Going to school with narcolepsy – perceptions of families and teachers of children with narcolepsy

The Learning Implications for Children and Adolescents with Hypersomnolence

“…Poor behaviours such as defiance/aggression on the Conners 3 and oppositional defiant and conduct problems on the CBCL were identified amongst 40% of the participants. This is similar to findings by Karjalainen et al (2014), Dorris et al (2008), and Posar et al (2014).…”

“…Three case studies explored the association between narcolepsy and academic functioning. Karjalainen et al (2014) used mixed-methods research including parent and teacher questionnaires and the Strengths and Difficulties Questionnaire (SDQ) with the six children in whom narcolepsy was diagnosed. This real-life context yielded parent reports of problems with concentration and attention following the development of narcolepsy, and observations that skills which had been previously learned were lost following the onset of the disorder.…”

“…Other researchers have also taken a deep investigative approach using case studies which typically use smaller groups of children, enabling associations between narcolepsy and many other life aspects to be fully detailed for each child. Karjalainen et al (2014) found five (n = 13) used the SDQ to identify that 3 of the 13 children (23%) had a score in the clinical range for conduct problems, although 2 other children had borderline scores. There was only one child (8%) who gained a score in the clinical range for hyperactivity, whereas three other children had borderline scores.…”

“…the Wide Range Assessment of Memory and Learning (WRAML) (Hansen), A Developmental NEuroPSYchological Assessment (NEPSY-II) (Szakács; Szakács et al), andChild Behaviour Checklist (CBCL)(Rocca et al, 2016). One study utilised parent and teacher questionnaires with the SDQ(Karjalainen et al, 2014). TheFrolich et al (2001) study explored vigilance, as one of the executive functions associated with attention in a population with attention deficit hyperactivity disorder (ADHD) and in children with disorders of excessive somnolence.…”

Associations Between Neuropsychological, Neurobehavioral and Emotional Functioning and Either Narcolepsy or Idiopathic Hypersomnia in Children and Adolescents

“…Three case studies explored the association between narcolepsy and academic functioning. Karjalainen et al 26 used mixed-methods research including parent and teacher questionnaires and the Strengths and Difficulties Questionnaire (SDQ) with the six children in whom narcolepsy was diagnosed. This real-life context yielded parent reports of problems with concentration and attention following the development of narcolepsy, and observations that skills that had been previously learned were lost following the onset of the disorder.…”