Fixing the broken image of care homes, could a ‘care home innovation centre’ be the answer?

Hockley, Jo; Harrison, Jennifer; Watson, Julie; Randall, Marion; Murray, Scott A

doi:10.1093/ageing/afw154

Cited by 11 publications

(9 citation statements)

References 14 publications

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“…Our results suggest that the assessment of risk and how much potential harm, in the form of side‐effects, a person is prepared to accept may also be shaped by fears about inadequate care provision in care homes. Efforts to provide new models of care to support social inclusion of people with dementia and fix the broken image of care homes may alleviate some of this fear in the future and change people's assessment of the harmful consequences of developing dementia. Drug development is a long process.…”

Section: Discussionmentioning

confidence: 99%

What matters to people with memory problems, healthy volunteers and health and social care professionals in the context of developing treatment to prevent Alzheimer's dementia? A qualitative study

Watson

Saunders

Terrera

et al. 2019

Health Expectations

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Background Alzheimer's disease (AD) is recognized as one of the greatest global public health challenges. There is increasing consensus that optimal disease modification using pharmaceuticals may best be achieved earlier in the disease continuum before symptoms occur. However, more needs to be understood about what outcomes are meaningful to potential participants in clinical trials within this preventative paradigm and how people make trade‐offs between risks and benefits. The Electronic Person‐Specific Outcome Measure (ePSOM) programme is developing an app to capture person‐specific outcomes and preferences in clinical trials. Objective As one phase in the ePSOM programme, this study explored what matters when developing new treatments to prevent AD and how trade‐offs are made between risks and benefits, from three perspectives. Design Focus groups were conducted with people living with memory problems (n = 21) and healthy volunteers (n = 10), and telephone interviews with health and social care professionals (n = 10). Differences and overlap between the three groups were explored. Results Outcomes that matter lie in five key domains in relation to what matters in everyday life: Everyday Functioning; Relationships and Social Connections; Enjoying Life; Sense of Identity; and Alleviating Symptoms. Insights were gained into the significance of reducing the risk of developing dementia with drugs and the processes of weighing up risks versus benefits. Discussion and conclusions The key domains identified are being used to inform the next stage of the ePSOM programme which is to develop a survey to be distributed nationally in the UK to explore these issues further.

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Section: Discussionmentioning

confidence: 99%

What matters to people with memory problems, healthy volunteers and health and social care professionals in the context of developing treatment to prevent Alzheimer's dementia? A qualitative study

Watson

Saunders

Terrera

et al. 2019

Health Expectations

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“…Innovation and collaboration are necessary to develop the quality of care in care homes, and teaching/research‐based care homes have been developed in some countries (Barnett, ). For example, the concept of a Care Home Innovation Centre (CHIC) introduced in the UK aims to change the culture and image of care homes (Hockley, Harrison, Watson, Randall, & Murray, ). Such multi‐partnership models linking research, clinical care, education and training are surely needed to ensure high‐quality evidence‐based care in care homes.…”

Section: Discussionmentioning

confidence: 99%

Older people nursing in care homes: An examination of nursing professionals' self‐assessed competence and its predictors

Kiljunen

Partanen

Välimäki

et al. 2019

Int J Older People Nursing

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such as care and nursing homes) have a high prevalence of dependency, multimorbidity, polypharmacy, cognitive impairment and behavioural symptoms resulting in complex care needs (Gordon et al., 2014;Onder et al., 2012). When providing care in care and nursing Abstract Background: The need for older people nursing expertise is increasing, and every effort is required to ensure that personnel taking care of older people are capable of providing high-quality care. Aims:To explore care home nursing professionals' self-rated competence in older people nursing and to identify predictors of this competence. Design: A cross-sectional survey design.Method: Data were collected in August-September 2017 via an electronic questionnaire using the newly developed Nurse Competence in Care Home Scale (NCCHS).Participants (n = 781) were recruited via nurses' associations and social media. They were working in care homes either as licensed practical nurses (n = 680) or as registered nurse and/or in managerial position (n = 101).Findings: Approximately 65% of the respondents had "adequate competence," and 35% had "inadequate competence" in older people nursing based on self-assessed overall competence. Respondents rated their competence highest in "observation, communication, interaction" and lowest in "group guidance and activities" subscale.Age and further training were predictors of licensed practical nurses' competence, and length of work experience predicted registered nurses' competence. Conclusions:Self-assessments revealed the need for competence development especially in relation to holistic support of a person's well-being. It is recommended that care home nurses, managers, educators and curriculum developers all strive to develop care home staff's ability to support residents' well-being holistically. Implications for practice:Nursing personnel should consider all aspects of older people's well-being holistically. In care homes, it is essential to assess nursing staff competence and to provide possibilities for competence development for personnel. K E Y W O R D Scare home, competence, licensed practical nurses, nursing, older people, registered nurses, self-assessment

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“…Few studies examined the role of eHealth, despite the role that such technologies could potentially play in increasing access to palliative care, supporting people cared for at home, facilitating communication and coordination, and delivering training and palliative care education to health and social care professionals, especially in rural or geographically remote areas. Researchers in Scotland recognise the importance of the care home setting for palliative and end of life care, and are calling for the establishment of a care home centre of excellence in teaching and research [ 91 ]. However, there have been relatively few research studies on end-of-life care for people with dementia despite the growing number of people who will die with dementia in the coming years.…”

Section: Discussionmentioning

confidence: 99%

Palliative and end-of-life care research in Scotland 2006–2015: a systematic scoping review

Finucane¹,

Carduff²,

Lugton³

et al. 2018

BMC Palliat Care

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BackgroundThe Scottish Government set out its 5-year vision to improve palliative care in its Strategic Framework for Action 2016–2021. This includes a commitment to strengthening research and evidence based knowledge exchange across Scotland. A comprehensive scoping review of Scottish palliative care research was considered an important first step. The aim of the review was to quantify and map palliative care research in Scotland over the ten-year period preceding the new strategy (2006–15).MethodsA systematic scoping review was undertaken. Palliative care research involving at least one co-author from a Scottish institution was eligible for inclusion. Five databases were searched with relevant MeSH terms and keywords; additional papers authored by members of the Scottish Palliative and End of Life Care Research Forum were added.ResultsIn total, 1919 papers were screened, 496 underwent full text review and 308 were retained in the final set. 73% were descriptive studies and 10% were interventions or feasibility studies. The top three areas of research focus were services and settings; experiences and/or needs; and physical symptoms. 58 papers were concerned with palliative care for people with conditions other than cancer – nearly one fifth of all papers published. Few studies focused on ehealth, health economics, out-of-hours and public health. Nearly half of all papers described unfunded research or did not acknowledge a funder (46%).ConclusionsThere was a steady increase in Scottish palliative care research during the decade under review. Research output was strong compared with that reported in an earlier Scottish review (1990–2005) and a similar review of Irish palliative care research (2002–2012). A large amount of descriptive evidence exists on living and dying with chronic progressive illness in Scotland; intervention studies now need to be prioritised. Areas highlighted for future research include palliative interventions for people with non-malignant illness and multi-morbidity; physical and psychological symptom assessment and management; interventions to support carers; and bereavement support. Knowledge exchange activities are required to disseminate research findings to research users and a follow-up review to examine future research progress is recommended.Electronic supplementary materialThe online version of this article (10.1186/s12904-017-0266-0) contains supplementary material, which is available to authorized users.

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Fixing the broken image of care homes, could a ‘care home innovation centre’ be the answer?

Cited by 11 publications

References 14 publications

What matters to people with memory problems, healthy volunteers and health and social care professionals in the context of developing treatment to prevent Alzheimer's dementia? A qualitative study

What matters to people with memory problems, healthy volunteers and health and social care professionals in the context of developing treatment to prevent Alzheimer's dementia? A qualitative study

Older people nursing in care homes: An examination of nursing professionals' self‐assessed competence and its predictors

Palliative and end-of-life care research in Scotland 2006–2015: a systematic scoping review

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