Aims ULH commenced trust-wide epilepsy clinics in January 2020. Formerly lacking an infrastructure for epilepsy service, accurate data regarding workload and patient characteristics were unavailable. A detailed database was created for meaningful quantification of service needs, 1 2 risk assessment, outcome measurement and to develop pathways towards a complete service. 3 Methods Population 308 patients referred to epilepsy clinic in ULH were included in the database( Refferal criteria: patients age less than 2, focal seizures, unresponsive to medications, diagnostic difficulties Method Demographic data, diagnosis of epilepsy as per ILAE classification( 2017), aetiology, information about treatment, follow up in tertiary centres ( under Paediatric neurologists or epilepsy surgery centre), input by epilepsy nurses, co morbidities community paediatric and CAMHS support were collected for each patient and incorporated in to a data base of alphabetical order. Results Age groups <2years, 2-16 years and >16 years had 29, 255 and 24 patients respectively. 114( 37%) patients have a confirmed syndromic diagnosis, 22 of them being epileptic encephalopathies. 79 patients have focal seizures as part of symptomatology. 5 have confirmed diagnosis of NEAD.29 patients have identified genetic aetiology ( 16 Chromosomal abnormalities, 13 single gene defects, 5 SCN1A mutations, 3 tuberous sclerosis).66 patients have structural brain abnormalities (21 prematurity related brain damage,14 hypoxic and 6 hypoglycemic, 7 CNS infection related brain injuries 2 term IVH, 8 strokes and 8 patients with brain malformations or cortical dysplasia.119 patients (38%) were on 2 or more medications. 9 ketogenic diet, 7 have VNS and 20 patients evaluated in epilepsy surgical pathway.114 (37%) patients are already followed up in a tertiary centre.53 patients have diagnosis for autism, 24 with ADHD, 63 with leaning difficulties, 44 with developmental delay, further 29 with isolated motor or speech delay, and 10 with severe visual and/or hearing impairment. 114 (37%) had community paediatric input. Only 6 had CAMHS input. Despite many more patients reporting psychological symptoms, quantifying mental health need was difficult.
ConclusionOutcome An interim pathway was developed based on this capacity and demand data. Epilepsy nursing team of 2 and neurology out reach clinics established. A long-term roadmap for a comprehensive epilepsy service including a community based nursing team and transition service are planned. The need for a standard screening tool to quantify mental health need was recognised. Limitations Of the 800 epilepsy patients in Lincolnshire, only patients referred to epilepsy clinic are included and above statistics may not directly apply to the remaining 500 patients Abstracts A232