Gaps in the System: Supporting People Living with Dementia

The Social Construction of Dementia: Implications for Healthcare Experiences of Caregivers and People Living with Dementia

“…Of significance, participants were recruited from programs deemed innovative to meet the complex needs of individuals living with dementia and their caregivers. 14 This research offers a unique opportunity to highlight the experiences of these individuals and has identified that despite accessing programs aiming to improve care experiences for these individuals, there remains systematically embedded cultural climate impacting care experiences. Exploring these nuances from a health service research perspective is innovative and offers an opportunity for future research that drives quality improvement and policy reform efforts.…”

“…Further details about the parent study have been previously published. 14 Three authors (authors #1, 2, & 3) were involved in the data analysis process. Consistent with Braun and Clark's framework, reflexive thematic analysis (RTA) was used to derive findings from the interview transcripts.…”

“…1,12,13 This study is secondary analysis of a larger study investigating dementia interventions in North America, findings from which have been published elsewhere. 14 During the early stages of the inductive analysis of the larger study, it became evident, through the stories of the participants, that how dementia is perceived was playing a role in shaping care experiences, which inspired a qualitative secondary analysis (QSA) on a subset of the data, the purpose of this study. Using QSA, this study investigates how the social construction of dementia impacts the experiences of caregivers and people living with AD/ADRD when interacting with health and social care services.…”