From patient centred to people powered: autonomy on the rise

deBronkart, Dave

doi:10.1136/bmj.h148

Cited by 68 publications

(58 citation statements)

References 5 publications

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“…Authors call for a joined‐up approach to PCC, involving patients, professionals and managers, with an emphasis on patients’ priorities and goals in the context of routine care 10, 28, 29, 30, 31. Our study shows how professionals from diverse clinical backgrounds collaborate with professionals and patients to employ person‐centred research.…”

Section: Discussionmentioning

confidence: 89%

Barriers and facilitators to the implementation of person‐centred care in different healthcare contexts

Moore

Britten

Lydahl

et al. 2016

Scandinavian Caring Sciences

333

326

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BackgroundTo empower patients and improve the quality of care, policy‐makers increasingly adopt systems to enhance person‐centred care. Although models of person‐centredness and patient‐centredness vary, respecting the needs and preferences of individuals receiving care is paramount. In Sweden, as in other countries, healthcare providers seek to improve person‐centred principles and address gaps in practice. Consequently, researchers at the University of Gothenburg Centre for Person‐Centred Care are currently delivering person‐centred interventions employing a framework that incorporates three routines. These include eliciting the patient's narrative, agreeing a partnership with shared goals between patient and professional, and safeguarding this through documentation.AimTo explore the barriers and facilitators to the delivery of person‐centred care interventions, in different contexts.MethodQualitative interviews were conducted with a purposeful sample of 18 researchers from seven research studies across contrasting healthcare settings. Interviews were transcribed, translated and thematically analysed, adopting some basic features of grounded theory.Ethical issuesThe ethical code of conduct was followed and conformed to the ethical guidelines adopted by the Swedish Research Council.ResultsBarriers to the implementation of person‐centred care covered three themes: traditional practices and structures; sceptical, stereotypical attitudes from professionals; and factors related to the development of person‐centred interventions. Facilitators included organisational factors, leadership and training and an enabling attitude and approach by professionals. Trained project managers, patients taking an active role in research and adaptive strategies by researchers all helped person‐centred care delivery.ConclusionAt the University of Gothenburg, a model of person‐centred care is being initiated and integrated into practice through research. Knowledgeable, well‐trained professionals facilitate the routines of narrative elicitation and partnership. Strong leadership and adaptive strategies are important for overcoming existing practices, routines and methods of documentation. This study provides guidance for practitioners when delivering and adapting person‐centred care in different contexts.

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Section: Discussionmentioning

confidence: 89%

Barriers and facilitators to the implementation of person‐centred care in different healthcare contexts

Moore

Britten

Lydahl

et al. 2016

Scandinavian Caring Sciences

333

326

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“…[12][13][14][15] The evaluation of inclusive health research is challenged by ethical dilemmas such as inclusion being a right in itself regardless of its contribution to the research process. 16 In order to gain a scientific perspective and facilitate inclusive health research, 17 knowledge and experiences should be shared among academics on three topics. First, a recent literature review has shown that it is unclear which research designs and methods best fit inclusive health research.…”

Section: Of Healthmentioning

confidence: 99%

Exploring academics' views on designs, methods, characteristics and outcomes of inclusive health research with people with intellectual disabilities: a modified Delphi study

Frankena

Naaldenberg

Cardol³

et al. 2016

BMJ Open

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Background The British Medical Journal 's ( BMJ 's) patient revolution strives for collaboration with patients in healthcare and health research. This paper studies collaboration with people with intellectual disabilities (ID) in health research, also known as inclusive health research. Currently, transparency and agreement among academics is lacking regarding its main aspects, preventing upscaling of the patient revolution. Objective This study aims to gain agreement among academics on 3 aspects of inclusive health research for people with ID: (1) designs and methods, (2) most important characteristics and (3) outcomes. Design A Delphi study was conducted with academics with experience in inclusive (health) research and on people with ID. The study consisted of 2 sequential questionnaire rounds (n=24; n=17), followed by in-depth interviews (n=10). Results Academics agreed on (1) a collaborative approach to be most suitable to inclusive health research, (2) characteristics regarding the accessibility and facilitation of inclusive health research, and (3) several outcomes of inclusive health research for people with ID and healthcare. Other characteristics agreed on included: atmosphere, relationship, engagement, partnership and power. It was stressed that these characteristics ensure meaningful inclusion. Interviewed academics voiced the need for a tool supporting the facilitation and evaluation of inclusive health research. There was ambiguity as to what this tool should comprise and the extent to which it was possible to capture the complex process of inclusive health research. Discussion and conclusions This study underlines the need for transparency, facilitation and evaluation of inclusive health research. The need for in-depth interviews after 2 Delphi rounds underlines its complexity and context dependence. To increase process transparency, future research should focus on gaining insight into inclusive health research in its context. A tool could be developed to facilitate and evaluate inclusive health research. This tool will be partially applicable to participatory research in general and thereby upscale the patient revolution.

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“…With increasing pressure on healthcare resources likely in the future, professionally supported self-management of a range of long-term conditions may become much more common 35. If our findings are reproduced across other healthcare settings, it might be possible to improve the outcomes of healthcare, empower families and use healthcare resources more effectively.…”

Section: Discussionmentioning

confidence: 72%

Families’ priorities in life-limiting illness: improving quality with online empowerment

2015

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From patient centred to people powered: autonomy on the rise

Cited by 68 publications

References 5 publications

Barriers and facilitators to the implementation of person‐centred care in different healthcare contexts

Barriers and facilitators to the implementation of person‐centred care in different healthcare contexts

Exploring academics' views on designs, methods, characteristics and outcomes of inclusive health research with people with intellectual disabilities: a modified Delphi study

Families’ priorities in life-limiting illness: improving quality with online empowerment

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