Future goals of adolescents and young adults with chronic musculoskeletal pain

Stommen, N.C.; Verbunt, Jeanine; Goossens, Mariëlle E. J. B.

doi:10.1002/ejp.762

Cited by 11 publications

(8 citation statements)

References 37 publications

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“…Thus, chronic pain can significantly disrupt the development of children and adolescents and hamper the pursuit of personal goals [5–7]. Paradoxically, at the same time, many youngsters with chronic pain are able to live adaptively and pursue personal goals, in spite of experiencing chronic pain [3, 6, 8, 9]. An important question to consider, then, is why some children and adolescents are able to live adaptively and to continue pursuing their personal goals in spite of their chronic condition, while others are not.…”

Section: Introductionmentioning

confidence: 99%

Topical Review: Basic Psychological Needs in Adolescents with Chronic Pain—A Self-Determination Perspective

Riggenbach

Goubert

Petegem

et al. 2019

Pain Research and Management

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This topical review outlines the resilience pathway to adaptive functioning in pediatric pain within a developmental perspective. Self-Determination Theory proposes that the satisfaction of one's basic psychological needs (for autonomy, relatedness, and competence) is crucial for understanding human flourishing and healthy development. However, the role of the basic psychological needs received little attention in a pediatric-pain population. Yet, we propose that need satisfaction may be a resilience factor and need frustration a risk factor, for living with chronic pain. In this topical review, we first discuss two major models that have been developed to understand pain-related disability: the fear-avoidance model of pain and the ecological resilience-risk model in pediatric chronic pain. Both models have been used with children and adolescents but do not include a developmental perspective. Therefore, we introduce Self-Determination Theory and highlight the potentially moderating and mediating role of the basic needs on pain-related disability in children and adolescents. Taken together, we believe that Self-Determination Theory is compatible with the fear-avoidance model of pain and the ecological resilience-risk model in pediatric chronic pain and may deepen our understanding of why some adolescents are able to live adaptively in spite of chronic pain.

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Section: Introductionmentioning

confidence: 99%

Topical Review: Basic Psychological Needs in Adolescents with Chronic Pain—A Self-Determination Perspective

Riggenbach

Goubert

Petegem

et al. 2019

Pain Research and Management

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show abstract

“…29 This is described as a time where emotional stability is not yet established. 32 The identified future goals of adolescents and YAs with chronic musculoskeletal pain when compared with those without pain showed little difference despite the identification of greater levels of goal frustration (Stommen et al, 2015). 47 The latter is possibly connected with a perception of being unable to engage in normative developmental tasks.…”

Section: Discussionmentioning

confidence: 99%

Growing pains: understanding the needs of emerging adults with chronic pain

Twiddy

Hanna

Haynes

2017

British Journal of Pain

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Background: Emerging adulthood (18-30 years), in the Western world, is often a time of identity development and exploration, focusing on areas of work, relationships and education. Individuals with chronic illnesses, such as chronic pain, may be more vulnerable to facing challenges during this time. This study aims to investigate the needs of young adults (YAs) attending a tertiary level National Health Service (NHS) Pain Management Programme (PMP) Service in the United Kingdom; exploring how these needs may translate on to clinical assessment and the delivery of rehabilitation interventions. Method: This is a descriptive qualitative study influenced by phenomenological approaches. YA with a diagnosis of chronic pain were recruited and assigned to one of four focus groups facilitated by a clinical psychologist and occupational therapist. A semi-structured interview guide was used to help facilitate the group discussion. Results: Qualitative analysis identified four key themes in understanding the needs of YAs with chronic pain: (1) thwarted opportunities, (2) peer separation, (3) perceived illness validity in the context of age and (4) dependency/parental enmeshment. Conclusions:The emerging adulthood literature provides a valuable framework for examining a normal developmental trajectory and highlights the relevance of age-related processes in YAs with chronic pain. The idealisation of opportunity and the role of perception in this developmental phase both appear relevant. It is significant that emotional stability is not yet established in emerging adulthood and links to unhelpful management strategies that may be differentiated from older populations are identified.

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“…However, adolescents with musculoskeletal pain reported higher frustration with goals pertaining to personal values, social acceptance, self-acceptance, and health compared with adolescents without musculoskeletal pain. In both studies, increased goal frustration was associated with higher depression and lower quality of life [19,20]. These findings suggest that, while there are few differences in adolescent perceptions of goal importance, there seems to be a relationship between higher goal frustration and poorer well-being.…”

Section: An Overview Of Goals Goal Achievement and Goal Frustrationmentioning

confidence: 92%

“…Two studies have investigated goal frustration in youth with chronic pain, one including youth with and without headaches [19] and one including youth with and without musculoskeletal pain [20]. In both studies, youth rated goal importance and frustration on six categories including personal values, social acceptance, self-acceptance, school, health, and self-development.…”

Section: An Overview Of Goals Goal Achievement and Goal Frustrationmentioning

confidence: 99%

“…Stommen, Verbunt, and Goossens [20] similarly found no significant differences in how adolescents allocated the importance of goals between those with and without musculoskeletal pain. However, adolescents with musculoskeletal pain reported higher frustration with goals pertaining to personal values, social acceptance, self-acceptance, and health compared with adolescents without musculoskeletal pain.…”

Section: An Overview Of Goals Goal Achievement and Goal Frustrationmentioning

confidence: 99%

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Goal Pursuit in Youth with Chronic Pain

Fisher

Palermo

2016

Children

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Children and adolescents frequently experience chronic pain that can disrupt their usual activities and lead to poor physical and emotional functioning. The fear avoidance model of pain with an emphasis on the maladaptive behaviors that lead to activity avoidance has guided research and clinical practice. However, this model does not take into consideration variability in responses to pain, in particular the active pursuit of goals despite pain. This review aims to introduce a novel conceptualization of children’s activity engagement versus avoidance using the framework of goal pursuit. We propose a new model of Goal Pursuit in Pediatric Chronic Pain, which proposes that the child’s experience of pain is modified by child factors (e.g., goal salience, motivation/energy, pain-related anxiety/fear, and self-efficacy) and parent factors (e.g., parent expectations for pain, protectiveness behaviors, and parent anxiety), which lead to specific goal pursuit behaviors. Goal pursuit is framed as engagement or avoidance of valued goals when in pain. Next, we recommend that research in youth with chronic pain should be reframed to account for the pursuit of valued goals within the context of pain and suggest directions for future research.

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Future goals of adolescents and young adults with chronic musculoskeletal pain

Cited by 11 publications

References 37 publications

Topical Review: Basic Psychological Needs in Adolescents with Chronic Pain—A Self-Determination Perspective

Topical Review: Basic Psychological Needs in Adolescents with Chronic Pain—A Self-Determination Perspective

Growing pains: understanding the needs of emerging adults with chronic pain

Goal Pursuit in Youth with Chronic Pain

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