Functional health status of adolescents after the Fontan procedure – comparison with their siblings

Manlhiot, Cedric; Knezevich, Stevan R.; Radojewski, Elizabeth; Cullen-Dean, Geraldine; Williams, William G.; McCrindle, Brian W.

doi:10.1016/s0828-282x(09)70139-4

Cited by 39 publications

(45 citation statements)

References 42 publications

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“…Significantly better scores were found in all CHQ domains (except self-esteem) in 306 teens with repair of transposition of the great arteries compared with norms for those without health problems (Culbert et al, 2003). No differences were found between child and parent scores on the PedsQL (Manlhiot et al, 2009).…”

Section: Qol Of Individuals With Chdmentioning

confidence: 74%

“…In three studies, adolescents with mild, moderate, and severe CHD reported significantly lower QoL compared with peers without CHD (Krol et al, 2003;Manlhiot et al, 2009;Spijkerboer et al, 2006). Another study found that only teens with severe heart disease, and not those with mild or moderate heart disease, had significantly lower QoL compared with those without CHDs (Cohen et al, 2007).…”

Section: Qol Of Individuals With Chdmentioning

confidence: 99%

“…Parents of youth born PT reported lower scores on the global health domain of the CHQ compared with parents of youth born at term (Indredavik et al, 2005;Johnson et al, 2003). Two studies (Culbert et al, 2003;Manlhiot et al, 2009) in the CHD population also used the CHQ; however, the findings are difficult to compare because of the different reporting formats used (self-vs. proxy-reports). Studies that used a linear analogue scale (LAS) found that QoL scores were similar (PT; Tideman et al, 2001) or better (CHD; Moons et al, 2006) than healthy controls.…”

Section: Qol Of Individuals With Chdmentioning

confidence: 99%

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Quality of Life of Adolescents and Young Adults Born at High Risk

Dahan‐Oliel

Majnemer

Mazer

2011

Physical & Occupational Therapy In Pediatrics

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Research on quality of life (QoL) of adolescents and young adults born preterm and those with congenital heart disease (CHD) was systematically reviewed, and factors associated with QoL were identified. Forty-five studies met the inclusion criteria for review. Although the majority of studies found that self-reported QoL of adolescents and young adults born preterm did not differ from term controls, several studies reported lower QoL among individuals born preterm, especially those who had additional impairments. Most studies on adolescents and young adults with CHD reported lower QoL compared with healthy peers, which may be in part due to real or perceived physical activity limitations of individuals with CHD. Overall, parents reported that their adolescents born at high risk had a less favorable QoL compared with those who served as controls. Encouraging age-appropriate, safe, and enjoyable physical activity and avoiding unnecessary restrictions and overprotection are considerations for optimizing QoL.

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Section: Qol Of Individuals With Chdmentioning

confidence: 74%

Section: Qol Of Individuals With Chdmentioning

confidence: 99%

Section: Qol Of Individuals With Chdmentioning

confidence: 99%

See 1 more Smart Citation

Quality of Life of Adolescents and Young Adults Born at High Risk

Dahan‐Oliel

Majnemer

Mazer

2011

Physical & Occupational Therapy In Pediatrics

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“…56 Ongoing studies of HRQOL, as patients who have undergone the Fontan procedure age and develop Fontan failure, will be important to guide interventions. Patients with Fontan physiology also report higher levels of depression than healthy controls.…”

Section: Health-related Quality Of Lifementioning

confidence: 99%

Long-term Issues After the Fontan Procedure

McRae

2013

AACN Advanced Critical Care

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The Fontan procedure is used to treat various serious congenital heart defects. Although many people who have had the procedure live productively into adulthood, as they age, they face several health issues due to the physiology of the Fontan circulation. This article reviews the 4 types of Fontan procedures and the changes caused by the surgery, including single-ventricle physiology, nonpulsatile pulmonary perfusion, systemic venous hypertension, and intracardiac scarring, as well as their sequelae. Key nursing assessment items and possible treatment strategies are reviewed. Additional topics, including pregnancy in patients who have undergone the procedure, infective endocarditis prophylaxis, and health-related quality of life, are briefly discussed. Options for Fontan failure, including Fontan conversion or transplantation, are presented. Potential future solutions are outlined.

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“…Physical functional status and physical quality-of-life measures have been shown to be reduced compared with healthy control populations 10 11. Furthermore, data from the ongoing Single Ventricle Trial group have very clearly shown poorer neurodevelopment as measured by the psychomotor development index, motor development index of the Bayley development scores at 14 months 12 13…”

Section: Introductionmentioning

confidence: 99%