First experience of a hemophilia monitoring platform: florio HAEMO

Abstract

Background florio HAEMO is a new hemophilia treatment monitoring application consisting of a patient smartphone application (app) and a web‐based dashboard for healthcare professionals, providing several novel features, including activity tracking, wearable connectivity, kids and caregiver mode, and real‐time pharmacokinetic factor level estimation. Objectives To assess intuitiveness, ease‐of‐use, and patient preference of florio HAEMO in Central Europe using a cross‐sectional survey. Methods This survey was conducted in six Central European countries between 9 December 2020 and 24 May 2021. The online questionnaire included 17 questions about overall satisfaction, ease‐of‐use, intuitiveness, and patient preference. Adults or children with hemophilia on regular prophylaxis and using the florio HAEMO app for a minimum of 1 week were invited to complete the online questionnaire by their treating physician. Results Sixty‐six participants took part in the survey. The median duration for all respondents using the florio HAEMO app was 3 to 4 weeks. Overall, 89.4% of users reported being very satisfied or rather satisfied after using florio HAEMO. Of the 23 respondents who had switched from another hemophilia app, 87.0% indicated that they strongly preferred or preferred using florio HAEMO. Most florio HAEMO users reported that the app was very easy or rather easy to use (97.0%) and intuitive (94.0%). florio HAEMO had a positive impact on daily living, with 78.8% of users reporting that the app was very important or rather important to them. Conclusions This survey suggests that florio HAEMO is an easy‐to‐use and intuitive app to assist self‐management of home prophylaxis.

florio® HAEMO: A Longitudinal Survey of Patient Preference, Adherence and Wearable Functionality in Central Europe

“…Furthermore, long-term complications such as joint arthropathy still occur in individuals on prophylaxis treatment, representing a significant source of morbidity [ 1 ]. Smartphone hemophilia monitoring applications (apps) have been developed to help people with hemophilia track bleeds, injections and factor supply as well as foreplan their daily physical activities [ 2 – 5 ]. The latest mobile app, florio ® HAEMO (Florio GmbH; https://www.florio.com ), can be used with any factor product and has the option to be paired with a wearable device (wearable) [ 2 ].…”

“…Smartphone hemophilia monitoring applications (apps) have been developed to help people with hemophilia track bleeds, injections and factor supply as well as foreplan their daily physical activities [ 2 – 5 ]. The latest mobile app, florio ® HAEMO (Florio GmbH; https://www.florio.com ), can be used with any factor product and has the option to be paired with a wearable device (wearable) [ 2 ]. florio HAEMO uses the centralized McMaster population pharmacokinetic (PopPK) database based on Web Accessible Population Pharmacokinetics Service-Hemophilia (WAPPs-Hemo) to securely input PopPK-powered real-time factor level estimations [ 2 , 6 ].…”

“…The latest mobile app, florio ® HAEMO (Florio GmbH; https://www.florio.com ), can be used with any factor product and has the option to be paired with a wearable device (wearable) [ 2 ]. florio HAEMO uses the centralized McMaster population pharmacokinetic (PopPK) database based on Web Accessible Population Pharmacokinetics Service-Hemophilia (WAPPs-Hemo) to securely input PopPK-powered real-time factor level estimations [ 2 , 6 ]. Knowledge of PopPK estimations in daily life helps people with hemophilia self-manage their treatment, avoid unexpected bleeding episodes and foreplan their daily activities.…”

“…Previously, we conducted the first user satisfaction survey of the florio HAEMO app in Central Europe [ 2 ]. Users of this hemophilia monitoring app were invited by their treating physician to complete a baseline survey after a median of 3–4 weeks using the app [ 2 ].…”

“…Previously, we conducted the first user satisfaction survey of the florio HAEMO app in Central Europe [ 2 ]. Users of this hemophilia monitoring app were invited by their treating physician to complete a baseline survey after a median of 3–4 weeks using the app [ 2 ]. Initial results from part one of the survey indicated that 89.4% of 66 users were very satisfied or rather satisfied with the florio HAEMO app [ 2 ].…”