Go Wish: A Tool for End-of-Life Care Conversations

Menkin, Elizabeth S.

doi:10.1089/jpm.2006.9983

Cited by 52 publications

(47 citation statements)

References 4 publications

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“…The use of card games is a relatively old and well accepted concept in medicine for testing patients' capacities, particularly in psychology, and in psychiatry [16] and used in medical training as a pedagogical tool [17,18]. More recently, card sorting appeared in the domain of palliative care as a tool for facilitating communication with the patient to approach end of life conditions [3]. Card sorting allows the way in which users rank and group together contents which are presented to them on cards to be observed, in particular in order to make website categories which relate to the mental representation of site users.…”

Section: Discussionmentioning

confidence: 99%

“…How can a happy medium be found between abandon and excessive therapeutic intervention? [3,4] How can a decision be reached which respects the person and which may require us to administer additional treatment, or to continue or withdraw treatment already in place? [5] When confronted with a compulsory choice, all doctors, care teams and families then face the double difficulty of responsibility and doubt.…”

Section: Introductionmentioning

confidence: 99%

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"Card sorting": a tool for research in ethics on treatment decision-making at the end of life in Alzheimer patients with a life threatening complication

et al. 2011

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BackgroundEnd stage dementia is a particularly difficult aspect of care for patients with Alzheimer's disease and related dementias. In care institutions, caregivers and family are concerned by treatment decision-making for an acute life threatening complication occurring in Alzheimer patients at the end of life. How should the best treatment pathway be decided: to treat or not to treat? Which arguments are used for decision-making? These are mainly ethical questions which are currently difficult to express and investigate.Methods/DesignCross sectional multicentre study of clinical cases involving 67 health centres (university hospitals, general hospitals, local hospitals and homes for the elderly) in the east of France. The method was based on the "card sorting" technique, with a set of 36 cards, each labelled with a different item relating to arguments for treatment decision-making. For each clinical case, medical staff and carers expressed in a meeting the pieces of information which they believed had been taken into account in the decision. Each participant received a card game, selected fewer than ten and ranked them according to the importance they attached to each one. All selected cards were then put on the table anonymously for participants, respecting the order of importance of the cards in each pile. Lastly, all games were photographed together in order to analyse occurrence and order frequencies. The cards were then classified on the table by frequency to open the discussion. Discussion time, which was conducted by the head carer of the department, concerned the clinical situation of the patient based on the shared responses.DiscussionDuring team meetings, the "card sorting" method was quickly adopted by professionals as a tool to assist with discussion beyond the context of the study. The participants were not compelled to mention their feelings in relation to a case, and it is significant that the anonymity which we tried to maintain so that each person felt "listened to" without value judgement was very often discarded by the individuals themselves.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

"Card sorting": a tool for research in ethics on treatment decision-making at the end of life in Alzheimer patients with a life threatening complication

et al. 2011

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“…Tools where more than 50% of the items mapped onto at least one of the key concepts were the Func- 35,36 (17-item questionnaire, with eight mapping on to three concepts), ICECAP-SCM 37e40 (seven-item questionnaire, with five items mapping onto all four concepts), the PQLI 41 (with four items mapping on to all four concepts), and the QUAL-E 42 (with 14 items mapping on to all four concepts).…”

Section: Mapping Key Concepts On To Outcome Toolsmentioning

confidence: 99%

Understanding the Outcomes of Supplementary Support Services in Palliative Care for Older People. A Scoping Review and Mapping Exercise

Dodd

Payne

Preston

et al. 2020

Journal of Pain and Symptom Management

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Context. Supplementary support services in palliative care for older people are increasingly common, but with neither recommended tools to measure outcomes nor reviews synthesizing anticipated outcomes. Common clinically focused tools may be less appropriate. Objectives. To identify stakeholder perceptions of key outcomes from supplementary palliative care support services, then map these onto outcome measurement tools to assess relevance and item redundancy. Methods. A scoping review using the design by Arksey and O'Malley. EMBASE, CINAHL, MEDLINE, and PSYCHinfo searched using terms relating to palliative care, qualitative research, and supplementary support interventions. Articles were imported into EndnoteÔ, and CovidenceÔ was used by two reviewers to assess against inclusion criteria. Included articles were imported into NVivoÔ and thematically coded to identify key concepts underpinning outcomes. Each item within contender outcome measurement tools was assessed against each concept. Results. Sixty included articles focused on advance care planning, guided conversations, and volunteer befriending services. Four concepts were identified: enriching relationships; greater autonomy and perceived control; knowing more; and improved mental health. Mapping concepts to contender tool items revealed issues of relevance and redundancy. Some tools had no redundant items but mapped only to two of four outcome themes; others mapped to all concepts, but with many redundant questions. Tools such as ICECAP-Supportive Care Measure and McGill Quality of Life had high relevance and low redundancy. Conclusion. Pertinent outcome concepts for these services and population are not well represented in commonly used outcome measurement tools, and this may have implications in appropriately measuring outcomes. This review and mapping method may have utility in fields where selecting appropriate outcome tools can be challenging. J Pain Symptom Manage 2020;60:449e459.

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“…1 That list helped me go beyond my medical caring role (putting together supplies and instructions for mouth care and bowel care, disempacting him one night at 3 am) and stay focused on those things most important to him. I used the last hour of my final visit with him to make him a ''girl sandwich,'' lying next to him in a three-person embrace, with him in the middle and my adult daughter on the other side.…”

mentioning

confidence: 99%