General State of Health and Psychological Well-Being in Patients after Surgery for Urological Malignant Neoplasms

Ficarra, Vincenzo; Righetti, Renato Fraga; D’Amico, Anthony V.; Pilloni, Stefania; Balzarro, Matteo; Schiavone, D.; Malossini, G.; Mobilio, G.

doi:10.1159/000064857

Cited by 92 publications

(65 citation statements)

References 13 publications

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“…Further to this, Ficarra et al noted that the accuracy of information given to men before treatment and their subsequent expectation of the impact of the surgery can influence management of the disease (Ficarra et al, 2000). The interplay of these findings within the context of men within our study may go some way to explain why several men reacted with shock at seeing results of the surgery.…”

Section: Discussionmentioning

confidence: 52%

“…Contrasting this, Ficarra et al's. crosssectional study of health and psychological well-being in patients who experienced surgery for urological malignant neoplasms found patients receiving more mutilating treatments were most likely to have impairment of their general state of health and psychological well-being compared to controls (Ficarra et al, 2000, Maddineni et al, 2009. Some indication has been provided on the importance of context when looking at men's impaired sexual function, highlighting the role of methods used, culture and education as potentially contributing to the differences in research findings such as those referenced above (Romero et al, 2005, D'Ancona et al, 1997.…”

Section: Discussionmentioning

confidence: 99%

“…Whilst effective, surgical treatments may have a profound impact on form and function of the penis (Branney et al, 2011, Maddineni et al, 2009), which in turn can impact on self-image and mental well-being (Romero et al, 2005, Ficarra et al, 2000, Bullen et al, 2010.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

The impact of surgical treatment for penile cancer – Patients' perspectives

Witty¹,

Branney²,

Evans³

et al. 2013

European Journal of Oncology Nursing

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Purpose: Penile cancer is a rare but highly treatable condition. Whilst over 80% survive for over five years, treatment can have a significant impact on quality of life. There has been little research conducted to date on men's experiences of treatment for penile cancer; The Patients Experiences of Penile Cancer study (PEPC) aimed to redress this shortfall by exploring men's experiences of surgical treatment for penile cancer.Method: Data were collected using two methods; an initial narrative oral history followed by a semistructured interview. Maximum variation sampling was used to acquire the widest possible range of experiences. Twenty-seven interviews were conducted with men with an average age of 63 years at diagnosis (range = 41 -82). The data were analysed using constant comparison analysis. Results:The physical impact of surgery was inter-connected with broader events in the lives of the men experiencing treatment. These experiences cover urinary function, sexual function and sexual relationships, healing and recovery, masculinity, mental well-being, coping and support. Conclusions:A key area for the development of care is to devise and evaluate procedures for ensuring that men are well-informed about the extent and potential consequences of their treatment. Men's experiences of penile cancer surgery will be informed by a complex web interlaced with their broader life making it difficult for health professionals to judge how surgery will impact on a men presenting to them. Further research is required to ascertain the most appropriate strategies for rehabilitation of men experiencing penile cancer surgery.

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Section: Discussionmentioning

confidence: 52%

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

The impact of surgical treatment for penile cancer – Patients' perspectives

Witty¹,

Branney²,

Evans³

et al. 2013

European Journal of Oncology Nursing

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“…The standard treatment is to surgically remove the primary tumour; the extent of the excision is determined by the size and staging of the cancer (Pizzocaro et al, 2010). Whilst treatment is usually effective, the physical and psychological effects can be profound (Opjordsmoen and FossÅ, 1994), impacting not only on the form and function of the penis (Maddineni et al, 2009, Branney et al, 2011 but also on the self-image and mental well-being of those receiving treatment (Ficarra et al, 2000, Romero et al, 2005, Bullen et al, 2010.…”

Section: Penile Cancer and The Pepc Studymentioning

confidence: 99%

Engaging men with penile cancer in qualitative research: reflections from an interview-based study

et al. 2014

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Aims: To explore the challenges of engaging men with penile cancer in qualitative interview research. Background:Qualitative interviewing offers an ideal tool for exploring men's experiences of illness, complementing and providing context to gendered health inequalities identified within epidemiological research on men. But, conducting interview research with men can be challenging and with limited practical, gender sensitive guidance for researchers, embarking on a qualitative interview study with men can feel like a daunting task. Reflecting on a researcher's experience of conducting qualitative research on men with penile cancer, the current paper explores the potential challenges of interviewing this group of men, but also documents how engagement and data collection was achieved.Review methods: This is a reflective paper, informed by the experiences of a male researcher with no nurse training, conducting 27 interviews with men who have been treated for penile cancer. Researcher experience is reported in chronological order, from the methodological challenges of recruitment to those of conducting the interview itself. Conclusion:Engaging men with penile cancer in a qualitative interview study raises practical, methodological, ethical and emotional challenges for the researcher, however, in reflecting on interviews conducted with men who have received treatment for penile cancer the authors challenge false assumptions that men will not talk about their ill health.Methodological procedures must enable an open and on-going dialogue with clinical 2 gatekeepers and potential participants to promote engagement. Emotional and practical support from colleagues is an essential for any interviewer, no matter how experienced.Implications for practice/research: The paper offers a resource for the novice researcher, highlighting some advantages and disadvantages of conducting qualitative interview research in a nurse researcher role as well as recommendations on how to overcome key challenges.

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“…There were 5 borderline studies (across 8 publications [11][12][13][14][15][16][17][18] ) from 4 countries (see Table 1). Each borderline study combined interviews with psychometric measures, and such research could potentially be included in a qualitative synthesis.…”

Section: Search Outcomementioning

confidence: 99%

Clinical practice as research for a rare condition: systematic research review of qualitative research exploring patients’ experiences of penile cancer

Branney

Raine²,

Witty³

et al. 2013

Clinical Nursing Studies

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Background: Penile cancer is a rare but destructive malignancy. The aim of this study was to identify published qualitative research exploring patients' experiences of being diagnosed and treated for penile cancer. As only one study met our inclusion criteria and yet there were five borderline studies, a secondary aim that emerged was to discuss those studies to see what, if anything, we could learn. Methods:We searched ASSIA, CINAHL, EMBASE, PUBMED/MEDLINE, PsycINFO & Web of Science and found 313 papers published since 1990. Two reviewers independently selected 17 papers for potential inclusion using titles and abstracts, which were obtained and independently assessed. A synthesis was not possible as only one study met our inclusion criteria. Five borderline studies, covering 4 countries, invited closer inspection because they are often reported in guidelines on penile cancer. Results:The 5 borderline studies reported using a mixed methods design combining a psychometric measure with interviews. Unfortunately, none of these studies reported the method or process used for analysing qualitative data or for integrating the interview and psychometric findings, making it difficult to understand the interview element of their research. Conclusions:If we are to understand and improve the long-term consequences of treatment for penile cancer, qualitative studies of patients' experiences need to be conducted with high quality analysis and reporting. While pen-and-paper questionnaires may take up little of the time of clinicians conducting research about rare conditions, time could be better used by using methodologies that explore patients experiences.

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General State of Health and Psychological Well-Being in Patients after Surgery for Urological Malignant Neoplasms

Cited by 92 publications

References 13 publications

The impact of surgical treatment for penile cancer – Patients' perspectives

The impact of surgical treatment for penile cancer – Patients' perspectives

Engaging men with penile cancer in qualitative research: reflections from an interview-based study

Clinical practice as research for a rare condition: systematic research review of qualitative research exploring patients’ experiences of penile cancer

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