For Victims of Fatal Child Abuse, Who Has the Right to Consent to Organ Donation?

Deutsch, Stephanie Anne; Teeple, Erin; Dickerman, Mindy; Macaulay, J. W.; Collins, Gary S.

doi:10.1542/peds.2020-0662

Cited by 3 publications

(3 citation statements)

References 22 publications

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“…It is recommended that all intravenous lines and tubing remain in place on the body, and communication regarding organ donation should be facilitated by the organ procurement organization with the ME, following consent for donation by the family; an SUID investigation does not preclude organ donation. 13 …”

Section: Resultsmentioning

confidence: 99%

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Management of Sudden Unexpected Infant Deaths in the Emergency Department:

Deutsch¹,

Macaulay²,

Smith³

et al. 2022

Delaware Journal of Public Health

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Objective To establish a standardized, trauma informed and family-centered emergency department (ED) sudden and unexpected infant death (SUID) management protocol at Nemours Children’s Health, Delaware for medical professionals and multidisciplinary team (MDT) collaborators, informed by national clinical practice guidance, and respective of both family and investigative needs. SUID are emotionally distressing for involved family members, often precipitated by profound grief and confusion as the family interacts with many mandated public agencies during the course of a medicolegal death investigation. Although SUID necessitates consideration of child abuse and neglect as a contributory factor, and accurate determination of death cause may have critical implications for other family members and public health, prioritizing family needs in a trauma informed manner is paramount. Collaboration between MDT partners to provide optimal care to families following SUID involves transparent family communication, attending to medical and mental health needs of surviving family (especially siblings), and respecting medicolegal investigative constraints. Many institutions lack standardized approaches to SUID cases, which may precipitate increased family distress and delay initiation of necessary medicolegal death procedures. Methods An MDT expert panel consisting of medical, legal, law enforcement, and child welfare professionals was convened at Nemours Children’s Health, Delaware in 2018 over a 3-month period to analyze and implement an enhanced, family-centered, trauma informed hospital protocol. Results Using exploratory inquiry and dialogue to elicit important protocol goals, a family-centered protocol with revised, coordinated roles for MDT members was developed with enhanced focus on communication, family-, and team-oriented care. Conclusions Implementation of a family-centered, ED-based protocol standardizing the approach to SUID effectively supports medicolegal death investigative procedures while prioritizing trauma informed, supportive, sensitive ED care for grieving families. Policy implications Health care institutions serving children and their families should develop and implement trauma informed, family-centered protocols to ensure sensitivity during medicolegal death investigations.

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Section: Resultsmentioning

confidence: 99%

“…Finally, also explored was confusion around consent for various medical and postmortem interventions (like radiologic imaging or lab testing) and organ donation, with strong recommendation for continued collaborative decision-making across sectors in partnership with involved family members. 13 …”

Section: Discussionmentioning

confidence: 99%

Management of Sudden Unexpected Infant Deaths in the Emergency Department:

Deutsch¹,

Macaulay²,

Smith³

et al. 2022

Delaware Journal of Public Health

Self Cite

View full text Add to dashboard Cite

show abstract

“…As cadaveric donors can come from various case backgrounds, including homicides, suicides, road traffic accidents, or even medically puzzling scenarios; forensic outcomes are pivotal in constructing a complete conclusion that is central in delivering justice, answers, and closures to any case relevant parties. 6 Having a cadaveric donor who had pledged to donate organs is not simply an excuse to refute forensic evaluations and outcomes.…”

Section: Introductionmentioning

confidence: 99%

Impacts of Forensic Outcomes on Cadaveric Organ Donations in Malaysia

Jalil

Ahmad

Isa

et al. 2022

IJETV

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In forensic medicine, there can be times when the dilemma of having to choose between harvesting organs from cadaveric donors versus the need to complete the forensic analysis to savor the equally important forensic outcomes becomes tricky as well cul de sac of one on another. The deliberation of the seemingly practical junction is of academic value and ethical considerations that need to be dissected upon. As such, the impacts of forensic outcomes on cadaveric organ donations in Malaysia through the lenses of (i) academic benefits of forensic outcomes, (ii) ethically justified considerations of the dilemma, and (iii) available data helpful in navigating through the two competing needs.

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Pediatric Organ Donation and Transplantation: Across the Care Continuum

et al. 2023

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This policy statement aims to enhance comfort and increase knowledge of pediatric organ donation and transplantation to the general pediatric community, specifically focusing on the pediatric health care professional and the medical home. The pediatric health care professional will care for neonates, infants, children, and adolescents who may become donors or transplant recipients and, thus, is a crucial member of the pediatric patient’s care team. Understanding donation, transplantation, and follow-up care are important to primary care engagement. Furthermore, the pediatric health care professional may play a role in shaping public policies related to the process of organ donation and access to organ transplantation.

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For Victims of Fatal Child Abuse, Who Has the Right to Consent to Organ Donation?

Cited by 3 publications

References 22 publications

Management of Sudden Unexpected Infant Deaths in the Emergency Department:

Management of Sudden Unexpected Infant Deaths in the Emergency Department:

Impacts of Forensic Outcomes on Cadaveric Organ Donations in Malaysia

Pediatric Organ Donation and Transplantation: Across the Care Continuum

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