BACKGROUND
Parents of children treated for cancer may report psychological distress following the end of treatment. However, psychological support needs are commonly unmet and there is lack of evidence-based interventions tailored to the population. An internet-administered low-intensity Cognitive Behavioral Therapy (CBT) based self-help intervention (EJDeR; intErnetbaserad sJälvhjälp för förälDrar till barn som avslutat en behandling mot canceR) may provide a solution.
OBJECTIVE
To describe the development of the EJDeR intervention adopting the Template for Intervention Description and Replication (TIDieR) checklist to detail specific intervention factors.
METHODS
EJDeR was developed through a multistage approach, including the use of existing evidence, conceptualization of distress, participatory action research, cross- sectional survey, and professional and public involvement. It utilizes low-intensity CBT behavioral activation and worry management treatment protocols for Depression and/or Generalized Anxiety Disorder tailored towards the population. EJDeR is delivered via the U-CARE-portal, an online platform including written, film, audio content and videoconferencing, in-portal e-mail guidance, logging of participant and therapist activity, and automatic reminders. Parents are guided to use EJDeR by e-therapists, comprising psychology program students, in at least their fourth year of study after having completed a term of advanced studies in CBT.
RESULTS
An overview of the development process and a description of EJDeR informed by the TIDieR checklist are presented. Adaptations to EJDeR made in response to public involvement are highlighted. EJDeR is currently being tested in a feasibility study of an internet-administered intervention for parents of children previously treated for cancer (the ENGAGE study).
CONCLUSIONS
EJDeR represents a novel approach to support parents of children treated for cancer. Adopting a low-intensity CBT approach, guided by e-therapists, and internet-administered delivery represents a unique approach to improve access to mental health support for parents of children treated for cancer. Adopting TIDieR to report EJDeR offers potential to enhance fidelity to the intervention protocol and facilitate later implementation.
CLINICALTRIAL
ENGAGE study: ISRCTN 57233429
INTERNATIONAL REGISTERED REPORT
RR2-10.1136/bmjopen-2018-023708