Financial effects for families after the death of a disabled or chronically ill child: a neglected dimension of bereavement

Corden, Anne; Sloper, Patricia; Sainsbury, Roy

doi:10.1046/j.1365-2214.2002.00267.x

Cited by 27 publications

(22 citation statements)

References 8 publications

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“…Parents (or caregivers) have to manage their time between caring responsibilities and everyday domestic tasks [24,25]. Disturbances to employment patterns may have important financial implications, in addition to any extra expenditure incurred [26,27].…”

Section: Introductionmentioning

confidence: 99%

Preferences for support services among adolescents and young adults with cancer or a blood disorder: A discrete choice experiment

et al. 2012

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Section: Introductionmentioning

confidence: 99%

Preferences for support services among adolescents and young adults with cancer or a blood disorder: A discrete choice experiment

et al. 2012

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“…From the time a child is suspected of having cancer, parents are often faced with disruptions in daily routines and family life, including changing caregiver or spousal roles, threats to employment and financial strain, and emotional challenges that significantly contribute to the cancer experience. These additional stressors in combination with caring for healthy family members and maintaining other relationships can be extremely difficult for couples.…”

Section: Introductionmentioning

confidence: 99%

The perceived influence of childhood cancer on the parents' relationship

et al. 2016

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Objective When a child is diagnosed with cancer, parents are faced with many practical and emotional challenges that can significantly affect their relationship. This study explores how having a child with cancer affects the quality of the parents’ relationship; categorizes time points and events during the child’s treatment when the relationship becomes most stressed and/or strengthened; identifies factors that help couples remain emotionally engaged throughout their child’s cancer treatment; and assesses parental interest in a counseling intervention. Methods This is a cross sectional, multi-center study conducted via a semi-structured self-administered questionnaire that included The Revised Dyadic Adjustment Scale. Results 192 parents of children diagnosed between the ages of 1–21 participated. Forty percent felt their relationship moved in a negative direction. Diagnosis and relapse of disease were cited as the most individually stressful time points in the disease trajectory, with hospitalizations and relapse being most stressful on the relationship. Participants felt most emotionally connected at diagnosis, and least emotionally connected at the start and end of treatment. The majority of couples indicated interest in counseling to address ways to support their relationship. Soon after diagnosis and during treatment was reported as the preferred time to offer these interventions. Conclusion This study identified specific events and parent behaviors that strain the couples’ relationship during the childhood cancer trajectory. This information can inform the development of a couple’s intervention. Prospective research is needed to better understand how childhood cancer affects caregivers’ partnerships through survivorship and beyond.

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“…Minority groups were disproportionately affected, as they typically experienced higher death rates and had lower incomes. Other studies investigated the financial impact of the death of a child (Corden, Sainsbury & Sloper, 2004;Corden, Sloper & Sainsbury, 2002) and the death of a partner (Corden & Hirst, 2013;Corden, Hirst & Nice, 2010;Fan & Zick, 2004). These studies found that preceding and following death there is often a period of increased expenditure and decreased income.…”

Section: Government Role In Indigent Funeralsmentioning

confidence: 99%

‘Is a funeral a right?‘ Exploring indigent funerals from social work perspectives

Thompson¹,

Yeung²

2015

ANZSWJ

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Research shows that funerals take place in a tension between the desire for a meaningful event and the reality of cost. Every culture has traditions for marking life‘s end and this must include responses to people who die indigent (without resources). This study takes place in the context of current welfare debates and the growing aging population which will require increasing numbers of people to organise and fund funerals. Yet funeral poverty and funeral welfare policy are an under-researched element of the welfare debate. In Aotearoa New Zealand some assistance with costs is available from the Government through Work and Income New Zealand or the Accident Compensation Corporation (ACC). However, grants are not designed to meet the full cost of a funeral. It is expected that family and/or friends will meet the remaining costs, but there are times when there is no one able or willing to do this. This exploratory study interviewed four professionals (two social workers, one community worker and a funeral director) who had taken responsibility for arranging an indigent funeral, in order to explore their motivations and experiences. Findings from the participants revealed that the level of current government support is inadequate; however, they also suggested that communities may need to take more responsibility for funerals, particularly for vulnerable population groups. Social workers can play a role both by initiat- ing conversations about funerals with clients and advocating for enhanced access to funeral services and grants to prevent the increase of funeral poverty

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Financial effects for families after the death of a disabled or chronically ill child: a neglected dimension of bereavement

Cited by 27 publications

References 8 publications

Preferences for support services among adolescents and young adults with cancer or a blood disorder: A discrete choice experiment

Preferences for support services among adolescents and young adults with cancer or a blood disorder: A discrete choice experiment

The perceived influence of childhood cancer on the parents' relationship

‘Is a funeral a right?‘ Exploring indigent funerals from social work perspectives

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