achieved response rates are comparable to other similar studies. Results from the two baseline waves indicate that few outcomes significantly varied by randomized intervention assignment. Ten percent of youth reported having had sex at Wave 1, rising to 15% at Wave 2. Among those who had had sex, the majority (>70%) reported using a condom at last sex. The project is well positioned to carry out the longitudinal assessments of the intervention to determine the overall impact of the Circle of Life and the differential impact by pre-intervention patterns of behavior across youth.

show abstract

Field Research with Underserved Minorities: The Ideal and the Real

Abstract: ABSTRACT

Cited by 13 publications

References 19 publications

Evolving Patient-Researcher Collaboration: An Illustrative Case Study of a Patient-Led Knowledge Translation Event

Evolving Patient-Researcher Collaboration: An Illustrative Case Study of a Patient-Led Knowledge Translation Event

Anatomy of Culturally Sensitive Interventions Promoting Nutrition and Exercise in Hispanics: A Critical Examination of Existing Literature

Circle of Life: Rationale, Design, and Baseline Results of an HIV Prevention Intervention Among Young American Indian Adolescents of the Northern Plains

Contact Info

Product

Resources

About