Finding Meaning: An Alternative Paradigm for Alzheimer's Disease Family Caregivers

Farran, Carol J.; Keane-Hagerty, Eleanora; Salloway, Sandra; Kupferer, Sylvia; Wilken, Carolyn S.

doi:10.1093/geront/31.4.483

Cited by 234 publications

(143 citation statements)

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“…The research that has been conducted demonstrates that many carers cope well with the challenges they face and experience caregiving as a rewarding and satisfying experience (Cohen, Colantonio & Vernich, 2002;Farran, Keane-Hagerty, Salloway, Kupferer & Wilken, 1991).…”

Section: Positive Aspects Of Caregiving In Dementiamentioning

confidence: 99%

“…Firstly, the majority of the studies reported on qualitative data collected as part of larger, mixed-method studies. In some cases, opportunity or convenience sampling was used to collect the large volumes of data required for the quantitative aspects of the studies as opposed to purposive sampling preferred in qualitative methodologies (Farran, et al, 1991;Murray, Schneider, Banerjee & Mann, 1999;Narayan, Lewis, Tornatore, Hepburn & Corcoran-Perry, 2001). …”

Section: Assessment Of Qualitymentioning

confidence: 99%

“…Furthermore, those studies that formed a part of a larger piece of research tended not to report as much detail of the data collection method, particularly in terms of who collected the data, their training and potential influence they may have had on the process (Butcher & Buckwalter, 2002;Farran et al, 1991;Jansson, Almberg, Grafström, & Winblad, 1998;Jervis, Boland & Fickenscher 2010;Peacock et al, 2010;Ribeiro & Paúl, 2008;Shim, Barroso, Gilliss & Davis, 2013). Even in cases where interviewer information was provided, in all but one study -Netto et al, 2009 -it was not the author of the study that carried out the interviews.…”

Section: Assessment Of Qualitymentioning

confidence: 99%

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The positive aspects of caregiving in dementia: A critical review of the qualitative literature

2016

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Copyright © and Moral Rights are retained by the author(s) and/ or other copyright owners. This copy may differ from the final published version. A copy can be downloaded for personal non-commercial research or study, without prior permission or charge. This item cannot be reproduced or quoted extensively from without first obtaining permission in writing from the copyright holder(s). The content must not be changed in any way or sold commercially in any format or medium without the formal permission of the copyright holders. CURVE is the Institutional Repository for Coventry University

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Section: Positive Aspects Of Caregiving In Dementiamentioning

confidence: 99%

Section: Assessment Of Qualitymentioning

confidence: 99%

Section: Assessment Of Qualitymentioning

confidence: 99%

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The positive aspects of caregiving in dementia: A critical review of the qualitative literature

2016

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“…The notion of burden thus became synonymous with caregiving in much of the scholarly and popular literature (Callahan, 1988;Montgomery, 1989). As recent studies have found, however, caregiving is fulfilling to many people, who would not give up its rewards to escape its difficulties (Farran, Keeane-Haggerty, Salloway, Kupfere, & Wilken, 1991;Given, King, Collins, & Given, 1988;Klein, 1989). Most of the participants, except a few sacrificed victims, were willing to become family caregivers.…”

Section: Discussionmentioning

confidence: 99%

The Experiences of Family Caregiving in a Chronic Care Unit

Cho

2005

J Korean Acad Nurs

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Purpose. The main purpose of this critical ethnography was to examines the process and discourses through which family caregivers experience while caring for their sick family member in a hospital.Methods. This was achieved by conducting in-depth interviews with 12 family caregivers, and by observing their caring activities and daily lives in natural settings. The study field was a unit for neurologic patients. Data was analyzed using taxonomy, discourse analysis, and proxemics. All research work was iteratively processed from March 2003 to December 2004.Results. Constant comparative analysis of the data yielded the process of becoming a successful family caregiver: encountering the differences and chaos as novice; constructing their world of skilled caregivers; and becoming a hospital family as experienced caregivers. During the process of becoming an experienced hospital family, the discourse of family centered idea guided their caring behaviors and daily lives. Conclusion.The paternalistic family caregivers struggled, cooperated, and harmonized with the patriarchal world of professional health care system. During this process of becoming hospital family, professional nurses must act as cultural brokers between the lay family caring system and the professional caring system.

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“…Research in this field evolved to encompass a broader focus on psychosocial aspects such as wellbeing [35], occasionally in new ways and settings [36]. Studies combining both positive and negative aspects began to appear [37][38][39] and the complex existential dimension of caregiving came into focus through concepts such as meaning [40][41][42][43] and quality of life [36,44,45].…”

Section: Caregiving By Informal Caregiversmentioning

confidence: 99%

“Self-Employed” in Caregivinghood: The Contribution of Swedish Informal Caregivers’ Environmental and Contextual Resistance Resources and Deficits

et al. 2017

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Abstract:Informal caregivers provide the majority of care for older adults residing in their own homes. Caregivinghood, a new evidence-based concept, describes a time of life when relatives provide care at home. These caregivers need knowledge regarding resources to help them resolve the challenges they encounter. The theoretical framework underpinning this study is Antonovsky's salutogenic theory of health. This study had two aims: (1) to examine the salutogenic core concepts Generalized and Specific Resistance Resources and Deficits (GRRs/SRRs and GRDs/SRDs) described by Swedish informal caregivers as originating from the environmental and contextual domain of caregivinghood and (2) to discuss how this new knowledge might contribute to the development of health promotion initiatives. This qualitative and theory driven study used inductive and deductive data analysis. Data were gathered through salutogenically guided face-to-face interviews of 32 Swedish informal caregivers. In addition, the study relied on the salutogenic core concepts Specific and Generalized Resistance Resources and Deficits originating from their environment and context. Being in empowering surroundings reflects the presence of usable SRRs/GRRs, whereas Struggling in impeding surroundings reflects the presence of SRDs/GRDs. The results indicate that health-enhancing support has to be individualized (SRRs/SRDs) and generalized (GRRs/GRDs). This study's salutogenic approach and the methodology enhance the understanding of the mechanisms behind the development of Sense of Coherence. The results contribute both empirically and theoretically to strengthen health promotion research and practice when developing activities and support for caregivers in stressful situations, such as informal caregiving.

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Finding Meaning: An Alternative Paradigm for Alzheimer's Disease Family Caregivers

Cited by 234 publications

References 0 publications

The positive aspects of caregiving in dementia: A critical review of the qualitative literature

The positive aspects of caregiving in dementia: A critical review of the qualitative literature

The Experiences of Family Caregiving in a Chronic Care Unit

“Self-Employed” in Caregivinghood: The Contribution of Swedish Informal Caregivers’ Environmental and Contextual Resistance Resources and Deficits

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