From the Other Side of the Bed

Jones, Jamie L.; Barone, Claudia P.; Brown, Lana M.; Wright, P. B.; Mitchell, A.; Ray, Trenda

doi:10.1097/ncq.0000000000000516

Cited by 5 publications

(11 citation statements)

References 12 publications

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“…Unlike other caregivers at EOL, nurses experience higher expectations from family and health care providers, as well as from themselves when they are the caregiver. 4,7,8,11,12 This finding from the literature was echoed by all participants in this study. Although the additional stress caused by these high and often unrealistic expectations is difficult to quantify, it is imperative that health care providers are cognizant of this possibility.…”

Section: Discussionsupporting

confidence: 71%

“…However, the unique knowledge and skills that nurses possess have a significant influence on their experience as double-duty caregivers. 4,[6][7][8]12 In this study, the experiences of registered nurses providing care to a family member at EOL while continuing to work and the lasting consequences of their DDC were explored. All participants shared a description of their support system.…”

Section: Discussionmentioning

confidence: 99%

“…4,[6][7][8]12 Nurses who assume familial responsibilities continually negotiate the boundaries between their professional and personal caring work. 6,7,12 Despite using a variety of strategies to manage the DDC demands, many nurses experience a blurring of boundaries. Because of the intense similarities of these roles, there is an inability to separate work life from home life, resulting in feelings of isolation, tension, and physical and emotional exhaustion.…”

Section: Introductionmentioning

confidence: 99%

“…However, the literature suggests the unique knowledge and skills that nurses have strongly influence their experience as a double-duty caregiver. 4,[6][7][8]12 Nurses who assume familial responsibilities continually negotiate the boundaries between their professional and personal caring work. 6,7,12 Despite using a variety of strategies to manage the DDC demands, many nurses experience a blurring of boundaries.…”

Section: Introductionmentioning

confidence: 99%

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The Experiences of Nurses as Double-Duty Caregivers for a Family Member at the End of Life

Basley,

Ferszt,

DeSanto-Madeya

2024

J Hosp Palliat Nurs

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Increasing numbers of individuals with complex, advanced illnesses are living longer and being cared for in the home by family members. As a result, family caregivers often experience physical, emotional, psychological, and social distress. A unique subset of this population are nurses who find themselves providing care in both their family lives and work lives, a phenomenon known as “double-duty caregiving.” This study explored the experiences of nurses providing end-of-life care for family members while continuing to work as a nurse and the consequences of this experience. A qualitative design, using semistructured, in-depth interviews, was used to capture the double-duty caregivers' experiences. Four overarching themes were identified: It Takes a Village, Driving the Bus, Juggling Many Hats, and Moving Through and Looking Back. These themes captured the components of a support system that are essential for the double-duty caregiver to perform this work, the multifaceted expectations placed upon the double-duty caregiver, the double-duty caregiver's relentless need to balance multiple roles, and the immediate and long-term impact of double-duty caregiving. As nurses, we must acknowledge the need for self-care during this experience, and as a profession, we must provide support for the double-duty caregiver to preserve their personal and professional well-being.

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Section: Discussionsupporting

confidence: 71%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

The Experiences of Nurses as Double-Duty Caregivers for a Family Member at the End of Life

Basley,

Ferszt,

DeSanto-Madeya

2024

J Hosp Palliat Nurs

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“…Being a registered nurse enabled Liza to act in ways that not many relatives are capable of. This fieldwork experience provided a valuable perspective on different positions available to relatives and functioned as a mirror through which we became aware of some of the advantages of being a registered nurse family caregiver [34] when it comes to relative's involvement.…”

Section: Resultsmentioning

confidence: 99%

Involvement un-enabled? An ethnographic study of the challenges and potentials of involving relatives in the acute ambulatory clinical pathway

Sagoo

Grytnes

2020

BMC Health Serv Res

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Background Involving a patient’s relatives is a complex endeavour, especially in emergency departments (EDs). Generally, relatives are recognized as vital partners in health care, but in-depth knowledge on how these family involvement processes take place in the everyday practices of EDs is sparse. The aim of this study is to explore the practice of involving relatives in the acute ambulatory clinical pathway in the ED, as seen from the perspectives of patients and relatives. Methods The study was conducted as ethnographic fieldwork in an ED at a Danish Regional Hospital. Two months of participant-observation were carried out focusing on 43 patients. Of these, 18 patients and/or relatives were selected for telephone interviews after 1 week, and of these 11 were selected for in-depth interviews 3 weeks later. Results Unpredictability is a basic condition of any ED. For the patients and relatives, who are unfamiliar with the routines in the ED, unpredictability translates to a sense of temporal and existential unpredictability, reinforced by a sense of not knowing when the examinations will be completed or if/when they will be sent home. Relatives’ involvement in the ED is affected by this sense of unpredictability and by the existing relations between patients and their relatives prior to entering the ED. The stay in the ED is only one ‘stop’ in the complete acute ambulatory clinical pathway but relatives’ involvement also concerns the time before and after the stay in the ED. Practices of involving relatives leave (some) relatives invisible in the clinical pathway. As a consequence, they are often not addressed, which un-enables their involvement. Conclusion Involvement of relatives presupposes recognizing the relatives as participants if they are to be involved in the patient’s clinical pathway in the ED. As a start, it is advisable that the medical staff ask the patients on arrival who has accompanied them in the ED, and if and in what way they want their companions involved in the ED. There is a need for a more integrated and contextualized understanding of relatives’ involvement, as it takes place along an extended acute ambulatory clinical pathway.

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Use of Motivational Interviewing by Advocates in the Context of an Elder Abuse Response Intervention: The RISE Project

MacNeil¹,

Connolly²,

Salvo³

et al. 2023

J Fam Viol

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From the Other Side of the Bed

Abstract: Supplemental Digital Content is Available in the Text.

Cited by 5 publications

References 12 publications

The Experiences of Nurses as Double-Duty Caregivers for a Family Member at the End of Life

The Experiences of Nurses as Double-Duty Caregivers for a Family Member at the End of Life

Involvement un-enabled? An ethnographic study of the challenges and potentials of involving relatives in the acute ambulatory clinical pathway

Use of Motivational Interviewing by Advocates in the Context of an Elder Abuse Response Intervention: The RISE Project

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