Formal and informal support: the great divide

Lyons, Karen S.; Zarit, Steven H.

doi:10.1002/(sici)1099-1166(199903)14:3<183::aid-gps969>3.0.co;2-j

Cited by 79 publications

(35 citation statements)

References 24 publications

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“…We found that people claimed that they themselves or (together with) significant others played a key role in organising care, and not the care professional. This is in line with the conclusion from Lyons and Zarit (1999), who state that regardless of the degree of the availability and eligibility of formal services, the informal caregiver -if present -stays generally responsible for seeking out such services, not the professional. When reflecting on perceived control in relation to the informal care, our study shows that providing (instrumental, emotional) support or care is a pathway through which these informal helpers can positively contribute to an overall sense of control.…”

Section: Discussionsupporting

confidence: 84%

Perceived control in health care: A conceptual model based on experiences of frail older adults

Claassens

Widdershoven

Rhijn

et al. 2014

Journal of Aging Studies

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Frail older adults are increasingly encouraged to be in control of their health care, in Western societies. However, little is known about how they themselves perceive control in health care. Therefore, this study aims to investigate the concept of health care-related perceived control from the viewpoint of frail older adults. A qualitative interview study was conducted following a Grounded Theory approach. Thirty-two Dutch frail older adults, aged 65 and over, participated in 20 in-depth interviews (n = 20) and three focus group discussions (n = 12). Data were analysed according to techniques of coding and constant comparison. From this analysis constituting factors of perceived control emerged, providing elements of a conceptual model. Perceived control reflects the feeling or belief that health care is under control, which is constituted by five, either internal or external, factors: (I) self-confidence in organising professional and/or informal care, (II) self-confidence in health management in the home setting, (III) perceived support from people in the social network, (IV) perceived support from health care professionals and organisations, and (V) perceived support from (health care) infrastructure and services. Therefore, the concept does not only consist of people's own perceived efforts, but also includes the influence of external sources. Our conceptual model points out what external factors should be taken into consideration by health care professionals and policy makers when enhancing older people's perceived control. Moreover, it can serve as the basis for the development of a measurement instrument, to enable future quantitative research on health care-related perceived control among older adults.

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Section: Discussionsupporting

confidence: 84%

Perceived control in health care: A conceptual model based on experiences of frail older adults

Claassens

Widdershoven

Rhijn

et al. 2014

Journal of Aging Studies

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“…The behavioural model proposed by Andersen and colleagues (Aday and Andersen 1974;Andersen 1995Andersen , 2008Andersen and Newman 1973) has become the dominant model in this research field (Calsyn and Winter 2000;Kadushin 2004;Lyons and Zarit 1999 (Larsson 2004;Geerts 2010;Kadushin 2004). The Andersen model has also proved useful for analysing the predictors of informal care.…”

Section: Individual-level Determinantsmentioning

confidence: 99%

Transitions in formal and informal care utilisation amongst older Europeans: the impact of national contexts

Geerts

Bosch

2011

Eur J Ageing

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The objective of this study was to explore how long-term care systems, and in particular the incorporation of needs-based entitlements to care services or benefits, influence formal and informal care utilisation dynamics. We used the Survey of Health, Ageing and Retirement in Europe (SHARE) wave 1 and 2 data, restricting the sample to persons 65? from 9 European countries (N = 6,293). The effects of changes in health and household composition on formal and informal care transitions were estimated using logistic regression, allowing these effects to vary across countries. The results indicated that, in all countries, formal and informal care were more often complements than substitutes. The likelihood of becoming a formal or informal care user varied significantly between countries. In the Scandinavian countries and in several continental European countries with needs-based entitlements, the transition to formal care was strongly related to informal support being or becoming unavailable. We found little evidence of country differences in the effect of health variables on the transition to formal care. The analysis suggested that, whilst rates of formal care utilisation continue to differ considerably between European countries, formal care allocation practices are not very dissimilar across Northern and continental European welfare states, as we found evidence for all countries of targeting of older persons living alone and of the most care-dependent older people.

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“…Assuming the 'redistributive paradox' thesis (Korpi & Palme, 1998), one may expect that universal provision of home help services benefit the poorest elderly more than means-tested provision. However, expectations about the effects of welfare regime on adult children giving care to their parents range between two opposite theses: the crowding out and the crowding in effect (Lyons et al, 1999;Daatland et al, 2003). The crowding out thesis highlights the substitution effect of care services, predicting a reduction in adult children's care giving if welfare states increase the provision of public services.…”

Section: The Effects Of Welfare Regimes On Intergenerational Solidaritymentioning

confidence: 99%

Personal and Household Caregiving from Adult Children to Parents and Social Stratification

Urdiola¹,

Billingsley²

2008

Families, Ageing and Social Policy

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Using SHARE database the paper explores the factors conditioning personal care giving from adult children to their parents. Frequency and intensity of personal care is contrasted with the reciprocal expectations that children have about wealth inheritance from their parents and with the opportunity costs of helping, as well as with the capacity of parents of getting help from other sources of personal care. The results may help to understand how inequalities in accessing to formal services relate with intergenerational solidarity.

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Formal and informal support: the great divide

Cited by 79 publications

References 24 publications

Perceived control in health care: A conceptual model based on experiences of frail older adults

Perceived control in health care: A conceptual model based on experiences of frail older adults

Transitions in formal and informal care utilisation amongst older Europeans: the impact of national contexts

Personal and Household Caregiving from Adult Children to Parents and Social Stratification

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