Fluctuating awareness of treatment goals among patients and their caregivers: a longitudinal study of a dynamic process

Burns, Catherine; Broom, Dorothy; Smith, Wayne; Dear, Keith; Craft, Paul

doi:10.1007/s00520-006-0116-8

Cited by 45 publications

(50 citation statements)

References 31 publications

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“…Just as with patients' expectation of disease course, a limited number of studies have investigated perceptions of treatment intent in cancer patients with varying results. Burns et al [16], for example, found that two-thirds of the incurable cancer patients assumed that the goal of their treatment was curative. However, a different study that was conducted among 163 patients with advanced cancer who were receiving palliative therapies revealed that only 30.4 % of patients believed that the aim of their treatment was curative [17].…”

Section: Introductionmentioning

confidence: 98%

Patients’ understanding of treatment goals and disease course and their relationship with optimism, hope, and quality of life: a preliminary study among advanced breast cancer outpatients before receiving palliative treatment

Soylu

Babacan

Sever

et al. 2016

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A large proportion of patients diagnosed with advanced breast cancer believed that their treatment was "curative", and they would improve within a year. Findings of our study suggest that patients with inaccurate perception of treatment intent and unrealistic expectation of prognosis have higher hope and optimism scores than those who do not, but there were no significant differences in terms of global health status.

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Section: Introductionmentioning

confidence: 98%

Patients’ understanding of treatment goals and disease course and their relationship with optimism, hope, and quality of life: a preliminary study among advanced breast cancer outpatients before receiving palliative treatment

Soylu

Babacan

Sever

et al. 2016

Support Care Cancer

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show abstract

“…11,12 There are also high rates of discordance between patients and their families, with one Australian survey finding in over a third of those with incurable cancer only one of the patient-carer pair understood that their treatment was not intended to cure. 13 Patient-physician disparity regarding understanding of prognosis may be due to a range of factors (Table 1).…”

Section: Introductionmentioning

confidence: 99%

Deciding what information is necessary: do patients with advanced cancer want to know all the details?

Ward¹,

Russell²

2011

CMAR

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Abstract:Communicating effectively with patients who have advanced cancer is one of the greatest challenges facing physicians today. Whilst guiding the patient through complex diagnostic and staging techniques, treatment regimens and trials, the physician must translate often imprecise or conflicting data into meaningful personalized information that empowers the patient to make decisions about their life and body. This requires understanding, compassion, patience, and skill. This narrative literature review explores current communication practices, information preferences of oncology patients and their families, and communication strategies that may assist in these delicate interactions. Overwhelmingly, the literature suggests that whilst the majority of patients with advanced cancer do want to know their diagnosis and receive detailed prognostic information, this varies not only between individuals but also for a given individual over time. Barriers to the delivery and understanding of information exist on both sides of the physician-patient relationship, and family dynamics are also influential. Despite identifiable trends, the information preferences of a particular patient cannot be reliably predicted by demographic, cultural, or cancer-specific factors. Therefore, our primary recommendation is that the physician regularly asks the patient what information they would like to know, who else should be given the information and be involved in decision making, and how that information should be presented.

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“…Finally, goal setting can assist healthcare professionals in seeing the 'whole' patient [33] very much in sympathy with the philosophy underpinning palliative care.…”

Section: Discussionmentioning

confidence: 99%

“We all talk about it as though we’re thinking about the same thing.” Healthcare professionals’ goals in the management of pain due to advanced cancer: a qualitative study

Bhatia

Gibbins²,

Forbes³

et al. 2014

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Fluctuating awareness of treatment goals among patients and their caregivers: a longitudinal study of a dynamic process

Cited by 45 publications

References 31 publications

Patients’ understanding of treatment goals and disease course and their relationship with optimism, hope, and quality of life: a preliminary study among advanced breast cancer outpatients before receiving palliative treatment

Patients’ understanding of treatment goals and disease course and their relationship with optimism, hope, and quality of life: a preliminary study among advanced breast cancer outpatients before receiving palliative treatment

Deciding what information is necessary: do patients with advanced cancer want to know all the details?

“We all talk about it as though we’re thinking about the same thing.” Healthcare professionals’ goals in the management of pain due to advanced cancer: a qualitative study

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