“Give them the door but don’t push them through it”: Family Attitudes Toward Physician-Led Spiritual Care in Pediatric Palliative Medicine

McNamara, Laura; Okoniewski, William; Maurer, Scott H.; Moehling, Krissy K.; Hall, Daniel E.; Schenker, Yael

doi:10.1007/s10943-020-00991-z

Cited by 5 publications

(7 citation statements)

References 29 publications

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“…Given that religious and spiritual beliefs likely play different roles in different racial, ethnic, and cultural populations, and coping strategies likely differ across these groups, research in other populations is called for. Second, our sample reflected the demographic characteristics of oncology patients and families cared for at our hospital, and the proportion of men included in the study is similar to or greater than what is typically seen in pediatric spiritual care [19][20][21] and serious illness studies. 10,13 Third, this cross-sectional study can identify association but cannot infer causation.…”

Section: Discussionmentioning

confidence: 99%

“…17 More generally, parents of children with serious illness report that spirituality plays a part in decisionmaking, [18][19][20] and some parents appreciate clinicians discussing religious and spiritual beliefs. 21 Religious coping, one way in which parents of ill children may handle stress, was initially defined as an individual's effort to understand adversity in ways related to the sacred. 22 Religious coping is a dynamic process that encompasses behaviors, emotions, relationships, and cognition.…”

Section: Introductionmentioning

confidence: 99%

“…After a child's cancer diagnosis, parents report spirituality is an important coping resource and that spiritual support is appreciated 17 . More generally, parents of children with serious illness report that spirituality plays a part in decision‐making, 18–20 and some parents appreciate clinicians discussing religious and spiritual beliefs 21 …”

Section: Introductionmentioning

confidence: 99%

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Association of psychological distress and religious coping tendencies in parents of children recently diagnosed with cancer: A cross‐sectional study

Dolan

Hill

Faerber

et al. 2021

Pediatric Blood & Cancer

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Purpose: Parents of children with cancer exhibit high levels of psychological distress.Parents of children with serious illness report religion and spirituality are important coping resources. We sought to describe characteristics of religion, religious coping, social support, and resiliency in parents of children newly diagnosed with cancer and examine associations between psychological distress and self-reported religious coping, religiosity, resiliency, and social support. Patients and methods: Cross-sectional observational study of 100 parents of 81 unique children recently diagnosed with cancer. Parents provided demographic information and completed measures of psychological distress, importance of religion, religious coping, resiliency, and social support. Patients' type of tumor and intensity of treatment were collected by medical record abstraction.Results: Compared to nationally reported data for adults, parents of children with cancer reported high scores for psychological distress but similar levels of religiosity, religious coping, and resiliency. Negative religious coping (feelings of negativity related to the divine) was associated with higher levels of psychological distress. This effect was most prominent in parents who reported the highest levels of religiosity. Positive religious coping, religiosity, and social support were not associated with levels of psychological distress.Discussion: Findings confirm high levels of distress for parents of children with cancer.Negative religious coping was associated with higher levels of psychological distress but positive religious coping, religiosity, and other coping factors were not found to be significantly associated with distress. Further assessment of negative religious coping to inform interventions to promote resiliency is warranted as they may impact parental decision-making and care.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Association of psychological distress and religious coping tendencies in parents of children recently diagnosed with cancer: A cross‐sectional study

Dolan

Hill

Faerber

et al. 2021

Pediatric Blood & Cancer

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“…It is recommended by the Standards for the Psychosocial Care of Children with Cancer 6,7 to incorporate routine assessments of children's psychosocial needs, including religious and spiritual support, 46 to ensure quality of life and care are maintained. More research is needed to determine if a more “generalist” approach to spiritual assessment is appropriate, or if a specialist approach using chaplains has better outcomes for adolescents with cancer and their families 47 …”

Section: Discussionmentioning

confidence: 99%

Shared spiritual beliefs between adolescents with cancer and their families

Livingston

Cheng²,

Wang

et al. 2020

Pediatric Blood & Cancer

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Background: FAmily CEntered (FACE) Advance Care Planning helps family decision makers to understand and honor patients' preferences for future health care, if patients cannot communicate. Spiritual well-being is a key domain of pediatric oncology care and an integral dimension of pediatric advance care planning. Procedure: As part of four-site randomized controlled trial of FACE for teens with cancer, the functional assessment of chronic illness therapy-spiritual well-beingversion 4 (FACIT-Sp-EX-4) was completed independently by 126 adolescents with cancer/family dyads. The prevalence-adjusted and bias-adjusted kappa (PABAK) measured congruence on FACIT-Sp-EX-4. Results: Adolescents (126) had mean age of 16.9 years, were 57% female and 79% White. Religious/spiritual classifications were: Catholic (n = 18), Protestant (n = 76), Mormon (n = 3), none/atheist (n = 22), other (n = 5), and unknown (n = 2). Agreement at item level between spiritual well-being of adolescents and families was assessed. Three items had ≥90% agreement and Excellent PABAK: "I have a reason for living," "I feel loved," "I feel compassion for others in the difficulties they are facing." Three items had <61% agreement and Poor PABAK: "I feel a sense of harmony within myself," "My illness has strengthened my faith or spiritual beliefs," "I feel connected to a higher power (or God)." Dyadic congruence was compared by social-demographics using median one-way analysis. Male family members (median = 72%) were less likely to share spiritual beliefs with their adolescent than female family members (median = 83%), P = .0194. Abbreviations: FACE-TC pACP, FAmily CEntered pediatric advanced care planning for teens with cancer; FACIT-Sp-EX-4, functional assessment of chronic illness therapy-spiritual

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“…Clinicians who address topics of spirituality may discover valuable insights about patients’ or parents’ beliefs that impact their understanding or meaning of the illness. In addition, studies have shown that patients and families want their physicians to acknowledge and understand spiritual beliefs 10 . Accordingly, clinicians can be prepared to open the door to conversations, even if only to partner further with chaplains.…”

mentioning

confidence: 99%