Global coverage of health information systems for kidney disease: availability, challenges, and opportunities for development

See, Emily J; Alrukhaimi, Mona; Ashuntantang, Gloria; Bello, Aminu K.; Bellorín-Font, Ezequiel; Gharbi, Mohammed Benghanem; Braam, Branko; Feehally, John; Harris, David C.H.; Jha, Vivekanand; Jindal, Kailash; Kalantar-Zadeh, Kamyar; Kazancıoğlu, Rümeyza; Levin, Adeera; Lunney, Meaghan; Okpechi, Ikechi G.; Olanrewaju, Timothy Olusegun; Osman, Mohamed A.; Perl, Jeffrey; Qarni, Bilal; Rashid, Harun Ur; Rateb, Ahmed; Rondeau, Éric; Samimi, Arian; Sikosana, Majid L N; Solá, Laura; Tchokhonelidze, Irma; Wiebe, Natasha; Yang, Chih‐Wei; Feng, Yan; Zemchenkov, Alexander; Zhao, Ming‐Hui; Johnson, David W.

doi:10.1016/j.kisu.2017.10.011

Cited by 27 publications

(22 citation statements)

References 34 publications

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“…Chronic kidney disease (CKD) is one of the fastest growing chronic diseases, and today it is a major health problem worldwide [1]. According to the Global Burden of Disease Study (2010), CKD shifted from the 36th leading cause of death in 1990 to the 19th leading cause in 2013 [2].…”

Section: Introductionmentioning

confidence: 99%

Causes of Chronic Kidney Disease in Iranian Children: A Meta-Analysis and Systematic Review

Shahdadi

Sheyback

Rafiemanesh

et al. 2019

Annals of Global Health

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This study aimed to determine the causes of chronic kidney disease (CKD) in Iranian children. In this systematic review and meta-analysis study, international (PubMed, Web of Science, Scopus, and Google Scholar) and national (SID, Magiran) databases were searched for articles published through December 30, 2017. The quality of the studies was determined using the Hoy instrument. Out of 2,117 initial studies, 13 studies performed on a total of 3,596 children were included in the final stage of the study. Based on the results of the random effects method (95% CI), the main causes of chronic kidney disease in stages 1-4 (CKD) were CAKUT (37%) and glomerulonephritis (19.96%); in stage 5 (ESRD) they were CAKUT (40.82%) and urological disorders (27.44%). Considering the high prevalence of CAKUT, glomerulonephritis and urinary problems, the use of comprehensive approaches can be very effective in enhancing the knowledge of patients about the causes of kidney disease. The results obtained from the present study can assist policymakers in more accurately planning screenings of the causes of CKD in Iranian children.

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Section: Introductionmentioning

confidence: 99%

Causes of Chronic Kidney Disease in Iranian Children: A Meta-Analysis and Systematic Review

Shahdadi

Sheyback

Rafiemanesh

et al. 2019

Annals of Global Health

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“…However, the Global Kidney Health Atlas Project has reported the limited availability of reliable surveillance systems for both AKI and CKD across countries and regions. This lack is a major impediment to the design and implementation of effective interventions to close recognized gaps in infrastructures and services [ 2 , 3 , 16 ].…”

Section: Roles Of Renal Registriesmentioning

confidence: 99%

Advocacy for renal replacement therapy: the role of renal registries

Couchoud

Gharbi

2020

Clinical Kidney Journal

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The paper by Jardine et al. reporting results from the South African Renal Registry describes a 2-fold success. First, even in a limited-resource environment, survival of patients on renal replacement therapy (RRT) is favourable. Secondly, this information is available because a few years ago, South African nephrologists started a renal registry. These successes cannot conceal, however, that numerous patients are not offered RRT. Robust health information systems make it possible to define chronic kidney disease and end-stage kidney disease (ESKD) burdens, guide resource allocation, inform service planning and enable policy. Registries can highlight inequitable RRT access and help support advocacy in favour of additional resources for ESKD care.

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“…Nevertheless, substantial variations in country economies (ie, gross domestic product), availability of clinical registries, health care workforce, health care financing, and health care policies are likely to influence the coverage and comprehensiveness of the data capture and treatment of patients with ESKD, resulting in unreliable estimates of the true incidence of patients with ESKD undergoing RRT in some countries . Understanding the information that may explain these differences is critical for the global community, and it requires reliable and sustained data collection to adequately inform the global pattern of ESKD incidence and care …”

Section: Global Sex‐ and Age‐specific Incidence Of Treated End‐stagementioning

confidence: 99%

Impending challenges of the burden of end‐stage kidney disease in Australia

Lim¹,

Johnson

McDonald

et al. 2019

Medical Journal of Australia

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Summary Sex and age‐specific incidence rates of patients with treated end‐stage kidney disease (ESKD) in Australia are comparable to those in European countries, but substantially lower compared with those in the United States, Canada and many Asian countries. The incidence rates of treated ESKD in Australia increase with advancing age; however, the incidence of ESKD is likely to be underestimated because a proportion of patients with ESKD (about 50%) remain untreated. Late referral to nephrologists has reduced over the past decade, temporally associated with improved ESKD recognition. However, late referral still occurs in one in five Australians with ESKD. One in two Australians with ESKD has diabetes, with up to 35% of cases directly attributed to diabetes. Mortality rates for patients with ESKD remain substantially higher compared with the age‐matched general population, although there has been a significant improvement in survival over time. Cardiovascular disease and cancer are the two most common causes of death in patients with ESKD.

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Global coverage of health information systems for kidney disease: availability, challenges, and opportunities for development

Cited by 27 publications

References 34 publications

Causes of Chronic Kidney Disease in Iranian Children: A Meta-Analysis and Systematic Review

Causes of Chronic Kidney Disease in Iranian Children: A Meta-Analysis and Systematic Review

Advocacy for renal replacement therapy: the role of renal registries

Impending challenges of the burden of end‐stage kidney disease in Australia

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