Flying the nest: are we doing enough to achieve successful transition in young people with congenital heart disease?

Reekie, Jennifer

doi:10.1136/heartjnl-2019-315727

Cited by 5 publications

(2 citation statements)

References 15 publications

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“…The reasons for this vulnerability are several and include insurability issues, asymptomatic status of many patients, patients’ false impression that their CHD is “cured,” lack of available adult providers with CHD expertise, and perceived lack of transition guidance. 19 Rates of successful transition vary significantly from center to center, 20 and some groups have reported formal transition plans that have improved rates of a successful transition to ACHD care. 21,22 However, despite increasing awareness of the need for formal transition programs and available recommendations on best practices, 16,23 implementation is lacking.…”

Section: Commentmentioning

confidence: 99%

Disparities in Loss to Follow-Up Among Adults With Congenital Heart Disease in North Carolina

Serfas

Spates

D’Ottavio

et al. 2022

World J Pediatr Congenit Heart Surg

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Background The AHA/ACC Adult Congenital Heart Disease guidelines recommend that most adults with congenital heart disease (CHD) follow-up with CHD cardiologists every 1 to 2 years because longer gaps in care are associated with adverse outcomes. This study aimed to determine the proportion of patients in North Carolina who did not have recommended follow-up and to explore predictors of loss to follow-up. Methods Patients ages ≥18 years with a healthcare encounter from 2008 to 2013 in a statewide North Carolina database with an ICD-9 code for CHD were assessed. The proportion with cardiology follow-up within 24 months following index encounter was assessed with Kaplan-Meier estimates. Cox regression was utilized to identify demographic factors associated with differences in follow-up. Results 2822 patients were identified. Median age was 35 years; 55% were female. 70% were white, 22% black, and 3% Hispanic; 36% had severe CHD. The proportion with 2-year cardiology follow-up was 61%. Those with severe CHD were more likely to have timely follow-up than those with less severe CHD (72% vs 55%, P < .01). Black patients had a lower likelihood of follow-up than white patients (56% vs 64%, P = .01). Multivariable Cox regression identified younger age, non-severe CHD, and non-white race as risk factors for a lower likelihood of follow-up by 2 years. Conclusion 39% of adults with CHD in North Carolina are not meeting AHA/ACC recommendations for follow-up. Younger and minority patients and those with non-severe CHD were particularly vulnerable to inadequate follow-up; targeted efforts to retain these patients in care may be helpful.

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Section: Commentmentioning

confidence: 99%

Disparities in Loss to Follow-Up Among Adults With Congenital Heart Disease in North Carolina

Serfas

Spates

D’Ottavio

et al. 2022

World J Pediatr Congenit Heart Surg

View full text Add to dashboard Cite

show abstract

“…The Cardiology in Focus article8 addresses the difficulties in the transition of adolescent with congenital heart disease from the pediatric to adult cardiology clinic and the importance of a structured transition program for optimal patient outcomes.…”

mentioning

confidence: 99%

Heartbeat: reducing inequities in cardiovascular disease mortality

Otto

2019

Heart

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Communication in Congenital Heart Disease: A Relevant Application for Engineering Models?

Biglino

Ordóñez

Shearn

et al. 2022

Modelling Congenital Heart Disease

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Flying the nest: are we doing enough to achieve successful transition in young people with congenital heart disease?

Cited by 5 publications

References 15 publications

Disparities in Loss to Follow-Up Among Adults With Congenital Heart Disease in North Carolina

Disparities in Loss to Follow-Up Among Adults With Congenital Heart Disease in North Carolina

Heartbeat: reducing inequities in cardiovascular disease mortality

Communication in Congenital Heart Disease: A Relevant Application for Engineering Models?

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