General practitioner perspectives on a shared-care model for paediatric patients post-intensive care: A cross-sectional survey

Matuschka, Lori; Hilder, Amie; Newcomb, Dana; Webb, Kerri-Lyn; Best, James; Stöcker, Christian; Long, Debbie

doi:10.1016/j.aucc.2022.07.007

Cited by 7 publications

(11 citation statements)

References 32 publications

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“…The findings and limitations in this pilot study are similar to a recent study of primary care PICU follow-up in Australia ( 9 ). Both studies reported low awareness of PICS-P, with only 20% aware in the Australian study ( 9 ). Both studies noted follow-up barriers.…”

Section: Discussionsupporting

confidence: 85%

“…The limitations and findings of this pilot study and prior work highlight three areas that could enhance future research on primary care PICU follow-up (1,2,(7)(8)(9).…”

Section: Discussionmentioning

confidence: 93%

“…Both studies also likely oversampled providers who regularly saw post-PICU patients and were likely motivated to participate (9). Further, both studies were single-centered survey studies, which only provided narrow data on local follow-up needs (9). The limitations and findings of this pilot study and prior work highlight three areas that could enhance future research on primary care PICU follow-up (1,2,(7)(8)(9).…”

Section: Discussionmentioning

confidence: 99%

“…The third area, supporting primary care providers’ needs, could be addressed by system-based interventions (1, 2, 7–10). Post-PICU knowledge gaps could be tackled with PICS-P education programs that are codeveloped with primary care providers.…”

Section: Discussionmentioning

confidence: 99%

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Impression of Primary Care Follow-Up After a PICU Admission: A Pilot Survey of Primary Care Pediatricians

Harris-Kober,

Motzel,

Grant

et al. 2024

Critical Care Explorations

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OBJECTIVES: The majority of PICU general follow-up occurs with primary care providers. Our objective was to investigate primary care pediatricians’: 1) comfort with and barriers to caring for children after a PICU admission, 2) knowledge of and screening for post-intensive care syndrome in pediatrics (PICS-P), and 3) resource needs. DESIGN: Pilot cross-sectional survey study. SETTING: Metropolitan Detroit, Michigan from September 2022 to March 2023. SUBJECTS: Primary care pediatricians. MEASUREMENT AND MAIN RESULTS: The survey included 15 questions on provider demographics, comfort with and barriers to caring for children after a PICU admission, knowledge of and screening practices for PICS-P, and resource needs. The median values for continuous data and frequencies for categorical data were calculated. The survey response rate was 17% (26/152). The median age was 38.5 years (interquartile range 34–52 yr) and 19 of 26 (73%) were female. In case studies, 26 of 26 (100%) were “very comfortable” resuming care for a patient with a straightforward bronchiolitis PICU admission while 8 of 26 participants (31%) were “somewhat uncomfortable” and 1 of 26 (4%) was “not at all comfortable” with caring for a patient after a complex acute respiratory distress syndrome PICU admission. Seven of 26 participants (27%) were familiar with the term “post-intensive care syndrome in pediatrics.” Over 50% screened for four of five PICS-P domains. Key barriers were care coordination with specialists, discomfort or difficulties with managing new home equipment, and inadequate or missing documentation. CONCLUSIONS: In this pilot study, approximately one-third of primary care pediatricians had knowledge of PICS-P. Participants experienced numerous care barriers. Our findings suggest future research could engage improved study methods and designs, and focus on interventions to support primary care-provided PICU follow-up.

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Section: Discussionsupporting

confidence: 85%

“…The limitations and findings of this pilot study and prior work highlight three areas that could enhance future research on primary care PICU follow-up (1,2,(7)(8)(9).…”

Section: Discussionmentioning

confidence: 93%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

See 2 more Smart Citations

Impression of Primary Care Follow-Up After a PICU Admission: A Pilot Survey of Primary Care Pediatricians

Harris-Kober,

Motzel,

Grant

et al. 2024

Critical Care Explorations

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“…Intensive care clinicians could partner with allied health and developmental pediatricians as well as primary care providers to ensure tailored and meaningful follow-up and care, including the use of patient reported outcome measures [ 153 , 154 , 155 , 156 , 157 ]. Engaging with pediatric colleagues and primary healthcare providers to assist with follow-up support will require a review of the essential elements of PICU discharge summaries and communication to ensure a clear understanding of the risks of post-intensive care syndrome to the child and family, not just a summary of medical treatment provided [ 158 ]. Consideration of integrative systems that allow meaningful follow-up as required, based on the child’s risk profile and testing are crucial to not only record the currently under recognized health care burden, but also allow early intervention and improved outcomes.…”

Section: Approaches To Reducing the Burden Of Adverse Childhood Hospi...mentioning

confidence: 99%

Brain-Directed Care: Why Neuroscience Principles Direct PICU Management beyond the ABCs

et al. 2022

Self Cite

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Major advances in pediatric intensive care (PICU) have led to increased child survival. However, the long-term outcomes among these children following PICU discharge are a concern. Most children admitted to PICU are under five years of age, and the stressors of critical illness and necessary interventions can affect their ability to meet crucial developmental milestones. Understanding the neuroscience of brain development and vulnerability can inform PICU clinicians of new ways to enhance and support the care of these most vulnerable children and families. This review paper first explores the evidence-based neuroscience principles of brain development and vulnerability and the impact of illness and care on children’s brains and ultimately wellbeing. Implications for clinical practice and training are further discussed to help optimize brain health in children who are experiencing and surviving a critical illness or injury.

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Pediatric Post–Intensive Care Syndrome and Current Therapeutic Options

Williams,

Pinto,

Colville

2025

Critical Care Clinics

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General practitioner perspectives on a shared-care model for paediatric patients post-intensive care: A cross-sectional survey

Cited by 7 publications

References 32 publications

Impression of Primary Care Follow-Up After a PICU Admission: A Pilot Survey of Primary Care Pediatricians

Impression of Primary Care Follow-Up After a PICU Admission: A Pilot Survey of Primary Care Pediatricians

Brain-Directed Care: Why Neuroscience Principles Direct PICU Management beyond the ABCs

Pediatric Post–Intensive Care Syndrome and Current Therapeutic Options

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