Goal setting in group programmes for long-term condition self-management support: experiences of patients and healthcare professionals

Sj, Hughes; Lewis, Sophie; Willis, Karen; Rogers, Anne; Wyke, Sally; Smith, Lorraine

doi:10.1080/08870446.2019.1623891

Cited by 15 publications

(14 citation statements)

References 55 publications

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“…Consequently, determining patients’ wishes and goals is an important component of self-management support. Several studies confirm this association with goal-oriented care [ 45 , 46 ]. Because of the strong association, healthcare professionals are challenged to actively question patients to determine goals.…”

Section: Discussionmentioning

confidence: 71%

Self-management support in flemish primary care practice: the development of a preliminary conceptual model using a qualitative approach

Sirimsi

Vermandere

Remmen³

et al. 2022

BMC Prim. Care

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Background Coping with a chronic disease can be really challenging. Self-management represents a promising strategy to improve daily life experiences. The role of primary healthcare professionals cannot be underestimated in supporting self-management. Due to a shortage of theory, implementation of self-management support is hindered in primary care practice. The aim of this study is to create a conceptual model for self-management support by analysing patients’ care experiences towards self-management support. Methods An explorative-descriptive qualitative study was conducted in Flanders, Belgium. Semi-structured interviews were performed with 16 patients and their informal caregiver (dyads) using a purposive sampling strategy and processed by an inductive content analysis, according to Graneheim and Lundman. Results Interviews revealed in-depth insights into patients’ care experiences. A conceptual model was developed for primary care practice, including five fundamental tasks for healthcare professionals - Supporting, Involving, Listening, Coordinating and Questioning (SILCQ) – contributing to the support of self-management of chronic patients. Conclusions This qualitative paper emphasises the use of the SILCQ-model to develop optimal roadmaps and hands-on toolkits for healthcare professionals to support self-management. The model needs to be further explored by all stakeholders to support the development of self-management interventions in primary care practice.

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Section: Discussionmentioning

confidence: 71%

Self-management support in flemish primary care practice: the development of a preliminary conceptual model using a qualitative approach

Sirimsi

Vermandere

Remmen³

et al. 2022

BMC Prim. Care

View full text Add to dashboard Cite

show abstract

“…Consequently, determining patients' wishes and goals is an important component of selfmanagement support. Several studies con rm this association with goal-oriented care (41)(42)(43) (47,48). This must be considered when organising care around chronic patients.…”

Section: Discussionmentioning

confidence: 89%

Self-management Support in Primary Care Practice: the Development of a Conceptual Model Using a Qualitative Approach

Timmermans

Boeykens

Sirimsi

et al. 2021

Preprint

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BackgroundCoping with a chronic disease can be really challenging. Self-management represents a promising strategy to improve daily life experiences. The role of primary healthcare professionals cannot be underestimated in supporting self-management. Due to a shortage of theory, implementation of self-management support is hindered in primary care practice. The aim of this study is to create a conceptual model for self-management support by analysing patients’ care experiences towards self-management support. MethodsAn explorative-descriptive qualitative study was conducted in Flanders, Belgium. Semi-structured interviews were performed with 16 patients and their informal caregiver (dyads) using a purposive sampling strategy and processed by an inductive content analysis. ResultsInterviews revealed in-depth insights into patients’ care experiences. A conceptual model was developed for primary care practice, including five fundamental tasks for healthcare professionals - Supporting, Involving, Listening, Coordinating and Questioning (SILCQ) – contributing to the support of self-management of chronic patients.ConclusionThis qualitative paper emphasises the use of the SILCQ-model to develop optimal roadmaps and hands-on toolkits for healthcare professionals to support self-management. The model needs to be further explored by all stakeholders to support the development of self-management interventions in primary care practice.

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“…These include wide variation in the nature of strategies (21), and uncertainty around preferred outcome measurement (23). Boger and Ellis et al reported that preferred outcomes ranged across stakeholders from knowledge, skills, and bio-psychosocial markers of health, through to 'being me' and having positive social networks (22). Further challenges are posed by attempts to implement collaborative goal setting-a key factor in fostering self-management.…”

Section: Introductionmentioning

confidence: 99%

“…Further challenges are posed by attempts to implement collaborative goal setting-a key factor in fostering self-management. For example, service providers' need to shape participants' goals into pre-determined health behaviour change often takes priority over the empowering and motivating process of collaboration with service users (22). Furthermore, there is little evidence of acceptability and feasibility of self-management approaches within First Nations communities.…”

Section: Introductionmentioning

confidence: 99%

The Stay Strong App as a Self-Management Tool for First Nations People with Chronic Kidney Disease: A Qualitative Study

Nagel¹,

Dingwall²,

Sweet³

et al. 2021

Preprint

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Background: The high burden of chronic kidney disease and its substantial impact on quality of life demands innovative patient care strategies. Improved outcomes are linked with patient centred interventions which address psychosocial as well as physical needs. Given the high incidence of kidney disease among First Nations people, culturally responsive approaches are also needed. The Stay Strong app is a holistic wellbeing tool designed with Northern Territory First Nations people. This study explores the suitability of the Stay Strong app as a patient-centred self-management tool as shown by the readiness of participants to engage in goal setting. Data were collected during a clinical trial which showed efficacy of the tool in improving wellbeing for people with both End Stage Kidney Disease and symptoms of distress and depression. Methods: First Nations (i.e., Aboriginal and Torres Strait Islander) participants receiving haemodialysis in the Northern Territory (n = 156) entered a three-arm, waitlist, single-blind randomised controlled trial which provided collaborative goal setting using the Stay Strong app at baseline or at 3 months. Qualitative data gathered during delivery of the intervention were examined using both content and thematic analysis. Results: Almost all participants (147, 94%) received a Stay Strong session: of these, 135 (92%) attended at least two sessions, and 83 (56%) set more than one wellbeing goal. Using a deductive approach to manifest content, 13 categories of goals were identified. The three most common were to: ‘connect with family or other people’, ‘go bush/be outdoors’ and ‘go home/be on country’. Analysis of latent content identified three themes throughout the goals: ‘social and emotional wellbeing’, ‘physical health’ and ‘cultural connection’. Conclusion: This study provides evidence of the suitability of the Stay Strong app for use as a chronic condition self-management tool for First Nations people. Participants set goals that addressed physical as well as social and emotional wellbeing needs. The goal setting intervention aligns directly with self-management approaches that are holistic and prioritise individual empowerment. While biomedical models focus on the mechanics of illness, the findings share a strong message that healing also comes through family, country, and cultural identity. Implementation of self-management strategies into routine care remains a key challenge and further research is needed to establish drivers of success.

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Goal setting in group programmes for long-term condition self-management support: experiences of patients and healthcare professionals

Cited by 15 publications

References 55 publications

Self-management support in flemish primary care practice: the development of a preliminary conceptual model using a qualitative approach

Self-management support in flemish primary care practice: the development of a preliminary conceptual model using a qualitative approach

Self-management Support in Primary Care Practice: the Development of a Conceptual Model Using a Qualitative Approach

The Stay Strong App as a Self-Management Tool for First Nations People with Chronic Kidney Disease: A Qualitative Study

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