From eHealth to ePatient: The Role of Patient Portals in Fostering Patient Empowerment

Ammenwerth, Elske

doi:10.24105/ejbi.2018.14.2.4

Cited by 20 publications

(18 citation statements)

References 11 publications

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“…Digital interventions may be used as tools to support a reciprocal relationship between patients and health care practitioners and enhance patient-centered care [ 33 ]. Accordingly, dietitians would be expected to manage and recommend the usage of KELA.AE app in real practice settings.…”

Section: Discussionmentioning

confidence: 99%

A Dietary Mobile App for Patients Undergoing Hemodialysis: Prospective Pilot Study to Improve Dietary Intakes

Khoury¹,

Crutzen²,

Schols³

et al. 2020

J Med Internet Res

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Background Mobile technology has an impact on the health care sector, also within dietetics. Mobile health (mHealth) apps may be used for dietary assessment and self-monitoring, allowing for real-time reporting of food intakes. Changing eating behaviors is quite challenging, and patients undergoing hemodialysis, particularly, struggle to meet the target intakes set by dietary guidelines. Usage of mobile apps that are developed in a person-centered approach and in line with recommendations may support both patients and health care practitioners. Objective This study is a pilot that aims at estimating the potential efficacy of a dietary intervention using a theory-based, person-centered smartphone app. Results will be used to improve both the app and a planned large-scale trial intended to assess app efficacy thoroughly. Methods A prospective pilot study was performed at the hemodialysis unit of Al Qassimi Hospital (The Emirate of Sharjah). All patients that fulfilled the study inclusion criteria were considered eligible to be enrolled in the pilot study. Upon successful installation of the app, users met with a dietitian once a week. Outcomes were measured at baseline (T0) and 2 weeks post app usage (T1). This pilot is reported as per guidelines for nonrandomized pilot and feasibility studies and in line with the CONSORT 2010 checklist for reporting pilot or feasibility trials. Results A total of 23 patients completed the pilot intervention. Mean energy intakes increased from 24.4 kcal/kg/day (SD 8.0) to 29.1 kcal/kg/day (SD 7.8) with a medium effect size (d=0.6, 95% CI 0.0-1.2). Mean protein intakes increased from 0.9 g/kg/day (SD 0.3) to 1.3 g/kg/day (SD 0.5) with a large effect size (d=1.0, 95% CI 0.4-1.6); mean intake of high biological value (%HBV) proteins also increased from 58.6% (SD 10.1) to 70.1% (SD 10.7) with a large effect size (d=1.1, 95% CI 0.5-1.7). Dietary intakes of minerals did not change, apart from sodium which decreased from a mean intake of 2218.8 mg/day (SD 631.6) to 1895.3 mg/day (SD 581.0) with a medium effect size (d=0.5, 95% CI 0.1-1.1). Mean serum phosphorus, potassium, and albumin levels did not change relevantly. Mean serum iron increased from 7.9 mg/dL (SD 2.8) to 11.5 mg/dL (SD 7.9) postintervention with a medium effect size (d=0.6, 95% CI 0.0-1.2). Conclusions This pilot study showed that the KELA.AE app has the potential to improve dietary intakes. Processes related to procedure, resources, tools, and app improvement for a future trial were assessed. A more extended intervention using a randomized controlled trial is required to estimate parameters concerning app efficacy accurately.

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Section: Discussionmentioning

confidence: 99%

A Dietary Mobile App for Patients Undergoing Hemodialysis: Prospective Pilot Study to Improve Dietary Intakes

Khoury¹,

Crutzen²,

Schols³

et al. 2020

J Med Internet Res

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“…Web‐based portals that allow patients to access medical information such as test results are being increasingly implemented at national, regional and hospital levels (Baldwin et al . ; Ammenwerth ). While there are portals and mobile phone‐based applications, which allow access to records for specific patient populations, such as people accessing primary care and specific health conditions such as cancer, diabetes and HIV, other systems such as PatientView, provide all patients at national level with access to elements of their health record, such as blood test results.…”

Section: Literature Reviewmentioning

confidence: 99%

“…While there are portals and mobile phone‐based applications, which allow access to records for specific patient populations, such as people accessing primary care and specific health conditions such as cancer, diabetes and HIV, other systems such as PatientView, provide all patients at national level with access to elements of their health record, such as blood test results. Although portal interfaces and the timeliness of information have improved, there remain serious concerns regarding their under‐use and the extent to which patient access to health records alone can be equated with patient empowerment (Ammenwerth ). Web‐based portals are used internationally and much of the early research demonstrating the impact of technology within health care has come from America.…”

Section: Literature Reviewmentioning

confidence: 99%

Understanding the Value of Patientview for Enabling Self‐Care Practice in Chronic Kidney Disease

Hudson

Darking

Cox

2019

Journal of Renal Care

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SUMMARY Background Individual responsibility and self‐care are seen as ways to overcome some of the challenges for long‐term health care provision. Patients are being encouraged to take an active role in their health care. Access to health information via a web‐based, patient‐facing portal is an innovative way to engage in self‐care. PatientView is one such portal, which was developed to allow patients with kidney disease access to parts of their health record. It was thought that the use of PatientView would improve self‐care activity but there was little evidence to support this claim. Objective To gain an understanding of how patients with kidney disease use PatientView in their self‐care practice. Participants Six users and four non‐users of PatientView. Design Qualitative, semi‐structured interviews and participant observation. Approach A practice‐based approach was used to collect qualitative data to better understand how patients use PatientView in daily life to enable self‐care. Participants were invited to “show the researcher” how they use PatientView and to describe how they translated the information into actions of self‐care. Inductive analysis was used to identify themes. Results The analysis identified four key themes, which were non‐linear inter‐related. Patients engage with PatientView because it supports ways of knowing that are of direct importance to self‐care activity. Patients interact with PatientView and translate the information they gain from using it into actions that support self‐care. A consequence of engaging with PatientView is that patients can involve their family more in their care and this helps to reduce the burden on health care professionals. Conclusion Patient interactions with PatientView are inter‐related, multi‐dimensional and differ according to the individual's positioning within a continuum of care. Nonetheless, these interactions can be captured and doing so provides a basis for understanding of how patients create and sustain opportunities for care through information technology.

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“…The question whether implementing such ICT solutions is reasonable. It was proved that this aim is nearly impossible to achieve without an appropriate engagement of healthcare providers [30].…”

Section: Patient -Provider Communication Processmentioning

confidence: 99%

What are the aims of the implementation of e-solutions in healthcare? Review of the relevant practical studies

Jędrzejczyk¹,

Zarzeczna-Baran²

2019

Eur J Trans Clin Med

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From eHealth to ePatient: The Role of Patient Portals in Fostering Patient Empowerment

Cited by 20 publications

References 11 publications

A Dietary Mobile App for Patients Undergoing Hemodialysis: Prospective Pilot Study to Improve Dietary Intakes

A Dietary Mobile App for Patients Undergoing Hemodialysis: Prospective Pilot Study to Improve Dietary Intakes

Understanding the Value of Patientview for Enabling Self‐Care Practice in Chronic Kidney Disease

What are the aims of the implementation of e-solutions in healthcare? Review of the relevant practical studies

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