Finding Healthcare Support in Online Communities: An Exploration of the Evolution and Efficacy of Virtual Support Groups

Davis, Donna; Calitz, Willemien

doi:10.1007/978-3-319-22041-3_17

Cited by 12 publications

(8 citation statements)

References 22 publications

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“…Many support groups' administrators are not professionally trained (Gazit, 2021). However, they often have personal experience of support groups (Paskewitz and Beck, 2018) and as part of their role they should remind the members about privacy definitions (Eitan and Gazit, 2021), mainly because there is a need for members' consent to disclose information and use it out of free will and an understanding of its implications (Davis and Calitz, 2016).…”

Section: Facebook Medical Support Groupsmentioning

confidence: 99%

Facebook medical support groups: the communication privacy management perspective

Avizohar

Gazit

Aharony

2022

AJIM

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PurposeExploring the considerations that guide and influence members of Facebook medical support groups to disclose private information.Design/methodology/approachThe sample included 293 participants, aged 18–85 years, who answered an online survey, 155 members of Facebook medical support groups and 138 members of other Facebook groups.FindingsMembers of medical support groups attach greater importance to privacy policy, give greater value to privacy and reveal more private information, compared to members of other groups. Members of medical support groups tend to feel that they receive more support and feel that the privacy policy preserves their privacy much more. These feelings are associated with greater self-disclosure of groups' members.Originality/valueThe research insights will help medical support groups' members and admins to put into action the fundamental right to privacy and build a set of rules tailored to their individual and group needs.

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Section: Facebook Medical Support Groupsmentioning

confidence: 99%

Facebook medical support groups: the communication privacy management perspective

Avizohar

Gazit

Aharony

2022

AJIM

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“…Research has also begun to investigate the ability of 3-D virtual worlds to act as a more immersive form of online social support [85]. Second Life has been studied as one of the most realistic and immersive virtual world's available [86], where people can create and personalise their avatars which interact with each other and the environment.…”

Section: Virtual Communitiesmentioning

confidence: 99%

The untapped potential of the gaming community: A narrative review. (Preprint)

Goodman¹,

McFerran²,

Purves³

et al. 2018

Preprint

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Video gamers are a population at heightened risk of developing obesity due to the sedentary nature of gaming, increased energy intake and the disruption caused to their sleep. This increases their risk of developing a number of non-communicable diseases. To date, research seeking to improve health behaviours has focussed on developing novel video games to promote behaviour change. Although positive results have emerged from this research, the success has been limited due to the lack of transferability to more mainstream games and the focus on children and adolescents. However, the gaming community has a number of unique aspects which, in comparison to the development of new video games, have received less attention. Research has found that advertising can have implicit effects on individual's memories which could influence their later decisions. Yet the effect of the exponential growth of in-game advertisements, and brand sponsorship of gaming events and professional gamers, has not been explored in the gaming community. Nor has the possibility of using advertising techniques to encourage positive health behaviours within games or at these events. Research suggests that virtual communities can be effective at disseminating health information, but the efficacy of this needs to be explored utilising known community influencers within the gaming community. The purpose of this paper is to highlight these under-researched areas that have the potential to encourage positive health behaviour among this community.

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“…The importance of online communities of support to those with chronic illness with low access to resources is increasingly recognised (e.g. Davis & Calitz, 2016).…”

Section: Grassroots Opportunitiesmentioning

confidence: 99%

Identifying Grassroots Opportunities and Barriers to mHealth Design for HIV/AIDS Using a Communicative Ecologies Framework

Watkins

Baulch

2017

Mobile Communication in Asia: Local Insights, Global Implications

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The aim of this qualitative study was to test how social and cultural research methods can be used to anticipate opportunities and barriers to the use of consumer mobile devices by community health workers (CHWs) for HIV/AIDS prevention, testing and treatment. An exploratory study was conducted with CHWs (n = 19) at the regional capitals of Denpasar and Makassar in Indonesia in order to build to a clearer picture of how the participants have integrated personal mobile handsets into their daily professional and personal routine. A communicative ecologies framework was applied to the research design which included a range of qualitative methods including in-depth interviews, focus group discussions and communicative ecology mapping. Our main findings revealed that there was no bottom-up impetus for the introduction of a formal mHealth system to support client interactions. Existing client data collection systems were locked into paper-based systems to ensure compatibility with local government and/or funding body administrative systems; hence, mobile device-based data collection would require additional processes by the participants. Boundary issues were reported with regard to out of hours contact by clients. Some CHWs sent SMS medication reminders to clients but the strong preference indicated by all participating CHWs was to meet clients face-to-face in order to build and maintain trust through the in-person counselling process, rather than introduce mobile-mediated interaction.

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Finding Healthcare Support in Online Communities: An Exploration of the Evolution and Efficacy of Virtual Support Groups

Cited by 12 publications

References 22 publications

Facebook medical support groups: the communication privacy management perspective

Facebook medical support groups: the communication privacy management perspective

The untapped potential of the gaming community: A narrative review. (Preprint)

Identifying Grassroots Opportunities and Barriers to mHealth Design for HIV/AIDS Using a Communicative Ecologies Framework

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