Gender and Cancer Support Group Participation

Krizek, Claudette; Roberts, Chris; Ragan, Robin; Ferrara, Jeffrey J.; Lord, Beth

doi:10.1046/j.1523-5394.1999.07206.x

Cited by 134 publications

(98 citation statements)

References 31 publications

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“…In a surveyed sample of patients with prostate cancer, only 13% participated in support group meetings, compared with 33% of women with breast cancer. 42 In addition, patients who actually attended support groups tended to be better educated and more affluent than the general population of men with prostate cancer. Whether time constraints or a lack of counseling limits access to support groups among low-income patients, the general population of men with prostate cancer needs more information regarding the benefit and availability of prostate cancer support groups.…”

Section: Discussionmentioning

confidence: 99%

Partnership status influences quality of life in low‐income, uninsured men with prostate cancer

Gore

Krupski

Kwan

et al. 2005

Cancer

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Objectives: We investigate sex differences in frequencies of adults eating in a foraging population—the Hadza of Tanzania. Methods: We use eating frequency data from instantaneous scan observations of the Hadza, to see to how much sharing of foods taken back to camp compensates for the targeting of different foods by each sex while out foraging. Results: Eating in camp differs by sex in terms of overall eating frequency, as well as in terms of diet composition (frequencies of eating each food type). We also control for sex‐differences in time spent in camp and still find sex‐differences in eating frequencies—women are observed eating significantly more frequently than men. There are also sex‐differences in the eating frequencies of particular food types both with and without controlling for presence in camp. Finally, we use data on acquisition of each food type by sex and find that both sexes are more frequently observed eating women's foods in camp than men's foods. Conclusions: At least in the case of the Hadza, we see pronounced sex differences in the in‐camp diet. Hadza men are eating a higher quality diet than are women, but women are able to eat far more frequently, and spend less time foraging than men. It is not yet clear whether a regular caloric intake of lower quality foods would be more beneficial for maintaining fecundity than a more variable diet consisting of higher quality foods. Am. J. Hum. Biol. 2011. © 2011 Wiley‐Liss, Inc.

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Section: Discussionmentioning

confidence: 99%

Partnership status influences quality of life in low‐income, uninsured men with prostate cancer

Gore

Krupski

Kwan

et al. 2005

Cancer

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“…Other reasons for poor attendance included low perceived need for support, fear of stigmatization, the need to minimize the threat of illness to aid coping, practical necessities in the workplace, and the desire to avoid burdening others (Gray et al, 2000). Men's misperception that the meetings were geared toward emotional support of the terminally ill (Krizek et al, 1999) and health care professionals' lack of awareness of PCSGs (Smith et al, 2002) have also been identified as barriers to men attending support groups.…”

mentioning

confidence: 99%

How Prostate Cancer Support Groups Do and Do Not Survive: British Columbian Perspectives

et al. 2007

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). Research to date has demonstrated that men have prostate-specific and general health needs across the entire illness trajectory, and a growing body of empirical evidence indicates that psychosocial support and health and illness information are integral to the well-being of men who have prostate cancer. Increasingly, community-based support services such as prostate cancer support groups (PCSGs) have emerged as resources for men and their families to deal with the challenges of living with prostate cancer.PCSGs are relatively recent phenomena in several countries and are more common in North America than the rest of the world (Coreil & Behal, 1999;Visser, Riemens, Van der Jagt, Vingerhoets, & Voerman, 2001). Canadian-based PCSGs began in the early 1990s in urban centers, and two British Columbian (BC; Vancouver and Victoria) groups were among the first to operate. Since that time, the number of PCSGs has grown to 31 in BC and 118 P rostate cancer is the most common malignancy among men in Western society (Schiff & Mulhall, 2005) and results in diverse psychosocial and health issues for survivors and their families. There is evidence about the associated challenges and effects of prostate cancer and its treatments on quality of life (Kirschner-Hermanns & Jakse, 2002;Palmer, Fogarty, Somerfield, & Powel, 2003) Many prostate cancer support groups (PCSGs) have formed in North America during the past decade, yet their operation or factors influencing sustainability are poorly understood. This article reports micro (intragroup), meso (intergroup), and macro (group/structure) analyses drawn from the fieldwork and participant observations conducted for an ethnographic study of PCSGs based in British Columbia, Canada. The findings indicate that effective group leadership is integral to group sustainability and the recruitment and retention of attendees. At the meso level, intergroup connections and communication were often informal; however, the primary purpose of all the PCSGs was to provide information and support to men and their families. Many PCSGs were uncertain how formal associations with cancer fund-raising societies would influence group effectiveness. Macro issues such as prostate cancer activism resided with individual group "champions" through activities coordinated by provincial and national PCSG organizations. However, activism did not guarantee group sustainability. The study findings reveal why some groups flourish while others appear untenable, and form the basis for discussion about how PCSG sustainability might be best achieved.

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“…Most likely, the lack of men in the PBC support group is due to the fact that the disease occurs predominantly in women. Research has shown, however, that men with chronic diseases are much less likely to join support groups (24).…”

Section: Discussionmentioning

confidence: 99%

Functional status of patients with primary biliary cirrhosis

Parikh-Patel¹

2002

The American Journal of Gastroenterology

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OBJECTIVES-Although autoimmune diseases can have a significant impact on the quality of life, there has been a relative paucity of data with respect to the functional status of patients with primary biliary cirrhosis (PBC).METHODS-We conducted a case-control study of 182 patients ("cases") with PBC as well as 225 age-and sex-matched friend control subjects using a standardized instrument obtained from the National Health and Nutrition Examination Survey.RESULTS-In all, 126 of 182 cases (69%) and 141 of 225 friend controls (62.6%) responded to this survey, a response rate comparable to or better than in similar previous studies of such instruments. Patients with PBC had a significantly reduced functional status score compared to their controls (p < 0.001). Interestingly, a lower level of education and the presence of arthritis and hypertension were significantly associated with these lower levels of functional capabilities. These data were subjected to multivariate analysis and confirmed. Age was not associated with impaired functional status in either the patients or controls.CONCLUSIONS-Studies of this nature have potential implications for the well-being and management of patients with PBC, and focus on issues that can be addressed to help maintain functional status in this chronic disease.

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Gender and Cancer Support Group Participation

Cited by 134 publications

References 31 publications

Partnership status influences quality of life in low‐income, uninsured men with prostate cancer

Partnership status influences quality of life in low‐income, uninsured men with prostate cancer

How Prostate Cancer Support Groups Do and Do Not Survive: British Columbian Perspectives

Functional status of patients with primary biliary cirrhosis

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