Functional Performance in Children with Down Syndrome: Correlations between Social Support and the Quality of Life of Caregivers

Rezende, Luciana Krauss; Caromano, Fátima Aparecida; Carvalho, Sueli Galego de; Sá, Selma Petra Chaves; Barca, Luiz Fernando; Machado, Wiliam César Alves; Assis, Silvana Maria Blascovi de

doi:10.9734/acri/2016/24608

Cited by 3 publications

(1 citation statement)

References 0 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…This situation leads to an initial feeling of shock, especially by the mother, as well as a very large change in mood, as most tend to require additional income to pay for additional therapy [5]. the support received from the surrounding environment has an effect, including the provision of positive social backings, which increases enthusiasm in parenting, strength, the feeling of calmness and not being underestimated and ostracized [6].…”

Section: Introductionmentioning

confidence: 99%

Experiences of mothers of children with Down syndrome

Suza¹,

Napitupulu²,

Hariati³

2020

fmpcr

View full text Add to dashboard Cite

Background. Down syndrome is a genetically occurring chromosomal abnormality, characterized by mild to moderate intellectual impairment, difficulties in verbal and non-verbal communication, as well as disruption in social interactions. In addition, mothers of affected children possess various emotional experiences and must have strategies to provide optimal care in the face some physical and social challenges. Objectives. The aim of this study was to describe the experiences of mothers of children with Down syndrome. Material and methods. This was a qualitative research with a phenomenological approach, and the participants consisted of 10 mothers selected through purposive sampling. In addition, the study was conducted in Binjai, Indonesia, from April to May 2018. Data collection was performed using in-depth interviews with voice recording. Content analysis was adopted using the Collaizi method, and the principle of trustworthiness was subsequently applied. Results. A total of 5 themes were recognized, including 1) having an emotional experience, 2) accepting the child's situation, 3) meeting the needs of children, 4) experiencing obstacles in caring for children and 5) expectation of the mother. Conclusions. The study, based on the experiences of mothers of children with Down syndrome, provides important information for families, health workers and the health service system to enhance understanding of the condition, as well as the appropriate handling techniques. Furthermore, it is also necessary to further investigate the experiences of positive emotions in affected mothers.

show abstract

Section: Introductionmentioning

confidence: 99%

Experiences of mothers of children with Down syndrome

Suza¹,

Napitupulu²,

Hariati³

2020

fmpcr

View full text Add to dashboard Cite

show abstract

Water-based exercise for adults with Down syndrome: Findings from a preliminary study

Pérez

Carral

Costas³

et al. 2018

International Journal of Therapy and Rehabilitation

View full text Add to dashboard Cite

Background/Aims: This pilot study aims to analyse the potential benefits of an aquatic exercise programme on the health-related physical fitness and quality of life of people with Down syndrome, as well as to identify the impact that such a programme might have on the self-perceived quality of life of their parents/caregivers. Methods: A total of 14 adults (mean age 37±7.24 years) carried out an aquatic exercise programme for 3 months. Health-related physical fitness and self-perceived quality of life were assessed by means of the Assessing the Levels of Physical Activity and Fitness battery and the World Health Organization Quality of life Questionnaire, respectively. Findings: No significant impact of the programme was observed on any of the variables tested. Conclusions: There was no evidence to support that water-based exercise might be a useful exercise intervention to improve health-related physical fitness and quality of life in adults with Down syndrome. The self-perceived quality of life of the parents/caregivers did not seem to be affected by this kind of intervention either. Future randomised controlled studies with larger samples are needed to confirm these findings.

show abstract