Genetic Secrets: Social Issues of Medical Screening in a Genetic Age

Draper, Elaine

doi:10.2307/3563033

Cited by 12 publications

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“…This is true, for example, in the area of employment. Although ethical and policy concerns arose regarding genetic testing in the context of the workplace (Rothstein, 1983(Rothstein, , 1994Draper, 1992;Marshall, 1992;Gostin, 1991;Rowinski, 1988;Wachbroit, 1988;Matthewman, 1984;Seifert, 1984;Murray, 1983), we are still waiting for a boom in systematic workplace testing.…”

Section: How Real Is Genetic Testing In the Workplace?mentioning

confidence: 99%

“…In this context, Elaine Draper's analysis of the different perceptions of genetic screening and monitoring is revealing. She shows us that employers and employees have opposing views on the validity ofgenetic screening or monitoring because ofcompeting interests, which shape their perceptions of reality (Draper, 1986(Draper, , 1991(Draper, , 1992. Employers favor screening as a way of selecting employees, but they generally oppose monitoring.…”

Section: Testsfor Susceptibility To Occupational Hazardsmentioning

confidence: 99%

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“What About Your Genes?” Ethical, Legal, and Policy Dimensions of Genetics in the Workplace

Lemmens

1997

Polit. life sci.

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Although few companies are currently applying genetic tests or using genetic data, further developments in genetics will likely increase the role of genetics in the workplace. This article discusses the complex ethical issues raised by the variety of genetic tests that could become available and proposes guidelines for dealing with genetics in the workplace. It discusses how the results of genetic testing could be used for employment purposes, and argues that the existence of unequal bargaining power in the workplace limits the validity of consent as a basis for policymaking. Instead, two specific justifications for genetic testing in the workplace are proposed: the protection of health and the avoidance of harm to others. The author suggests that genetic testing should be permitted only in exceptional circumstances and that every genetic test should be evaluated on its scientific validity and submitted to rigorous review. Existing antidiscrimination law proves to be a useful model for examining the rationality and proportionality of genetic testing in the workplace.

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Section: How Real Is Genetic Testing In the Workplace?mentioning

confidence: 99%

Section: Testsfor Susceptibility To Occupational Hazardsmentioning

confidence: 99%

“What About Your Genes?” Ethical, Legal, and Policy Dimensions of Genetics in the Workplace

Lemmens

1997

Polit. life sci.

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“…Additionally, screening leads to a class of uninsurable people. These "undesirable" traits can follow people like scarlet letters handed down from generation to generation (Cavoukian & Tapscott, 1997;Draper, 1995). As genetic information accumulates, people will find themselves stigmatized, sometimes with dire consequences.…”

mentioning

confidence: 99%

Health Information Privacy: A Disappearing Concept

Weiss

2000

Bulletin of Science, Technology & Society

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Rapid advances and exponential growth in computer and telecommunications technology have taken individual records and papers revealing the most intimate details of one’s life, habits, and genetic predisposition from the private sector into the public arena in derogation of privacy considerations. Although computerized medical information offers a means of streamlining and improving the health care delivery system through speed and enormous storage capacity, it also presents new challenges as it affects the right of privacy and expectation of confidentiality, creating serious ethical and legal issues. Other considerations include constitutional matters such as loss of liberty when one is compelled to remain in an undesirable or unsuitable job so that insurance will not be canceled or the inability to secure another more suitable position due to genetic predisposition and denial of equal protection of the laws if one is stigmatized because one belongs to a certain ethnic or racial group that exhibits a particular genetic propensity. Collateral questions concern the propriety of disclosure of confidential health care information, including genetic data. This article also considers the proposed federal guidelines for a health information privacy law.

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DNA, Disease, and Dilemmas

Lee¹

1993

Gene Future

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Genetic Secrets: Social Issues of Medical Screening in a Genetic Age

Cited by 12 publications

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“What About Your Genes?” Ethical, Legal, and Policy Dimensions of Genetics in the Workplace

“What About Your Genes?” Ethical, Legal, and Policy Dimensions of Genetics in the Workplace

Health Information Privacy: A Disappearing Concept

DNA, Disease, and Dilemmas

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