Functional skills and caregiver assistance of Brazilian children and adolescents with Down syndrome

Moriyama, Cristina Hamamura; Mustacchi, Zan; Pires, Sandra; Massetti, Thaís; Silva, Talita da; Herrero, Dafne; Abreu, Luiz de; Monteiro, Carlos Bandeira de Mello; Leone, Cláudio

doi:10.3233/nre-192763

Cited by 4 publications

(2 citation statements)

References 18 publications

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“…There are several studies examining the factors that can influence child development [9][10][11] . However, the literature on the acquisition of functional skills and caregiver assistance is scarce and mainly focused on children with atypical development [18][19][20] . The child's age was a personal factor while attending daycare and breastfeeding duration were environmental factors that explained the acquisition of functional skills.…”

Section: Discussionmentioning

confidence: 99%

Environmental and personal factors that explain functional abilities and caregiver assistance on children aged 6 to 18 months: a cross-sectional study

Pereira

Santos

Tsopanoglou

et al. 2021

Motriz: rev. educ. fis.

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This study investigated environmental and personal factors that explain functional skills and caregiver assistance in young infants/toddlers. Methods: A cross-sectional study was conducted involving seventy-four children with typical development between 6 and 18 months of age. Functioning skills were evaluated using the Pediatric Evaluation of Disability Inventory, and the home environment was evaluated using the Affordances in the Home Environment for Motor Development-Infant Scale. Statistical analyses were performed by regression models. Results: Child's age explained 45% of self-care (β = 0.68); child's age (β = 0.72), attending daycare (β = 0.33) explained 71% of mobility, and child's age (β = 0.80) and breastfeeding duration (β = 0.17) explained 69% of social function. With regards to caregiver assistance, child's age (β = 0.46), attending daycare (β = 0.20) and number of siblings (β = -0.22) explained 31% of self-care; child's age (β = 0.62) and attending daycare (β = 0.34) explained 56% of mobility; and child's age (β = 1.91) and total AHEMD-IS score (environment) (β = 2.63) explained 30% of social function. Conclusion: Daycare, breastfeeding duration, number of siblings, stimulation at home, and age explained functional skills and caregiver assistance to toddlers/infants.

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Section: Discussionmentioning

confidence: 99%

Environmental and personal factors that explain functional abilities and caregiver assistance on children aged 6 to 18 months: a cross-sectional study

Pereira

Santos

Tsopanoglou

et al. 2021

Motriz: rev. educ. fis.

View full text Add to dashboard Cite

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“…Socioeconomic and regional differences in the quality of and access to healthcare, particularly in the North and Northeast regions, might explain increased death rates (2,3). Furthermore, the government of Brazil has proposed healthcare guidelines for persons with Down syndrome, but compliance remains poor (4). Down syndrome is characterized by anatomic abnormalities and intellectual disabilities.…”

mentioning

confidence: 99%

Risk for Severe Illness and Death among Pediatric Patients with Down Syndrome Hospitalized for COVID-19, Brazil

Leung¹,

Su²,

Silva³

et al. 2023

Emerg. Infect. Dis.

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Not just mortality and morbidity, but also functioning: Opportunities and challenges for Occupational Therapy in the World Health Organization’s Rehabilitation 2030

Richards

Vallée

2020

Can J Occup Ther

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We have entered an exciting era for occupational therapy! In 2017, the World Health Organization (WHO) launched its new initiative in rehabilitation by bringing together stakeholders from a large variety of areas to create a new rehabilitation vision. In order to build consensus, create a realistic action plan, and gain the commitment of various stakeholders, WHO organized two meetings (in 2017 and 2019). Ministers of Health, educators, researchers, journal editors, non-profit organizations, program and research funders, and consumers were invited to comment and validate the directions prioritized by WHO. Occupational therapy was represented throughout this process by several entities, such as the World Federation of Occupational Therapists, the American Journal of Occupational Therapy, the Canadian Journal of Occupational Therapy, the Scandinavian Journal of Occupational Therapy, and several occupational therapist researchers. The objectives of this initiative can be summarized as: (a) creating strong leadership and political support for rehabilitation; (b) improving rehabilitation planning, implementation, governance, and investment; (c) expanding high-quality rehabilitation workforce and services; (d) enhancing rehabilitation data collection; and (d) building research capacity and expanding the availability of quality evidence for rehabilitation (WHO, 2019). Why Rehabilitation? Why Now? Health and demographic trends are changing globally. The world's population is aging, with more people in the later years of life than those under 24 years of age by 2050 (United Nations, Department of Economic and Social Affairs, Population Division, 2017). Aging is associated with increasing risk of disability (Gregory & Fried, 2003; U.S. Government Printing Office, 2016). In addition, the prevalence of noncommunicable diseases is increasing (World Health Organization [WHO], 2018a). Non-communicable diseases remain the leading cause of death in the world (WHO, 2018b). However, equally important, they often result in many years of decreased functioning and occupational engagement. In addition, advancements in acute medical care has reduced the possibility of death from many health conditions, such as stroke (Kunst et al., 2011; Seminog et al., 2019). Thus, the number of individuals with disabling conditions has risen considerably in this century (GBD 2015 Disease and Injury Incidence and Prevalence Collaborators, 2016). Currently it is estimated that over a billion people, or about 15% of the global population, live with a disability, and these numbers are expected to grow (WHO, 2011). Such disability produces

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Functional skills and caregiver assistance of Brazilian children and adolescents with Down syndrome

Cited by 4 publications

References 18 publications

Environmental and personal factors that explain functional abilities and caregiver assistance on children aged 6 to 18 months: a cross-sectional study

Environmental and personal factors that explain functional abilities and caregiver assistance on children aged 6 to 18 months: a cross-sectional study

Risk for Severe Illness and Death among Pediatric Patients with Down Syndrome Hospitalized for COVID-19, Brazil

Not just mortality and morbidity, but also functioning: Opportunities and challenges for Occupational Therapy in the World Health Organization’s Rehabilitation 2030

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