From home to ‘home’: Mapping the caregiver journey in the transition from home care into residential care

Hainstock, Taylor; Cloutier, Denise; Penning, Margaret J.

doi:10.1016/j.jaging.2017.09.003

Cited by 33 publications

(38 citation statements)

References 15 publications

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“…Taking the papers as a group, [96][97][98] the main themes identified were similar to those identified in the literature reviews.…”

Section: Post-review Individual Studiesmentioning

confidence: 67%

“…Hainstock and colleagues 96 conducted interviews with family caregivers of older people to explore the challenges and needs of older patients when they transfer from one care environment to another. They interviewed 16 caregivers recruited from a 'diverse health region' in western Canada.…”

Section: Post-review Individual Studiesmentioning

confidence: 99%

“…The articles [89][90][91][92][93][94][95][96][97][98] all stress the fundamentally social nature of team working across professional and organisational boundaries: the importance of leadership, culture, trust and other qualities of teams. They also convey the point that co-ordination problems cannot be separated from one another.…”

Section: Commentarymentioning

confidence: 99%

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The effects of interoperable information technology networks on patient safety: a realist synthesis

Keen

Abdulwahid

King

et al. 2020

Health Serv Deliv Res

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Background Interoperable networks connect information technology systems of different organisations, allowing professionals in one organisation to access patient data held in another one. Health policy-makers in many countries believe that they will improve the co-ordination of services and, hence, the quality of services and patient safety. To the best of our knowledge, there have not been any previous systematic reviews of the effects of these networks on patient safety. Objectives The aim of the study was to establish how, why and in what circumstances interoperable information technology networks improved patient safety, failed to do so or increased safety risks. The objectives of the study were to (1) identify programme theories and prioritise theories to review; (2) search systematically for evidence to test the theories; (3) undertake quality appraisal, and use included texts to support, refine or reject programme theories; (4) synthesise the findings; and (5) disseminate the findings to a range of audiences. Design Realist synthesis, including consultation with stakeholders in nominal groups and semistructured interviews. Settings and participants Following a stakeholder prioritisation process, several domains were reviewed: older people living at home requiring co-ordinated care, at-risk children living at home and medicines reconciliation services for any patients living at home. The effects of networks on services in health economies were also investigated. Intervention An interoperable network that linked at least two organisations, including a maximum of one hospital, in a city or region. Outcomes Increase, reduction or no change in patients’ risks, such as a change in the risk of taking an inappropriate medication. Results We did not find any detailed accounts of the ways in which interoperable networks are intended to work and improve patient safety. Theory fragments were identified and used to develop programme and mid-range theories. There is good evidence that there are problems with the co-ordination of services in each of the domains studied. The implicit hypothesis about interoperable networks is that they help to solve co-ordination problems, but evidence across the domains showed that professionals found interoperable networks difficult to use. There is insufficient evidence about the effectiveness of interoperable networks to allow us to establish how and why they affect patient safety. Limitations The lack of evidence about patient-specific measures of effectiveness meant that we were not able to determine ‘what works’, nor any variations in what works, when interoperable networks are deployed and used by health and social care professionals. Conclusions There is a dearth of evidence about the effects of interoperable networks on patient safety. It is not clear if the networks are associated with safer treatment and care, have no effects or increase clinical risks. Future work Possible future research includes primary studies of the effectiveness of interoperable networks, of economies of scope and scale and, more generally, on the value of information infrastructures. Study registration This study is registered as PROSPERO CRD42017073004. Funding This project was funded by the National Institute for Health Research (NIHR) Health Services and Delivery Research programme and will be published in full in Health Services and Delivery Research; Vol. 8, No. 40. See the NIHR Journals Library website for further project information.

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“…Taking the papers as a group, [96][97][98] the main themes identified were similar to those identified in the literature reviews.…”

Section: Post-review Individual Studiesmentioning

confidence: 67%

Section: Post-review Individual Studiesmentioning

confidence: 99%

See 1 more Smart Citation

The effects of interoperable information technology networks on patient safety: a realist synthesis

Keen

Abdulwahid

King

et al. 2020

Health Serv Deliv Res

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“…When supporting the elderly to maintain their independence and quality of life, the role of family is crucial. However, the next of kin can experience too heavy a burden in caring for their elderly and continuing their lives (Hainstock et al, 2017). Sheltered accommodation and treatment costs are rising, and illness is more prominent, requiring additional resources for nursing staff (Alam et al, 2012).…”

Section: Elderly In Sheltered Accommodationmentioning

confidence: 99%

“…The supportive role of family members in assisting their elderly is important and may lead to reduced costs down the line (Bolin et al, 2008). Along with ageing, the need for assistance and care increases, and the elderly are moving to accommodation that can offer more support than at private homes (Hainstock et al, 2017). However, the rising number of ageing occupants also means an increased need for care and resources from the caregivers (Alam et al, 2012).…”

Section: Introductionmentioning

confidence: 99%

Proposal for Pervasive Elderly Care: A Case Study with Next of Kin

Huttunen¹,

Halonen²,

Klakegg³

2019

Humanizing Technology for a Sustainable Society

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This paper reports how interaction between family members and caregivers as perceived by family members could be improved via contextaware, imperceptible internet of things (IoT)-based solutions. The study focused on investigating experiences of the family members and the communication between caretakers in sheltered accommodation. Interviews including both open and closed questions revealed that there is high need for improving the communication, adding to the sparse earlier knowledge. The study revealed that the family members were willing to adopt an application to improve the communication that currently was experienced as too limited and vague. The results provide a fruitful base for further actions to improve communication between family members and professional caretakers.

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Always on alert: How relatives of family members with dementia experience the transition from home to permanent nursing home placement

2023

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AimOur aim was to gain insight into how the relatives of family members with dementia have experienced their family members' transition from home to permanent nursing home placement.DesignOur research was a qualitative case study.MethodsInspired by Kvale and Brinkmann's phenomenological‐hermeneutic approach, we performed the thematic analysis of semi‐structured interviews describing how the relatives of family members with dementia have experienced the dementia trajectory.ResultsTwelve relatives of family members with dementia living in nursing homes agreed to participate. The descriptions of relatives' experiences indicated four primary themes: mismatches between healthcare services and the family members' needs, witnessing the family members' cognitive decline, the effects of the experiences on the relatives' health and well‐being and what matters to the relatives during their family members' transition to nursing home. Mismatches between available resources in the municipalities and the family members' healthcare needs were the most distressing experiences, along with the family members' gradual cognitive decline. In response, the relatives stressed individualized support, continuity in follow‐up care and regular information‐sharing between them and staff members caring for their family members. They also highlighted the importance of facilitating seamless transitions from home to nursing homes.

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From home to ‘home’: Mapping the caregiver journey in the transition from home care into residential care

Cited by 33 publications

References 15 publications

The effects of interoperable information technology networks on patient safety: a realist synthesis

The effects of interoperable information technology networks on patient safety: a realist synthesis

Proposal for Pervasive Elderly Care: A Case Study with Next of Kin

Always on alert: How relatives of family members with dementia experience the transition from home to permanent nursing home placement

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