Frail Elders’ Experiences With and Perceptions of Health

Ebrahimi, Zahra; Wilhelmson, Katarina; Moore, Crystal Dea; Jakobsson, Annika

doi:10.1177/1049732312457246

Cited by 36 publications

(53 citation statements)

References 28 publications

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“…The importance of mental health outcomes has also been recently found in a study among a UK general population on what aspects of the EuroQol 5-dimensions are currently missing or receive too little attention, that is, mental health 20. This is also in line with a study by Ebrahimi and colleagues21 among frail elderly where being able to ‘master’ daily life (eg, coping and acceptance) and being happy and satisfied with life (eg, enjoyment of life) were described as characteristics of health 21…”

Section: Discussionsupporting

confidence: 78%

“…Moreover, overlap was seen with our finding on the ability to conduct normal daily activities and the aforementioned study on frail elderly where the ability to live the routine life persons are accustomed to was identified as an aspect of health 21. Lastly, Venkatapuram’s definition of health as the capability to attain human value overlaps with the themes ability to participate in normal daily activities and social participation (a means to attain human value) and enjoyment of life that were mentioned in the current focus groups 14…”

Section: Discussionsupporting

confidence: 49%

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Defining good health and care from the perspective of persons with multimorbidity: results from a qualitative study of focus groups in eight European countries

et al. 2018

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ObjectivesThe prevalence of multimorbidity is increasing in many Western countries. Persons with multimorbidity often experience a lack of alignment in the care that multiple health and social care organisations provide. As a response, integrated care programmes are appearing. It is a challenge to evaluate these and to choose appropriate outcome measures. Focus groups were held with persons with multimorbidity in eight European countries to better understand what good health and a good care process mean to them and to identify what they find most important in each.MethodsIn 2016, eight focus groups were organised with persons with multimorbidity in: Austria, Croatia, Germany, Hungary, the Netherlands, Norway, Spain and the UK (total n=58). Each focus group followed the same two-part procedure: (1) defining (A) good health and well-being and (B) a good care process, and (2) group discussion on prioritising the most important concepts derived from part one and from a list extracted from the literature. Inductive and deductive analyses were done.ResultsOverall, the participants in all focus groups concentrated more on the care process than on health. Persons with multimorbidity defined good health as being able to conduct and plan normal daily activities, having meaningful social relationships and accepting the current situation. Absence of shame, fear and/or stigma, being able to enjoy life and overall psychological well-being were also important facets of good health. Being approached holistically by care professionals was said to be vital to a good care process. Continuity of care and trusting professionals were also described as important. Across countries, little variation in health definitions were found, but variation in defining a good care process was seen.ConclusionA variety of health outcomes that entail well-being, social and psychological facets and especially experience with care outcomes should be included when evaluating integrated care programmes for persons with multimorbidity.

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Section: Discussionsupporting

confidence: 78%

Section: Discussionsupporting

confidence: 49%

Defining good health and care from the perspective of persons with multimorbidity: results from a qualitative study of focus groups in eight European countries

et al. 2018

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“…Here we present examples coming from sixteen papers, of how people aim to keep frailty at a distance or control it, for example, using strategies and behaviour to help cope with conditions which cannot be changed in themselves, changing their relationship with their conditions, indicating resilience [9,37,41,42,44,48,50,51,52,59,60,63,64,66,69,73]. …”

Section: Resultsmentioning

confidence: 99%

“…Being frail was described as requiring the mobilisation of resources to create well-being [41], responding to the imbalance imposed by frailty with a compensatory approach, and still focusing on selected personally important goals:…”

Section: Resultsmentioning

confidence: 99%

Stakeholders’ views and experiences of care and interventions for addressing frailty and pre-frailty: A meta-synthesis of qualitative evidence

et al. 2017

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Frailty is a common condition in older age and is a public health concern which requires integrated care and involves different stakeholders. This meta-synthesis focuses on experiences, understanding, and attitudes towards screening, care, intervention and prevention for frailty across frail and healthy older persons, caregivers, health and social care practitioners. Studies published since 2001 were identified through search of electronic databases; 81 eligible papers were identified and read in full, and 45 papers were finally included and synthesized. The synthesis was conducted with a meta-ethnographic approach. We identified four key themes: Uncertainty about malleability of frailty; Strategies to prevent or to respond to frailty; Capacity to care and person and family-centred service provision; Power and choice. A bottom-up approach which emphasises and works in synchrony with frail older people's and their families' values, goals, resources and optimisation strategies is necessary. A greater employment of psychological skills, enhancing communication abilities and tools to overcome disempowering attitudes should inform care organisation, resulting in more efficient and satisfactory use of services. Public health communication about prevention and management of frailty should be founded on a paradigm of resilience, balanced acceptance, and coping. Addressing stakeholders’ views about the preventability of frailty was seen as a salient need.

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“…As the ICECAP-O encompasses areas identified as highly valued in the wellbeing of community-dwelling [8], as well as frailer older persons [9,10] living in Sweden, we wanted to adapt the questionnaire to the Swedish setting.…”

Section: Introductionmentioning

confidence: 99%

A Cross-Cultural Adaptation of the ICECAP-O: Test–Retest Reliability and Item Relevance in Swedish 70-Year-Olds

et al. 2016

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Background:While there is a plethora of Quality of Life (QoL) measures, the Investigating Choice Experiments for the Preferences of Older People-CAPability index (ICECAP-O) is one of the few that taps into the concept of capability, i.e., opportunities to 'do' and 'be' the things that one deems important in life. We aimed to examine test-retest reliability of the ICECAP-O in a Swedish context and to study item relevance. Methods: Thirty-nine 70-year-olds who took part in a population-based health study completed the Swedish version of the ICECAP-O on two occasions. We analyzed the test-retest reliability for the index and for the individual items. Participants also rated the relevance of each item on a visual analogue scale (0-100). Results: Test-retest reliability for the index score was in good agreement with an ICC of 0.80 (95% CI 0.62-0.90). However, Kappa was low for each item and ranged from 0.18 (control) to 0.41 (role). For attachment, we found a systematic disagreement with lower ratings at the second test occasion. Participants gave their highest relevance rating to attachment and lowest to enjoyment. Conclusion: The Swedish version of the ICECAP-O had good test-retest agreement, similar to that observed for the English version. Item level agreement was problematic, however, highlighting a need for future research.

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Frail Elders’ Experiences With and Perceptions of Health

Cited by 36 publications

References 28 publications

Defining good health and care from the perspective of persons with multimorbidity: results from a qualitative study of focus groups in eight European countries

Defining good health and care from the perspective of persons with multimorbidity: results from a qualitative study of focus groups in eight European countries

Stakeholders’ views and experiences of care and interventions for addressing frailty and pre-frailty: A meta-synthesis of qualitative evidence

A Cross-Cultural Adaptation of the ICECAP-O: Test–Retest Reliability and Item Relevance in Swedish 70-Year-Olds

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