Fight against hair loss together: exploring self-disclosure and social support in an online hair loss support community

Abstract

Purpose Hair loss is often overlooked but psychologically challenging. However, the emergence of online health communities provides opportunities for hair loss patients to seek social support through self-disclosure. Nevertheless, not all disclosures receive the desired support. This research explores what patients disclose within the community and how their health narrative (content, form and linguistic style) regarding self-disclosure influences the social support they receive.Design/methodology/approachThis study investigated a 13-year-old online support group for Chinese hair loss patients with nearly 240,000 members. Using structural topic modeling, Linguistic Inquiry and Word Count, and a negative binomial model, the research analyzed the content of self-disclosure and the interrelationships between social support and three narrative dimensions of self-disclosure.FindingsSelf-disclosures are classified into 14 topics, grouped under analytical, informative and emotional categories. Emotion-related self-disclosures, whether in content or effective word use, receive deeper social support. Longer and image-rich posts attract more support in quantity, but not necessarily in quality, while cognitive words have a limited impact.Originality/valueThis study addresses the previously overlooked population of hair loss patients within online health communities. It employs a more comprehensive health narrative framework to explore the relationship between self-disclosure and social support, utilizing unsupervised structural topic modeling methods to mine text. The research offers practical implications for how patients seek support and for healthcare professionals in developing doctor-patient communication strategies.