Focus group parental opinions regarding treatment with topical corticosteroids on children with atopic dermatitis

Veenje, Sietske; Osinga, Hilda; Antonescu, Ioana; Bos, Bernies; Vries, Tjalling W. de

doi:10.1016/j.aller.2018.05.007

Cited by 7 publications

(39 citation statements)

References 15 publications

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“…In line with previous studies, the parents in our study had negative perceptions towards TCS use [13,15]. The total TOPICOP score in our study was 42%, similar to the score of 44% in the study of Bos et al [13].…”

Section: Discussionsupporting

confidence: 91%

“…However, there is no officially validated Dutch version of the questionnaire. However, we only used it for comparison in groups and used the questionnaire provide by Bos et al The mean score we found in our study was similar to the scores presented by Bos et al [15].…”

Section: Discussionsupporting

confidence: 84%

“…Furthermore, attitudes towards medication (corticophobia) can only be measured using self-report. We used the TOPICOP questionnaire which has shown successfully before in different settings [13][14][15]28]. However, there is no officially validated Dutch version of the questionnaire.…”

Section: Discussionmentioning

confidence: 99%

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Reducing corticosteroid phobia in pharmacy staff and parents of children with atopic dermatitis

et al. 2021

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Background Besides physicians, pharmacy staff has an important role to inform patients on appropriate medication use. However, they might also experience corticophobia themselves, affecting patient counseling and subsequently patient’s disease management. Objective Implementation of an intervention for pharmacy staff to improve knowledge and stimulate positive perceptions towards TCS use, in order to reduce corticophobia in pharmacy staff and parents of young AD patients. Setting Nine community pharmacies in the Netherlands. Method We developed an intervention consisting of education of pharmacy staff followed by counseling of parents. The intervention was implemented in pharmacies and intervention effectiveness was studied using a pre-post design with an intervention period of 3 months. At baseline and follow-up (3 months), pharmacy staff and parents completed a questionnaire. Main outcome measure Corticophobia, both beliefs and worries, measured with the TOPICOP questionnaire. Higher scores indicate a more negative attitude. Result Baseline and follow-up data were available for 19 pharmacy staff members and 48 parents who attended a counseling session in the pharmacy. In both groups there was as decrease in negative beliefs and worries towards TCS (p < 0.05). Mean total TOPICOP scores decreased from 42 to 35% and from 33 to 25% for parents and pharmacy staff respectively. Conclusion Our results show the prevalence of corticophobia among parents. Education of pharmacy staff and targeted patient counseling seems to be effective in reducing corticophobia.

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Section: Discussionsupporting

confidence: 91%

Section: Discussionsupporting

confidence: 84%

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Reducing corticosteroid phobia in pharmacy staff and parents of children with atopic dermatitis

et al. 2021

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“…Studies also highlighted the negative effect of dealing with others’ perceptions and distress experienced in response to intrusive comments or reactions by strangers to visible eczema, such as fear of contagion. A sense of blame, guilt and worry were common, especially parental feelings of inadequacy in their ability to prevent the eczema, envy of other parents with perceived ‘normal’ children and fears and concerns about the impact on their child’s self‐esteem and social interactions 16–18,21,23,26–28,33,36,38,41,42,44,45,47–51 …”

Section: Resultsmentioning

confidence: 99%

“…Our synthesis highlighted participants’ desire to have more up‐to‐date, personalized information about treatment, identifying flare‐ups, and other aspects of living well with eczema (e.g. strategies to reduce itch) as well as practical advice around applying topical treatments, including demonstrations from health professionals 16,18,21,24–27,29–31,33–35,39,42,43,50 …”

Section: Resultsmentioning

confidence: 99%

Views and experiences of managing eczema: systematic review and thematic synthesis of qualitative studies*

et al. 2020

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Summary Background The number of qualitative studies on eczema has increased rapidly in recent years. Systematically reviewing these can provide greater understandings of people’s perceptions of eczema and eczema treatments. Objectives We sought to systematically review and thematically synthesize qualitative studies exploring views and experiences of people with eczema and parents/carers of children with eczema. Methods We searched MEDLINE, EMBASE, PsycINFO and CINAHL from the earliest date available to February 2019. We selected papers focusing on views and experiences of eczema and eczema treatments, and barriers/facilitators to eczema self‐management. We excluded papers focusing on health service provision models or health professionals’ views. Results We synthesized 39 papers (reporting 32 studies) from 13 countries. We developed four analytical themes: (1) Eczema not viewed as a long‐term condition; (2) Significant psychosocial impact not acknowledged by others; (3) Hesitancy (patient/carer uncertainty) about eczema treatments; and (4) Insufficient information and advice. Our findings suggest that people with eczema and their carers experience frustration at having to manage a condition that is often seen by others as mundane but has significant psychosocial impact and is difficult to manage due to concerns about, and burden of, treatment. This frustration can be exacerbated by experiences of conflicting and/or insufficient information and advice from health professionals, family and others. Conclusions Effective self‐management of eczema could be supported by addressing beliefs and concerns about treatments; seeking positive ways to promote a ‘control not cure’ message; acknowledging psychosocial impacts of eczema and treatment burden; and providing clear consistent advice or signposting towards reliable information.

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Values and Preferences of Patients and Caregivers Regarding Treatment of Atopic Dermatitis (Eczema)

et al. 2023

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ImportancePatient values and preferences can inform atopic dermatitis (AD) care. Systematic summaries of evidence addressing patient values and preferences have not previously been available.ObjectiveTo inform American Academy of Allergy, Asthma &amp; Immunology (AAAAI)/American College of Allergy, Asthma and Immunology (ACAAI) Joint Task Force on Practice Parameters AD guideline development, patient and caregiver values and preferences in the management of AD were systematically synthesized.Evidence ReviewPaired reviewers independently screened MEDLINE, Embase, PsycINFO, and CINAHL databases from inception until March 20, 2022, for studies of patients with AD or their caregivers, eliciting values and preferences about treatment, rated risk of bias, and extracted data. Thematic and inductive content analysis to qualitatively synthesize the findings was used. Patients, caregivers, and clinical experts provided triangulation. The GRADE-CERQual (Grading of Recommendations Assessment, Development and Evaluation–Confidence in the Evidence from Reviews of Qualitative Research) informed rating of the quality of evidence.FindingsA total of 7780 studies were identified, of which 62 proved eligible (n = 19 442; median age across studies [range], 15 years [3-44]; 59% female participants). High certainty evidence showed that patients and caregivers preferred to start with nonmedical treatments and to step up therapy with increasing AD severity. Moderate certainty evidence showed that adverse effects from treatment were a substantial concern. Low certainty evidence showed that patients and caregivers preferred odorless treatments that are not visible and have a minimal effect on daily life. Patients valued treatments capable of relieving itching and burning skin and preferred to apply topical corticosteroids sparingly. Patients valued a strong patient-clinician relationship. Some studies presented varied perspectives and 18 were at high risk for industry sponsorship bias.Conclusions and RelevanceIn the first systematic review to address patient values and preferences in management of AD to our knowledge, 6 key themes that may inform optimal clinical care, practice guidelines, and future research have been identified.

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Focus group parental opinions regarding treatment with topical corticosteroids on children with atopic dermatitis

Cited by 7 publications

References 15 publications

Reducing corticosteroid phobia in pharmacy staff and parents of children with atopic dermatitis

Reducing corticosteroid phobia in pharmacy staff and parents of children with atopic dermatitis

Views and experiences of managing eczema: systematic review and thematic synthesis of qualitative studies*

Values and Preferences of Patients and Caregivers Regarding Treatment of Atopic Dermatitis (Eczema)

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