From ‘<i>for</i>’ to ‘<i>of</i>’: a typology of Maltese disability organisations

Callus, Anne‐Marie

doi:10.1080/09687599.2013.776487

Cited by 3 publications

(2 citation statements)

References 11 publications

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“…Authors also emphasize historical differences between social groups within the advocacy movement (Bylov, 2006;Wehmeyer, Bersani, & Gagne, 2000): for example, it is claimed that professionals, parents and disabled people have had different views about what advocacy should achieve (Waltz, 2013). Many studies focused on power struggles within or between organizations and authorities (Balazs & Petri, 2010;Bertilsdotter, Brownlow, & O'Dell, 2015;Callus, 2014;Tilley, 2006b;Tilley, 2013;Waltz, den Bosch, Ebben, & Schippers, 2015). What is common in these studies is that they usually see social structures such as organizations or groups as primary contexts to understanding features of ID or autistic advocacy.…”

Section: Introductionmentioning

confidence: 99%

Redefining Self‐Advocacy: A Practice Theory‐Based Approach

Petri

Bradshaw

2020

Policy Practice Intel Disabi

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The disabled people's movements have successfully influenced public policies and laws. Self‐advocates who are autistic or have an intellectual disability have been working alongside other advocates for recent decades. Practice theory has rarely been used in disability research. This study explores “practice theory” through the analysis of interviews with advocates and self‐advocates within the autism and intellectual disability advocacy movements. This is a qualitative, empirical study based on interviews and focus groups with 43 participants in two countries. The data were collected in 2016–17. Content analysis was used to identify themes. Data indicate that everyday practices of self‐advocates and advocates such as parent advocates and professional advocates largely overlap. There are five major types of practices that are done by nearly all advocates: “informing and being informed,” “using media,” “supporting each other,” “speaking up,” and “bureaucratic duties.” Contrary to several previous studies on self‐advocacy that emphasized “speaking up” as the main activity in advocacy, this study found that most practices of advocates and self‐advocates are “para‐advocacy” practices that may or may not lead directly to “speaking up.” Practices of self‐advocates are often embedded in other everyday activities people do. The line between practices that belong to self‐advocacy and practices outside self‐advocacy may not always be clear even to self‐advocates. Findings also indicate that hierarchies in the disability movement influence strongly the position of self‐advocates.

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Section: Introductionmentioning

confidence: 99%

Redefining Self‐Advocacy: A Practice Theory‐Based Approach

Petri

Bradshaw

2020

Policy Practice Intel Disabi

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“…One reason can be owed to the corporatist tradition where disability organisations have benefited from being an established dialogue partner with the state. In other words, it is clear how the development of disability movements is highly contextual (Callus, 2013;Nuth, 2018).…”

Section: A Changing Disability Movement In Swedenmentioning

confidence: 99%

Nothing About Us Without … Who? Disability Rights Organisations, Representation and Collaborative Governance

Bahner¹

2022

IJDSJ

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When governments invite disability rights organisations to policy deliberations, how does the slogan ‘nothing about us without us’ translate into practice? This article draws upon a study about local disability organisations and their relationship to a regional consultative citizens’ council on disability issues in Sweden. Interviews were conducted with organisations that had seats on the council, politicians and officials on the council, as well as with disability organisations without seats on the council. Results show that conceptualisations of ‘disability’ in policies that regulate deliberations not only define what type of organisations are eligible for appointment to the council, but also influence how disability organisations identify, present themselves and what issues they advocate for – leading to divisions among organisations. The findings have implications for collaborative governance structures and disability rights organisations elsewhere – problematising issues around representation, institutionalisation of inclusion and the constantly evolving concept of what counts as ‘disability’.

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Barriers to cultural participation by people with disabilities in Europe: a study across 28 countries

Leahy

Ferri

2023

Disability & Society

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This article discusses the findings of a new qualitative study conducted in 28 European countries, examining barriers to cultural participation as perceived by representatives of organisations of people with disabilities. The study explores barriers operating in all art-forms as well as in cultural heritage, and it encompasses participation of people with a broad range of disability types both as audiences and as creators of culture. The article evidences that a range of interlinked barriers are commonly perceived by people with disabilities in five areas – lack of effective laws and policies; inadequate services and/or funding; negative attitudes; lack of accessibility; and lack of involvement of persons with disabilities in cultural organisations. The article argues for more systematic approaches to enforcement of laws and policies, for greater knowledge about disability to be embedded within cultural organisations and policymaking, and for employment of people with disabilities at all levels within cultural sectors.

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From ‘for’ to ‘of’: a typology of Maltese disability organisations

Cited by 3 publications

References 11 publications

Redefining Self‐Advocacy: A Practice Theory‐Based Approach

Redefining Self‐Advocacy: A Practice Theory‐Based Approach

Nothing About Us Without … Who? Disability Rights Organisations, Representation and Collaborative Governance

Barriers to cultural participation by people with disabilities in Europe: a study across 28 countries

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