Four-year behavioral outcomes of an intervention for parents living with HIV and their adolescent children

Rotheram‐Borus, Mary Jane; Lee, Martha; Leonard, Noelle R.; Lin, Ying Ying; Franzke, Laura; Turner, Elizabeth; Lightfoot, Marguerita; Gwadz, Marya

doi:10.1097/00002030-200305230-00014

Cited by 76 publications

(70 citation statements)

References 14 publications

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“…In counseling for parents with AIDS/HIV and their adolescent children, 103,97 although both groups profited in various domains, positive effects seemed to last for the first two years, primarily for the program's duration. At six years 104 there were still positive effects in the intervention group, although only evident in secondary outcomes.…”

Section: Related Evaluation Studiesmentioning

confidence: 99%

Minor Children of Palliative Patients: A Systematic Review of Psychosocial Family Interventions

Kühne

Krattenmacher²,

Beierlein³

et al. 2012

Journal of Palliative Medicine

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Although the whole family is affected by a parent's palliative disease, palliative care research does not yet routinely consider patients' minor children. Children's and adolescents' psychosocial functioning may be impaired during prolonged parental disease with poor prognosis. Therefore, more and more health care providers are establishing clinical initiatives for families of palliative patients with minor children. However, the number of these family interventions, as well as their theoretical and empirical backgrounds and evidence base, has yet to be determined. The purpose of this study was to systematically review structured and published interventions for this target group, as well as empirical studies on these interventions. The evidence base and impact of interventions on families were considered. Literature published between 1980 and present focusing on psychosocial family-, child- or parent-centered interventions during palliative care was retrieved from PsycINFO®, Embase, MEDLINE®, CINAHL®, and PSYNDEX databases. Five interventions met the inclusion criteria. Programs focused on different populations, had diverse empirical and theoretical backgrounds and features, and were evaluated by studies of varying methodological quality. This systematic review illustrates the lack of well designed and elaborated intervention concepts and evaluation studies in this field, highlighting the necessity of conceptual and methodological rigor to inform clinical practice on a sustainable basis in the future.

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Section: Related Evaluation Studiesmentioning

confidence: 99%

Minor Children of Palliative Patients: A Systematic Review of Psychosocial Family Interventions

Kühne

Krattenmacher²,

Beierlein³

et al. 2012

Journal of Palliative Medicine

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“…There were significant benefits for the families over 4 years. [15][16][17] Parents decreased their emotional distress and problem behaviors over 2 years, and they were also less likely to relapse into substance abuse or to be drug dependent over 4 years. Their adolescent children reported less emotional distress and fewer problem behaviors over 2 years.…”

mentioning

confidence: 99%

Six-Year Intervention Outcomes for Adolescent Children of Parents With the Human Immunodeficiency Virus

Rotheram‐Borus¹,

Lee²,

Lin³

et al. 2004

Arch Pediatr Adolesc Med

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Hypothesis: Having a parent with the human immunodeficiency virus has a significant negative impact on an adolescent child's adjustment.Objective: To assess the adjustment of adolescent children to having a parent with the human immunodeficiency virus over 6 years, following the delivery of a coping skills intervention.Design: A randomized controlled trial with repeated evaluations that was analyzed with an intention-to-treat analysis. A skill-based intervention was delivered in 3 modules over 24 sessions, with the third module being delivered only if parents died. Setting and Patients:A representative sample of parents with the human immunodeficiency virus (n=307) and their adolescent children (n=423) was recruited from the Division of AIDS Services in New York City; 51.5% (n=158) of the parents died.Main Outcome Measures: Employment and school enrollment, receiving public welfare support, early parenthood, mental health symptoms, and the quality of romantic relationships.Results: Over 6 years, significantly more adolescents in the intervention condition than the control condition were employed or in school (82.58% vs 68.94%), were less likely to receive public welfare payments (25.66% vs 36.65%), were less likely to have psychosomatic symptoms (mean, 0.24 vs 0.31), were more likely to report better problem-solving and conflict resolution skills in their romantic relationships (mean score, 4.38 vs 4.20), expected to have a partner with a good job (mean, 4.57 vs 4.19), and expected to be married when parenting (mean, 3.05 vs 2.40). With marginal significance, the percentage of parents in the intervention condition (34.6%) was less than in the control condition (44.1%). Conclusion:Physicians must consider the psychosocial consequences of illness-related challenges on children and provide interventions.

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“…Some authors calculated the subscales into two types of coping as ''problem-focussed coping'' and ''emotional-focussed coping''. The other coping measurement tools identified in studies through this review were ''Dealing with Illness Inventory'' (Comulada, Swendeman, Rotheram-Borus, Mattes, & Weiss, 2003;, ''Coping Self-efficacy'' (Chesney, Chambers, Taylor, Johnson, & Folkman, 2003;, ''Coping with Illness Questionnaire'' (Rotheram-Borus, Lee, Gwadz, & Draimin, 2001;Rotheram-Borus et al, 2003), ''Jalowiec Coping Scale (JCS)'' (Inouye, Flannelly, & Flannelly, 2001) ''Dealing with Illness Scale (DIS)'' (McCain, Zeller, Cella, Urbanski, & Novak, 1996;McCain et al, 2008), ''the Dealing with Illness Coping Inventory'' (Targ et al, 1994), ''Sense of Coherence questionnaire'' (Weber et al, 1999) and ''Information-seeking coping'' (Kalichman et al, 2006).…”

Section: Coping Measurement Toolsmentioning

confidence: 99%

What is the evidence for effectiveness of interventions to enhance coping among people living with HIV disease? A systematic review

Harding

Liu

Catalán

et al. 2011

Psychology, Health & Medicine

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As new treatments enhance mortality, and infection rates continue to grow in many communities, the concept of "living well" with human immunodeficiency virus (HIV) infection is essential. The concept of coping has been well-articulated in the HIV literature and the public health argument for enhanced coping is crucial to reduce the burden of disease and health service use. This systematic review aimed to systematically identify and appraise the evidence for effectiveness in HIV coping interventions. A detailed search strategy was implemented and the retained papers entered into common tables for comparative analysis. Interventions were organised into models and data extracted on population, intervention description, tools and outcomes. Following review of all search returns against the included/excluded criteria of the search strategy, 28 peer review papers were retained. Models were psychological (n = 21), drug therapy (n = 3), spiritual (n = 1), diet and exercise (n = 1), mixed models (n = 1) and information management (n = 1). Sixteen of the 28 controlled studies found a significant intervention effect, and cognitive behaviour and stress management interventions offer particular effectiveness. Despite a lack of common outcome tolls, there are useful data that demonstrate effectiveness. Further studies must address outcomes for women and children.

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Four-year behavioral outcomes of an intervention for parents living with HIV and their adolescent children

Abstract: Ongoing support and skills are needed to maintain intervention effects over longer periods.

Cited by 76 publications

References 14 publications

Minor Children of Palliative Patients: A Systematic Review of Psychosocial Family Interventions

Minor Children of Palliative Patients: A Systematic Review of Psychosocial Family Interventions

Six-Year Intervention Outcomes for Adolescent Children of Parents With the Human Immunodeficiency Virus

What is the evidence for effectiveness of interventions to enhance coping among people living with HIV disease? A systematic review

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