Frequency and Correlates of Service Access Among Youth with Autism Transitioning to Adulthood

Taylor, Julie Lounds; Henninger, Natalie A.

doi:10.1007/s10803-014-2203-x

Cited by 109 publications

(107 citation statements)

References 49 publications

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“…This suggests effects of internalizing problems on social and other adaptive behavior deficits beyond those associated with ASD alone, which may shed light on findings of particularly high service need in individuals with ASD and comorbid psychiatric disorder. 43 It also points to the need for thoughtful development of targeted treatments for internalizing problems in these populations.…”

Section: Discussionmentioning

confidence: 99%

Depressive and Anxiety Symptom Trajectories From School Age Through Young Adulthood in Samples With Autism Spectrum Disorder and Developmental Delay

Gotham

Brunwasser

Lord

2015

Journal of the American Academy of Child & Adolescent Psych

233

173

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Objective To (1) model growth in anxiety and depressive symptoms from late school age through young adulthood in individuals with autism spectrum disorder (ASD) and controls with developmental delay (DD); and (2) assess relationships between internalizing growth patterns, participant characteristics, baseline predictors, and distal outcomes. Method Data were collected between 6-24 years of age in 165 participants (n=109 with ASD; n=56 with nonspectrum DD), most of whom received diagnostic evaluations in both childhood and early adulthood. Questionnaires were collected approximately every 3-6 months between ages 9-24. Parent-rated Child and Adult Behavior Checklists (CBCL; ABCL) and Developmental Behavior Checklist anxiety- and depression-related subscale distributions were modeled with mixed-effects Poisson models, covarying diagnosis, age, verbal IQ (VIQ), gender, and significant two- and three-way interactions. Results Anxiety was positively associated with VIQ, and controlling for VIQ, both anxiety and depressive symptoms were greater in ASD than nonspectrum participants. Female gender predicted greater increases over time in anxiety and depressive symptoms for both diagnostic groups. Lower maternal education was associated with increasing internalizing symptoms in a subset of less verbal individuals with ASD. In exploratory post-hoc analyses, internalizing symptoms were associated with poorer emotional regulation in school age, and with lower life satisfaction and greater social difficulties in early adulthood. Conclusion Findings support previous claims that individuals with ASD are at particular risk for affect- and anxiety-specific problems. While symptom levels in females increase at a faster rate throughout adolescence, males with ASD appear to have elevated levels of depressive symptoms in school age that are maintained into young adulthood.

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Section: Discussionmentioning

confidence: 99%

Depressive and Anxiety Symptom Trajectories From School Age Through Young Adulthood in Samples With Autism Spectrum Disorder and Developmental Delay

Gotham

Brunwasser

Lord

2015

Journal of the American Academy of Child & Adolescent Psych

233

173

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“…Groups were assigned using a random number generator, stratified by project site and whether the youth had ID in addition to ASD. Because an ID diagnosis is a significant determinant of disability service access among youth with ASD (Taylor & Henninger, 2015), we stratified by this variable to ensure that any group differences in services could not be attributed to unequal distributions of youth who had ID. Similarly, we wanted to ensure that any group differences could not be attributed to different proportions in each group of those who were taking the program in-person (at the host site) vs. through distance technology.…”

Section: Methodsmentioning

confidence: 99%

Training Parents of Youth with Autism Spectrum Disorder to Advocate for Adult Disability Services: Results from a Pilot Randomized Controlled Trial

Taylor

Hodapp

Burke

et al. 2017

J Autism Dev Disord

Self Cite

102

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This study presents findings from a pilot randomized controlled trial, testing a 12-week intervention to train parents of youth with autism spectrum disorder (ASD) to advocate for adult disability services—the Volunteer Advocacy Project-Transition (VAP-T). Participants included 41 parents of youth with ASD within two years of high school exit, randomly assigned to a treatment (N = 20) or wait-list control (N = 21) group. Outcomes, collected before and after the intervention, included parental knowledge about adult services, advocacy skills-comfort, and empowerment. The VAP-T had acceptable feasibility, treatment fidelity, and acceptability. After participating in the VAP-T, intervention parents (compared to controls) knew more about the adult service system, were more skilled/comfortable advocating, and felt more empowered.

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“…23 The authors of the remaining 2 studies directly recruited families of adults with autism. 34,35 Sample sizes ranged from 39 to 17 818 people. The age of participants with autism ranged from 12 to 26 years, and the mean proportion of sample members who were male was 85%.…”

Section: Sample Characteristics and Methodological Attributesmentioning

confidence: 99%

“…50 Parents of TAY with autism have also reported that many services were not provided in a geographic area or were not convenient or accessible. 35 Other factors (like the number of job openings and community views of disability) may also contribute to the experiences and outcomes of TAY. Including descriptive variables, such as those drawn from census tracts or through geocoding, or TAY's subjective appraisals of neighborhood quality may help to identify which neighborhood factors are important to transition success.…”

Section: Community Levelmentioning

confidence: 99%

Social-Ecological Correlates in Adult Autism Outcome Studies: A Scoping Review

et al. 2018

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The transition into adulthood is a critical period in the life course that shapes later outcomes. Many adults on the autism spectrum fare poorly across a wide range of quality of life indicators. Understanding the multilevel factors that influence transition outcomes is necessary to develop strategies that promote better outcomes. In this scoping review, we characterize the use of social-ecological factors in adult autism outcome studies, identify understudied areas of research, and provide recommendations for future research. We conducted a literature search for studies in which the relationship between social-ecological factors and transition outcomes among transition-age youth with autism was assessed. We organized variables used in studies across 5 levels of influence: family-, interpersonal-, institutional-, community-, and policy-level factors. Our findings reveal that both breadth and depth of social-ecological factors usage in autism outcomes studies is limited because of the narrow inclusion of variables across social-ecological levels, the overreliance on a limited number of national data sets, and the overall lack of variation in research design. We propose 9 recommendations to inform the development of multilevel studies.

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Frequency and Correlates of Service Access Among Youth with Autism Transitioning to Adulthood

Cited by 109 publications

References 49 publications

Depressive and Anxiety Symptom Trajectories From School Age Through Young Adulthood in Samples With Autism Spectrum Disorder and Developmental Delay

Depressive and Anxiety Symptom Trajectories From School Age Through Young Adulthood in Samples With Autism Spectrum Disorder and Developmental Delay

Training Parents of Youth with Autism Spectrum Disorder to Advocate for Adult Disability Services: Results from a Pilot Randomized Controlled Trial

Social-Ecological Correlates in Adult Autism Outcome Studies: A Scoping Review

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