Going home to get on with life: Patients and carers experiences of being discharged from hospital following a stroke

Ellis‐Hill, Caroline; Robison, Judy; Wiles, Rose; McPherson, Kathryn; Hyndman, D.; Ashburn, Ann

doi:10.1080/09638280701775289

Cited by 109 publications

(153 citation statements)

References 29 publications

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“…In line with other research [14,21,22], the results suggested that a group SMP may have a number of benefits such as peer support, reduced loneliness and shared problem solving. The novel aspect of a group compared to a one-to-one SMP is the addition of peer support.…”

Section: Discussionsupporting

confidence: 78%

“…In England, 59% of stroke survivors reported unmet clinical needs, and 52% had experienced a loss or reduction in work [13]. It is therefore unsurprising that many stroke survivors report feeling isolated in the community and abandoned [14,15]. This highlights the necessity for stroke services to be more accessible and responsive to fluctuating long-term needs.…”

Section: Introductionmentioning

confidence: 99%

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One size does not fit all – Stroke survivor’s views on group self-management interventions

Clark

Bennett

Ward

et al. 2016

Disability and Rehabilitation

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Introduction: Stroke is the main cause of complex disability in the UK. Many stroke survivors feel abandoned when rehabilitation ends and 59% are left with long-term unmet needs. There is now emerging interest in whether group self-management programs (SMP) specifically for stroke could help. However, more work is required to understand the acceptability of group SMPs to stroke survivors and the factors of concern that could impact efficacy.Purpose: To explore stroke survivor's views on 1) possible benefits of a group SMP 2) possible challenges of a group SMP and 3) when/where to implement a SMP in an individual's stroke journey.Method: 14 stroke survivors took part in semi-structured interviews, which were analysed using an inductive thematic approach.Results: Three main themes were identified in the data: 1) A space to share support 2) it's not a one size fits all problem 3) how's it all going to happen?Conclusion: A group of stroke survivors can provide valuable insight and ideas about how groups should be constructed. To the best of our knowledge, this is the first patient engagement study that explores group SMPs for stroke. In future work, researchers may find it helpful to consider the findings from this study to inform the design of group SMPs.

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Section: Discussionsupporting

confidence: 78%

Section: Introductionmentioning

confidence: 99%

One size does not fit all – Stroke survivor’s views on group self-management interventions

Clark

Bennett

Ward

et al. 2016

Disability and Rehabilitation

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“…In addition, although compelling evidence exists that increasing population/country-specific knowledge about stroke warning signs and risk factors can reduce stroke burden in the population, [40][41][42] the uptake of this knowledge is poor in most countries. This poor uptake of knowledge is particularly the case in older adults (65+), 7,43 minority ethnic groups, 7,44,45 people with poor educational attainment, 7 and rural dwellers. 46 The lack of epidemiological data on stroke and other NCDs in most countries is chiefly because of the high costs associated with conducting conventional, ideal population-based studies on NCDs incidence, prevalence, and risk factors because they usually require coverage of the large study populations/areas, face-to-face contacts with study participants or postal/telephone interviews.…”

Section: Gaps In Knowledgementioning

confidence: 99%

New Strategy to Reduce the Global Burden of Stroke

Feigin

Krishnamurthi

Bhattacharjee

et al. 2015

Stroke

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The socioeconomic and health effect of stroke and other noncommunicable disorders (NCDs) that share many of the same risk factors with stroke, such as heart attack, dementia, and diabetes mellitus, is huge and increasing. [1][2][3][4] Collectively, NCDs account for 34.5 million deaths (66% of deaths from all causes) 3 and 1344 million disability-adjusted life years lost worldwide in 2010. 2 The burden of NCDs is likely to burgeon given the aging of the world's population and the epidemiological transition currently observed in many low-to middle-income countries (LMICs). 5,6 In addition, there is low awareness in the population about these NCDs and their risk factors, 7-10 particularly in LMICs.11 These factors, coupled with underuse of strategies for primary prevention of stroke/NCDs on an individual level and the lack of accurate data on the prevalence and effect of risk factors in different countries and populations have been implicated in the ever-increasing worldwide burden of the NCDs. [12][13][14][15] Of particular concern is a significant increase in the number of young adults (aged <65 years) affected by stroke, 16 and the increasing epidemic of overweight/obesity 17 and diabetes mellitus worldwide. 18 If these trends continue, the burden of stroke and other major NCDs will increase even faster. The increasing burden of stroke and other major NCDs provide strong support for the notion that the currently used primary prevention strategies for stroke and other major NCDs (business as usual) are not sufficiently effective. The most pertinent solution to this problem is the implementation of new, effective, widely available, and cost-effective prevention and treatment strategies to reduce the incidence and severity distribution of stroke and other major NCDs. Issues With Population-Wide Prevention StrategiesThe recent INTERSTROKE case-control study, conducted in 22 countries worldwide, provided evidence that, collectively, 10 risk factors accounted for 88.1% (99% confidence interval, 82.3%-92.2%) of the population-attributable risk for all stroke. 19 Because many (but not all) of these risk factors are modifiable, the INTERSTROKE data suggest that interventions that reduce blood pressure, promote physical activity, smoking cessation, and a healthy diet, could substantially reduce the burden of stroke. Although a combination of population-wide and individual high-risk prevention strategies were initially advocated >30 years ago, 20 and have since been repeatedly recommended as the most promising strategies to reduce stroke and NCDs burden, there is still no country in the world where both these prevention strategies have been implemented in full. There are major hurdles to implementing population-wide primary prevention strategies, including the need for policy and legislative changes that are often not supported by major industries (such as salt reduction in processed food, reduction of exposure to cigarette smoking, alcohol, and fast food). In addition, there are significant costs associated with the imple...

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“…Certain factors external to the individual, including social and professional support, have also attracted a degree of attention (Chau et al 2009;ellis-Hill et al 2009;nicholson et al 2013;robison et al 2009;Walsh et al 2014). Compared with these factors, the physical environmentdefined here as the objective and perceived qualities and characteristics of the physical settings in which individuals spend time (Van Van Cauwenberg et al 2011) -although pertinent (Lord and rochester 2005), appears critically understudied.…”

Section: Introductionmentioning

confidence: 99%

Physical environments and community reintegration post stroke: qualitative insights from stroke clubs

Brookfield

Mead

2016

Disability & Society

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This study investigated the environment's role in community reintegration amongst persons with experience of stroke. Focus group discussions with 29 individuals recruited from community stroke clubs in Scotland revealed that stroke influenced a person's perceptions, experience, use and enjoyment of the environment. Multiple specific (e.g. theatres, cafes) and more general (out-of-thehome) environments appeared capable of supporting community reintegration, providing settings in which individuals were able and willing to interact with others and participate in various functional, social and recreational activities. The article reflects on the study's implications for policy and practice.

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Going home to get on with life: Patients and carers experiences of being discharged from hospital following a stroke

Cited by 109 publications

References 29 publications

One size does not fit all – Stroke survivor’s views on group self-management interventions

One size does not fit all – Stroke survivor’s views on group self-management interventions

New Strategy to Reduce the Global Burden of Stroke

Physical environments and community reintegration post stroke: qualitative insights from stroke clubs

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