From miracle to reconciliation: A hermeneutic phenomenological study exploring the experience of living with Parkinson's disease following Deep Brain Stimulation

Becoming more oneself? Changes in personality following DBS treatment for psychiatric disorders: Experiences of OCD patients and general considerations

“…There have been a few qualitative studies into the general experiences of PD and primary dystonia patients following DBS treatment [11–16]. Two of those mention no experiences of personality changes at all [15, 16], whereas two other studies [13, 14] only shortly mention the effect that a changed body and bodily capacities may have on patients’ identity.…”

“…Schüpbach and colleagues also point out that many patients had become so used to their handicap that they initially did not dare to trust the success of treatment and their new, restored bodily abilities. Another qualitative study with PD patients by Haahr and colleagues [13] also found that some patients had difficulties to trust their own changed physical abilities. In a more general sense, Haahr and colleagues remark that patients’ relation to their changing body implies that ‘they had to achieve a new understanding of the self and repeatedly re-define the relation between self and body’ (p.1234).…”

“…Previous research indicates that in general changes—both for better and for worse—may be more readily noticed by close relatives [13, 20, 26]. The assessments of relatives are not decisive either, though, for they may not have known the patient without OCD.…”

‘Being in it together’: living with a partner receiving deep brain stimulation for advanced Parkinson’s disease – a hermeneutic phenomenological study

“…2009). The changes in mobility and treatment strategy, challenges patients’ perception of life with PD, and a recent study illustrates that patients go through a process of adjusting to changes in illness and everyday life during the first year of DBS (Haahr et al. 2010).…”

Im Körper gefangen sein – Das Erleben und die Bewältigung der krankheitsbedingt veränderten Bewegungsmuster von Menschen mit Parkinson und ihren Angehörigen

“…Im Verlauf der Krankheit können weitere Beeinträch-tigungen wie Depressionen, Angst, Demenz, Halluzinationen sowie vegetative Symptome vorkommen (Rohkamm, 2003), diese haben einen signifikanten Einfluss auf die Lebensqualität (Deuschl, Eggert, Oertel & Poewe, 2012;Schrag, Jahanshahi & Quinn, 2000). Es ist naheliegend, dass auch der Verlust der Bewegungsfähigkeit einen Einfluss auf die Lebensqualität hat (Cruise, Bucks, Loftus, Newton, Pegoraro & Thomas, 2011 (Birgersson & Edberg, 2004;Haahr, Kirkevold, Hall & Ostergaard, 2010). Dies beeinflusst die Möglichkeiten der Durchführbarkeit solcher Übungsprogramme negativ.…”