Gaps in Understanding the Experiences of Homecare Workers Providing Care for People with Dementia up to the End of Life: A Systematic Review

D’Astous, Valerie; Abrams, Ruth; Vandrevala, Tushna; Samsi, Kritika; Manthorpe, Jill

doi:10.1177/1471301217699354

Cited by 31 publications

(55 citation statements)

References 34 publications

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“…6,30 In the current study, the lack of homecare worker peer support was mentioned as a concern. 6,30 In the current study, the lack of homecare worker peer support was mentioned as a concern.…”

Section: Discussionmentioning

confidence: 79%

“…6,36 In this paper, we report findings related specifically to challenges and their impact experienced by homecare workers, as well as the sources of support they both used and needed. Given the unpredictable nature and trajectory of dementia, and the challenge with specifying when end of life is approaching, in the current study "end of life" is conceptualised as the "last years of life."…”

Section: Aimsmentioning

confidence: 99%

“…The interview schedule was developed by the researchers following a systematic review of the literature 6 but unanticipated domains of experience and reflection that were important to them.…”

Section: Key Pointsmentioning

confidence: 99%

“…6,30 Many report encountering risks relating to their personal safety 27,29 and maintaining professional boundaries. 6,30 Many report encountering risks relating to their personal safety 27,29 and maintaining professional boundaries.…”

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confidence: 99%

“…12, 27 Soini and Vlimki 25 observed that homecare workers may experience escalating physical, mental, and emotional demands when providing care for older people with deteriorating health condition and complex care needs. 6 Even where homecare agencies offer support to their employees, little research has explored what might be the most effective elements of such support. 33,34 While family carers of people with dementia may experience high stress levels and exhaustion, 35 little is known about homecare workers' experience of providing care for older people with dementia who are approaching death.…”

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confidence: 99%

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Constituents of effective support for homecare workers providing care to people with dementia at end of life

Yeh

Samsi

Vandrevala

et al. 2018

Int J Geriat Psychiatry

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Objective The aim of this study was to enhance understanding about homecare workers providing care to people with dementia at end of life by exploring homecare workers' perceptions of challenges and the support they needed and sometimes received. Methods Qualitative semi‐structured interviews were conducted with 29 homecare workers and 13 homecare managers in England. Framework analysis was used to analyse the data. Findings Four overarching challenges were identified: working with clients with dementia, including clients' sometimes unpredictable responses, communication difficulties, and mood changes; caring for the dying; conflict with family members; and working alone, which often left homecare workers at risk of exhaustion, fatigue, and a sense of isolation. When their work entailed high levels of emotion, such as a client's death or getting embroiled in a client's family conflict, they felt emotionally drained, under‐prepared, and overwhelmed. Supportive elements include receiving encouragement and learning from experienced peers and their feelings being acknowledged by managers at their employing homecare agency. Some workers were offered time off or encouraged to attend the client's funeral as a means of supporting the process of bereavement. Conclusions Peer and manager support are essential and effective in coping with work pressures. There is a need to develop models of effective support to alleviate staff's practical, emotional, and interpersonal pressures. However, due to the isolating nature of homecare work, managers may not recognise early signs of their staff finding stress unmanageable and miss the opportunity to mitigate these negative effects.

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Section: Discussionmentioning

confidence: 79%

Section: Aimsmentioning

confidence: 99%

Section: Key Pointsmentioning

confidence: 99%

mentioning

confidence: 99%

mentioning

confidence: 99%

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Constituents of effective support for homecare workers providing care to people with dementia at end of life

Yeh

Samsi

Vandrevala

et al. 2018

Int J Geriat Psychiatry

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Determinants of violence towards care workers working in the home setting: A systematic review

Phoo

Reid

2022

American J Industrial Med

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Background: Home care is a rapidly growing industry. Violence towards home care workers is common, while also likely underreported. This violence adversely affects the physical and mental health of both workers and care recipients. The current study aims to identify and appraise recent evidence on the determinants of violence towards care workers working in the home setting.Methods: Six electronic databases: the Cumulative Index to Nursing and Allied Health Literature (CINAHL), EMBASE, Informit, Medline, PsycINFO, and Web of Science, were systematically searched. A systematic review was conducted in accordance with the Joanna Briggs Institute manual for evidence synthesis.Results: A total of 18 papers met the inclusion criteria. All were cross-sectional surveys. The majority of studies were from the United States. The most commonly investigated associations were those between the medical history of clients, workers' apprehension of violence, worker-client relationship, or care plans, and any form of violence or verbal abuse. Conclusion:Violence was common in clients with cognitive disorders, substance abuse disorder, and limited mobility; toward workers who feared that violence might happen; toward those who had very close or very distant worker-client relationships; and when care plans were not inclusive of clients' needs. The current review highlights a gap in evidence on determinants of violence towards care workers working in the home setting, and suggests potential areas to be addressed to reduce such violence.

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[O5–02–06]: ‘Working to the End’: Experiences of the Home Care Workforce Providing End‐of‐life Care

Samsi

Manthorpe

Vandrevala³

et al. 2017

Alzheimer's & Dementia

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Gaps in Understanding the Experiences of Homecare Workers Providing Care for People with Dementia up to the End of Life: A Systematic Review

Cited by 31 publications

References 34 publications

Constituents of effective support for homecare workers providing care to people with dementia at end of life

Constituents of effective support for homecare workers providing care to people with dementia at end of life

Determinants of violence towards care workers working in the home setting: A systematic review

[O5–02–06]: ‘Working to the End’: Experiences of the Home Care Workforce Providing End‐of‐life Care

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