Framework for User Involvement in Health Technology Assessment at the Local Level: Views of Health Managers, User Representatives, and Clinicians

Gagnon, Marie‐Pierre; Desmartis, Marie; Gagnon, Johanne; St-Pierre, Michèle; Rhainds, Marc; Coulombe, Martin; Tantchou, Mylène Dipankui

doi:10.1017/s0266462315000070

Cited by 27 publications

(33 citation statements)

References 17 publications

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“…Many factors raised by the participants are also prevalent in the scientific literature. Usability, 16,43,44 support from professionals, 7 targeting specific population of users, 1,8,12,25,45 lack of trust in patient-generated data, 38,46,47 digital divide, 16,48 literacy issues, 25,47 increased workload for professionals, 8,25 and privacy, confidentiality and security 7,9,15,16,18 are among these recurrent factors. However, this study also identifies issues that are less common in the literature or brought interesting subtleties to some known issues: emphasis on patients with chronic diseases, custody and control of these records, legislation related to ePHRs, and the different points on the definition of ePHRs.…”

Section: Discussionmentioning

confidence: 99%

Adoption of Electronic Personal Health Records in Canada: Perceptions of Stakeholders

Gagnon¹,

Payne-Gagnon²,

Breton³

et al. 2016

Int J Health Policy Manag

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Background: Healthcare stakeholders have a great interest in the adoption and use of electronic personal health records (ePHRs) because of the potential benefits associated with them. Little is known, however, about the level of adoption of ePHRs in Canada and there is limited evidence concerning their benefits and implications for the healthcare system. This study aimed to describe the current situation of ePHRs in Canada and explore stakeholder perceptions regarding barriers and facilitators to their adoption. Methods: Using a qualitative descriptive study design, we conducted semi-structured phone interviews between October 2013 and February 2014 with 35 individuals from seven Canadian provinces. The participants represented six stakeholder groups (patients, ePHR administrators, healthcare professionals, organizations interested in health technology development, government agencies, and researchers). A detailed summary of each interview was created and thematic analysis was conducted. Results: We observed that there was no consensual definition of ePHR in Canada. Factors that could influence ePHR adoption were related to knowledge (confusion with other electronic medical records [EMRs] and lack of awareness), system design (usability and relevance), user capacities and attitudes (patient health literacy, education and interest, support for professionals), environmental factors (government commitment, targeted populations) and legal and ethical issues (information control and custody, confidentiality, privacy and security). Conclusion: ePHRs are slowly entering the Canadian healthcare landscape but provinces do not seem wellprepared for the implementation of this type of record. Guidance is needed on critical issues regarding ePHRs, such as ePHR definition, data ownership, access to information and interoperability with other electronic health records (EHRs). Better guidance on these issues would provide a greater awareness of ePHRs and inform stakeholders including clinicians, decision-makers, patients and the public. In turn, it may facilitate their adoption in the country.

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Section: Discussionmentioning

confidence: 99%

Adoption of Electronic Personal Health Records in Canada: Perceptions of Stakeholders

Gagnon¹,

Payne-Gagnon²,

Breton³

et al. 2016

Int J Health Policy Manag

Self Cite

View full text Add to dashboard Cite

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“…Certification schemes for mHealth applications should be developed to serve as reliable indicators for healthcare professionals and citizens [5]. Direct participation of users in the health technology assessment process allows them to be part of the decision-making process [10]. Some tools used to evaluate mHealth applications from users view such as the quality of experience questionnaire (QoE) [11] or the Mobile App Rating Scale (MARS) [12] have been suggested.…”

Section: International Journal Of Cardiovascular Practicementioning

confidence: 99%

Evaluation of a Clinical Decision Support System for Dyslipidemia Treatment (HTE-DLPR) by QoE questionnaire

Zamora¹,

Carrión²,

Aymerich³

et al. 2017

ijcp

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Introduction: Clinical decision support systems (CDSS) are computer systems designed to assist clinicians with patient-related decision making, such as diagnosis and treatment. CDSS have shown to improve both patient outcomes and cost of care. Methods: A multi-center observational prospective study was conducted. Ten physicians agreed to participate. Seventy-seven patients with high or very high cardiovascular risk were included. After using CDSS for dyslipidemia (HTE-DLPR) for a 3 months period, participants were asked to evaluate their experience with HTE-DLPR using a quality of experience questionnaire (QoE) tool for mHealth applications. Results: Total score on the QoE was 3.89 out of 5. The highest scores were received for precision, ease of use and content quality. The lowest scores were given to security, appearance and performance. Physicians were in strong agreement with the 1st HTE-DLPR recommendation in 86.1% and the system's use was described as comfortable in 85% of cases. Users positively evaluated the development of a new version of HTE-DLPR in the future receiving a total score of 4.25 out of 5. Conclusions: A CDSS for dyslipidemia (HTE-DLP) has been positively evaluated by physicians using QoE questionnaire.

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“…The importance of public participation at all levels of the health system is widely recognised and has been described as a right and responsibility of healthcare consumers [22–24]. The primary goal of public involvement in health policy and service delivery is to ensure that decisions reflect the needs, concerns, values, culture, ideas and attitudes of consumers for whom the system exists and citizens who provide the resources for the system [23, 25–27]. Community and consumer participation is increasingly a requirement of publicly-funded health services.…”

Section: Introductionmentioning

confidence: 99%

“…There are numerous guides to public involvement in health service decision-making which provide information about potential engagement strategies, including a framework for patient involvement in decisions about use of health technologies at the local level [27], but there is no guidance on methods or frameworks for involving consumers in an organisation-wide approach for making, implementing and evaluating the whole range of resource allocation decisions [35]. The methods of public involvement in health policy decisions through Citizen Councils have been described at national [36] and state/provincial [37] levels and their characteristics summarised [26].…”

Section: Introductionmentioning

confidence: 99%

Sustainability in health care by allocating resources effectively (SHARE) 4: exploring opportunities and methods for consumer engagement in resource allocation in a local healthcare setting

Harris

Waller

et al. 2017

BMC Health Serv Res

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BackgroundThis is the fourth in a series of papers reporting a program of Sustainability in Health care by Allocating Resources Effectively (SHARE) in a local healthcare setting. Healthcare decision-makers have sought to improve the effectiveness and efficiency of services through removal or restriction of practices that are unsafe or of little benefit, often referred to as ‘disinvestment’. A systematic, integrated, evidence-based program for disinvestment was being established within a large Australian health service network. Consumer engagement was acknowledged as integral to this process. This paper reports the process of developing a model to integrate consumer views and preferences into an organisation-wide approach to resource allocation.MethodsA literature search was conducted and interviews and workshops were undertaken with health service consumers and staff. Findings were drafted into a model for consumer engagement in resource allocation which was workshopped and refined.ResultsAlthough consumer engagement is increasingly becoming a requirement of publicly-funded health services and documented in standards and policies, participation in organisational decision-making is not widespread. Several consistent messages for consumer engagement in this context emerged from the literature and consumer responses. Opportunities, settings and activities for consumer engagement through communication, consultation and participation were identified within the resource allocation process. Sources of information regarding consumer values and perspectives in publications and locally-collected data, and methods to use them in health service decision-making, were identified. A model bringing these elements together was developed.ConclusionThe proposed model presents potential opportunities and activities for consumer engagement in the context of resource allocation.Electronic supplementary materialThe online version of this article (doi:10.1186/s12913-017-2212-5) contains supplementary material, which is available to authorized users.

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Framework for User Involvement in Health Technology Assessment at the Local Level: Views of Health Managers, User Representatives, and Clinicians

Cited by 27 publications

References 17 publications

Adoption of Electronic Personal Health Records in Canada: Perceptions of Stakeholders

Adoption of Electronic Personal Health Records in Canada: Perceptions of Stakeholders

Evaluation of a Clinical Decision Support System for Dyslipidemia Treatment (HTE-DLPR) by QoE questionnaire

Sustainability in health care by allocating resources effectively (SHARE) 4: exploring opportunities and methods for consumer engagement in resource allocation in a local healthcare setting

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