Glycemic control and self‐rated health among ethnically diverse adolescents with type 1 diabetes

Kane, Naomi S.; Hoogendoorn, Claire J.; Commissariat, Persis; Schulder, Talia; Gonzalez, Jeffrey S.

doi:10.1111/pedi.12928

Cited by 7 publications

(3 citation statements)

References 47 publications

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“…Recently diagnosed patients [ 74 ] • Children (age 8–13) showed elevated levels of depression at diagnosis which significantly decreased 12 months after diagnosis. Self-Care Inventory-Revised (SCI-R) [ 36 , 57 , 62 , 69 ] Perceived adherence to self-care regimen • Children who accept their diabetes diagnosis and integrate within their self-identity were more confident and showed better self-care. • Patients who use an insulin pump showed better self-care than patients who use injectables.…”

Section: Resultsmentioning

confidence: 99%

Humanistic burden of pediatric type 1 diabetes on children and informal caregivers: systematic literature reviews

Allen,

Mahieu,

Kasireddy

et al. 2024

Diabetol Metab Syndr

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Background Diagnosis of children with type 1 diabetes (T1D) imposes an unprecedented burden on children and their caregivers. Objective To assess the burden of T1D on children and their informal caregivers, both after a recent diagnosis or after a longer duration of disease. Methods A series of systematic literature reviews were performed to explore the burden of T1D on children with the disease and their primary informal caregivers, based on the time of diagnosis. After the extraction of the qualitative and quantitative data from the included studies, two literature-based conceptual frameworks were developed: on the burden of pediatric T1D on children, and on informal caregivers. A third conceptual framework on the shared burden of pediatric T1D on both children and informal caregivers as part of the same family unit was also developed. Results The review of literature has identified a series of factors that affect the quality of life of children with T1D and their informal caregivers, with a direct impact on physical, emotional, and social outcomes. Generally, female patients and older adolescents experience more worry and stress that affects their quality of life. Other categories of factors affecting the child’s and caregiver’s burden include social, emotional, and physical factors, treatment-related and disease-related factors, as well as their coping abilities. Anxiety, depression, stress, and worry were commonly found among children and caregivers, starting with the diagnosis of T1D and continuing over time in relation to new challenges pertaining to aging or the disease duration. Conclusion T1D causes a significant burden to affected children and their caregivers, both independently and through transactional interaction within the family unit. Disease burden can be reduced by strengthening individuals for the benefit of the whole family.

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Section: Resultsmentioning

confidence: 99%

Humanistic burden of pediatric type 1 diabetes on children and informal caregivers: systematic literature reviews

Allen,

Mahieu,

Kasireddy

et al. 2024

Diabetol Metab Syndr

View full text Add to dashboard Cite

show abstract

“…We further found that a higher self-rated health status was associated with less frequent monitoring of blood glucose, although such association was attenuated after adjustment. It is possible that the motivation to perform blood glucose monitoring is largely influenced by the perceived concern on disease progression [ 31 ], and thus a poor self-rated health status was often associated with higher HbA1c levels [ 32 , 33 ]. Therefore, frequent monitoring of blood glucose among patients with poor self-rated health status may be explained by the fear of adverse consequences of diabetic hyperosmolar syndrome.…”

Section: Discussionmentioning

confidence: 99%

Frequency of Follow-Up Attendance and Blood Glucose Monitoring in Type 2 Diabetic Patients at Moderate to High Cardiovascular Risk: A Cross-Sectional Study in Primary Care

Zhong

Zhu

et al. 2022

IJERPH

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Regular follow-up attendance in primary care and routine blood glucose monitoring are essential in diabetes management, particularly for patients at higher cardiovascular (CV) risk. We sought to examine the regularity of follow-up attendance and blood glucose monitoring in a primary care sample of type 2 diabetic patients at moderate-to-high CV risk, and to explore factors associated with poor engagement. Cross-sectional data were collected from 2130 patients enrolled in a diabetic retinopathy screening programme in Guangdong province, China. Approximately one-third of patients (35.9%) attended clinical follow-up <4 times in the past year. Over half of patients (56.9%) failed to have blood glucose monitored at least once per month. Multivariable logistic regression analysis showed that rural residents (adjusted odds ratio [aOR] = 0.420, 95% confidence interval [CI] = 0.338–0.522, p < 0.001, for follow-up attendance; aOR = 0.580, 95%CI: 0.472–0.712, p < 0.001, for blood glucose monitoring) and subjects with poor awareness of adverse consequences of diabetes complications (aOR = 0.648, 95%CI = 0.527–0.796, p < 0.001, for follow-up attendance; aOR = 0.770, 95%CI = 0.633–0.937, p = 0.009, for blood glucose monitoring) were both less likely to achieve active engagement. Our results revealed an urban–rural divide in patients’ engagement in follow-up attendance and blood glucose monitoring, which suggested the need for different educational approaches tailored to the local context to enhance diabetes care.

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“…Model 1 was adjusted for variables including child age, gender, disease duration, insulin regimen, daily blood glucose monitoring, and self-management level that demonstrated a correlation with pediatric glycaemic control in previous studies ( 28 , 29 ). For example, insulin pump therapy, higher adherence for blood glucose monitoring, and better self-management were associated with lower HbA1c ( 30 ). Model 2 was adjusted for variables in Model 1 plus parental depressive symptoms and diabetes distress.…”

Section: Methodsmentioning

confidence: 99%

Resilience Among Parents of Adolescents With Type 1 Diabetes: Associated With Fewer Parental Depressive Symptoms and Better Pediatric Glycemic Control

et al. 2022

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BackgroundAlthough pediatric resilience plays a significant role in resisting negative moods and improving glycaemic control, little research exists regarding resilience among the parents of adolescents with Type 1 diabetes.ObjectiveTo investigate parental resilience's correlations with parental depressive symptoms, parental diabetes distress, and pediatric glycaemic control.MethodsThis cross-sectional study recruited adolescents with Type 1 diabetes and their parents from two hospitals. The parents completed questionnaires. The 10-item Connor-Davidson Resilience Scale measured resilience; the Problem Areas in Diabetes Survey-Parent Revised version measured diabetes distress; the Patient Health Questionnaire-9 measured depressive symptoms. Standard glycated hemoglobin tests were performed on the adolescents.ResultsData from 224 parents (77.2% female, Mage = 39.88 [SD = 5.02], age range = 30–56 years) of adolescents (50.9% boys, Mage = 13.54 years [SD = 2.48], age range = 10–19 years) were available. More than half (52.7%) of parents exceeded the criterion score for high resilience. Parental resilience was significantly negatively associated with parental depressive symptoms and diabetes distress. Parents from the high-resilience group reported fewer depressive symptoms than those from the low-resilience group. In multivariate regressions, greater parental resilience is consistently related to better pediatric glycaemic control beyond parental psychological risk factors.ConclusionsThis study highlights the importance of parental resilience for parental mental health and glycaemic control among adolescents with Type 1 diabetes. The appropriate resilience support programme might be developed for parents, especially for those existing depressive symptoms and diabetes distress.

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Glycemic control and self‐rated health among ethnically diverse adolescents with type 1 diabetes

Cited by 7 publications

References 47 publications

Humanistic burden of pediatric type 1 diabetes on children and informal caregivers: systematic literature reviews

Humanistic burden of pediatric type 1 diabetes on children and informal caregivers: systematic literature reviews

Frequency of Follow-Up Attendance and Blood Glucose Monitoring in Type 2 Diabetic Patients at Moderate to High Cardiovascular Risk: A Cross-Sectional Study in Primary Care

Resilience Among Parents of Adolescents With Type 1 Diabetes: Associated With Fewer Parental Depressive Symptoms and Better Pediatric Glycemic Control

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