Genetic counseling experiences at the University of Cape Town during COVID‐19

Abstract

Soon after the first COVID-19 case was reported in December 2019 in Wuhan, China, South Africa announced a national lockdown in an attempt to curb the spread of the disease. Under national lockdown, businesses were closed, learning institutions moved to emergency remote teaching (ERT), and hospitals reduced their patient loads. De-escalation of clinical services at Groote Schuur and Red Cross War Memorial Children's Hospitals affected Genetic Counseling Services and resulted in a decrease in in-person and an increase in telecounseling sessions. ERT, offered by the University of Cape Town, affected the teaching of Genetic Counseling students, and other methods of training had to be found to compensate for the lack of patient contact. In this paper, we present our Genetic Counseling team's experiences of learning and clinical services during the COVID-19 pandemic in South Africa. The team met online as a group in November 2020 to discuss their experiences. The discussion was recorded and transcribed, and topics that arose during the discussion were identified.The pandemic and the accompanying lock down, which forced trainees to move back home, resulted in great uncertainty. The trainees found ERT on an online platform, including simulated cases, very helpful, but they lost the confidence to work with real patients. Telecounseling became the predominant form of service delivery and was experienced as positive when video sessions were possible. The telephone service for advanced maternal age counseling was problematic due to unreliable networks.The biggest loss for the GCs was the feeling of disconnection from peers, supervisors, and patients. The experiences highlighted positive and negative aspects as well as specific challenges faced in South Africa. Lessons learnt from the COVID-19 pandemic will be used in future to improve training of GCs and to enhance service delivery.

An examination of psychosocial and professional effects of the COVID‐19 pandemic on genetic counselors

“…Overall, this study recapitulates data regarding changes to professional aspects of genetic counseling practice since the spring of 2020 and elaborates on previously identified non‐professional challenges experienced by genetic counselors (Bergstrom et al, 2021; MacFarlane et al, 2021; Mauer et al, 2021; Mills et al, 2021; Mueller et al, 2021; Pan et al, 2021; Rezich et al, 2021; Shannon et al, 2021; Turchetti et al, 2021; Wessels et al, 2021). As many of the qualitative responses showed, however, the distinction between professional and non‐professional aspects of life for genetic counselors can be ambiguous.…”