Focus on Infertility—Women’s Experiences of Using Social Media: A Qualitative Study

Abstract

Background: Social media have slotted firmly into the mechanics of daily life, affecting people's everyday interactions, and working life. Access to the Internet has changed the way people search for information, manage health and illness, and how they relate to each other. Persons affected by infertility are likely to search the Internet to obtain infertility-related information and social support. However, evidence is needed regarding the way in which the target group uses the Internet in infertility-related issues. The aim of the study is to describe infertile women's experiences of using social media focusing on infertility. Methods: This study is based on qualitative semi-structured telephone interviews with seven women. The interviews were conducted between May 2020 and November 2020 and were audio recorded and transcribed verbatim. Collected data were analyzed using thematic analysis. Results: Two themes were constructed from the data: Invaluable venue and Opportunity of choice. The women used social media focusing on infertility to support each other, to find infertility-related information and for fellowship and solidarity. Usage of social media forums was a part of everyday life and different forums were used, depending upon where the women were in the treatment process. Further, decisions about choice of group were based on which age groups were targeted and geographical location. Conclusion: Infertility is one of the most stressful events in life and is associated with a rollercoaster of emotions. The use of social media focusing on infertility was experienced as positive, providing valuable information, support, eliminating loneliness and being a How to cite this paper: Sormunen, T.,

Determination of Information Search Behaviors and E-Health Literacy Levels of Primary Infertile Women: Descriptive Research

“…32 Sormunen ve ark.nın yaptıkları nitel çalışmada, infertil kadınlar sosyal medyayı kimliklerinin gizli olması, tedaviye ilişkin bilgi sağlaması, benzer deneyimleri yaşayanlar ile bilgi paylaşımı, kendilerine ait özel bir alan oldukları için kullanmayı tercih ettiklerini ifade etmişlerdir. 27 Sormunen ve ark.nın yaptıkları başka bir çalışmada, sosyal medyanın infertilite sürecinde olumlu etkileri vurgulansa da bazı katılımcılar, diğer infertil bireylerin düşük deneyimlemesi ve paylaşmasından olumsuz etkilendiklerini ifade etmişlerdir. 33 Araştırmamız bulguları ve literatür incelendiğinde, internette ya da sosyal medyada infertiliteye ilişkin paylaşımların infertil bireyler açısından oldukça değerli olduğu görülmektedir.…”

“…4,24,[27][28][29] Bu bağlamda yapılan literatür incelemesinde, infertil bireylerin internet ortamındaki bilgi arama davranışları, bilgi kaynakları ve e-sağlık okuryazarlık düzeylerini birlikte inceleyen çalışmaya ulaşılamamıştır. Bu araştırmada, infertil kadınların bilgi arama kaynakları, bilgi arama davranışları ve e-sağlık okuryazarlık düzeylerinin belirlenmesi amaçlanmıştır.…”

Social media in the infertile community—using a text analysis tool to identify the topics of discussion on the multitude of infertility blogs

“…18 Women are more active in social media and infertility is one of the most frequently covered health-related topics. 19 Online social media forums can provide information and support that may not be possible to obtain in the interaction with health care personnel 20,21 and the forums may be particularly important to those who lack emotional support elsewhere. 22 Findings of one previous study about communication among infertile women show that some women have difficulties to discuss infertility-related issues with their spouses.…”